Cardiacs

[RogerCMerriman]

inews.co.uk/news/long-reads...

I don't remember the band to be honest, though apparently yet another band from the area.

[Kirk5w7]

It is so sad that it all comes down to money, but that’s how society works these days, we just have to be grateful when we can access the things we need.

I’m sure he’s not the only person in this position in this country, or worldwide for that matter.

Every day we should be grateful for good health when we have it.

I’m sure there are many many people who are not aware of the devastation caused by heart attacks. Hypoxic brain injury must be up there as one of the most tragic injuries.

Janet x

[cat3]

I don't remember them either, but it's like there's an extra layer of tragedy when someone so dynamic & productive is hit by brain injury. I'm a big fan of JustGiving and regularly donate, but is 'subsidising' the NHS, an even quicker route to the slippery slope of private healthcare............. difficult one.

I hope Tim can access the aftercare he needs, and all the others facing a dead-end in treatment. x

[RogerCMerriman in reply to cat3]

Even with funds/care the outcomes can be poor, I had my accident around the time of Michael Schumacher who has had a much worse outcome even with the care.

I agreed the funding and private doesn’t sit well with me.

[LindaHannah]

Well if Steven Wilson can site him as a genius, he must have been. Some big names there who rated him and we're inspired by him

[LindaHannah]

I have just re-read the article. It shows that on- going regular physiotherapist is so important, as important as personal care. Unfortunately it is the treatment that ends even though the benefits are clear. It does come down to money, but also to a lack of thought to the long-term need. Regular physiotherapist for such conditions can prevent complications too, but it is a daily need. I am not sure that care packages include paying for a physiotherapist to do continued work.

And how sad that a brain injury can be so unforgiving.

Let's hope that some extra money will buy some input to improve things, including a system to aid him to communicate and even compose. With very best wishes.

I am going to search out the Cardiacs

With very best wishes xxx

[cat3 in reply to LindaHannah]

My ex husband had a massive SAH 6 months after mine and, whereas I came home after 2 months, Salford Royal wanted Geoff to have continuing care in Walton hospital (renowned for rehabilitive care).

His wife however, being next of kin, insisted he be sent to a nursing home close to her home where he recieved no aftercare, and where he died 18 months later of pneumonia.

We'll always lament the fact that my son & daughter were denied the power to intervene in their dad's care despite his showing potential for improvement. xx

[LindaHannah in reply to cat3]

Oh how sad. I am sorry to hear that. I am sure you have lots of thoughts about this, your son and daughter too xxx

[cat3 in reply to LindaHannah]

We have Linda. But as time has passed we've faced the reality that, even with the best therapy, he would've been left with major limitations And, being the powerhouse of a man that he was, he would have struggled big time with frustratiion and possibly anger issues.

We'll never know of course, but whereas my prognosis was 'We really can't say'........ Geoff's was a definite 'Poor outlook owing to catastrophic brain damage'. At least we managed to convey our love and make him smile in those months before he died, which was a massive comfort. xxx

[LindaHannah in reply to cat3]

I am glad to hear you had that time, and have some positive memories to remember xxx

[RogerCMerriman in reply to LindaHannah]

Even as a high functioning I’ve be surprised at what the Physio’s have found, both the Community Nero and the rehab unit, apparently my eyes don’t track correctly not that I’ve noticed etc.

Which is long way of saying I’ve been impressed by the skill etc of the Physio’s back, to a Community Physio next week to do who knows what!

I think it’s the struggle of getting into the system, I’m seeing a lot of stuff at moment but I got missed first time around and took the help of one the local Headway folks to sort that out!

[LindaHannah in reply to RogerCMerriman]

It is god to hear you have found some helpful input, including good physics and Headway. Physics have helped me twice with my arm - I broke it years ago, and then got a pinched nerve a few years later. I hope you continue with improvement etc xxxx