Hello there, my story isn't about my self its about my partner. He has a hypoxic head injury and it's only early stages, I'm finding this so hard to cope with right now. Can anyone give me there storys if you have had this experience yourself..
Thank you 😊
I've not experienced this, I have a brain tumour but my hearfelt best wishes to you, I'm sure somebody will come along and give you some advice soon. You look after yourself, otherwise you will be no good to your partner. Lots of love. xx
Hi Donnalouise. My husband got his brain injury following carbon monoxide poisoning 28 years ago. He suffered lack of oxygen during this time and had dreadful damage. He was almost incapable of doing anything. He had 'lost' about 15 years, forgotten everything that had happened over the last decade or so. I brought him home and worked at getting him back to 'normal'. We started off playing baby games, then progressed to things like snakes and ladders, ludo etc as well as teaching him how to do basic things such as wearing the correct clothes, remembering how to do day to day things, laying the table, etc. When he could do that we went on to harder things and gradually he got back to reasonable normality. His memory has never been wonderful and is now getting worse with age, and his cognitive functioning is often far from perfect but people who don't know him well, probably don't realise there is anything wrong with him now.
I don't know how brain damaged your husband is but it would be worth you trying these things. They need to be done as soon as possible and it is hard work for both of you but you need to repeat them often. It has given us back a reasonable lifestyle which we could never have dreamed of the way he was in the beginning. In fact the hospital wanted me to put him in a home and leave him there as they didn't think he could ever recover.
I do hope this helps. Contact me further if I can be of help.
Lots and lots of luck and best wishes
Jan
I'm sorry Hun I haven't experienced this. I'm sure you will get a helpful response soon but remember we are all here to support you x
Hi how you doing x. It's not me either, it's my son. He's 12 and had a bleed and surgery to remove the clots. It's been ten months now and we are slowly starting to get our lives back together. It is hard but we are so lucky to still have him x for us the hardest parts are the Unknown. Not knowing what's to come etc x. He spent some time in a coma and forgot quite a lot but it's comin back slowly. the best rehab is from your loved ones the docs tell me x. Hang in there and best of luck with everything xxx
Donna don't worry we are all with sailing on the same boat. U can check on my posts.
Love
sanju
Hi
If it helps look at my posts. My husband sustained his head injury last April. It's a roller coaster of a life. Here to help if needed x
Hi, my dad had a severe hypoxic brain injury in 2014 following a cardiac arrest. Headway have a leaflet/section on their website on hypoxic brain injuries which I found helpful. I can tell you lot about our family's experiences and some of the things we've learned from the neurologists, physios, etc. Each injury is very unique but it is useful to hear other people's experiences as it gives you some idea of what to expect. i send you all my sympathy and best wishes as this may well be the most difficult time you ever go through in your life.
My son has a hypoxic brain injury following a cardiac arrest last year, he was 18....... He is home after 9 months, 3 in hospital and 6 in rehab. It's a struggle and heartbreaking at times (he was due to go to Southampton university this year 😕) but at least he survived. Looking at the figures few do after out of hospital cardiac arrest. You have to stay positive although I know how difficult that can be. Sending you lots of love.
Hi Donnalouise, I have also sent you an e-mail. My son had a cardiac arrest,it took 25 mins before his heart started, as you can imagine the outlook was not good. Today we are 5 yrs on, still have loads of problems but i am so proud of him. I takes so much patience, care and love, you are bound to get frustrated, sad, tearful, days you can't cope. Please try and look at all the positives. OK life will never be the same but with hard work and love you will get there, stronger and do things you never imagined. I am always here to help or just listen. Please be strong and love what you have. It is not perfect but look for the smallest good things and let them grow. 'Where ever the seeds are planted may they bloom with grace'.
l
My husband has a cardiac arrest 12 years ago at the age of 47. He was in hospital at the time otherwise he wouldn't have survived. Even then they took 30 mins to get him breathing again. We were told he wouldn't survive the night but here we are 12 years later...
He has an extremely bad short term memory - 5 mins is good for him! Luckily (?!) this is is only problem and over the years I have just learned to cope with it. I know that other people with hypoxic injuries have all sorts of symptoms as everyone is different. As time goes on you will become aware of where your partner's are. Headway are fantastic for giving advice on how to cope with whatever problems you have to face.
Hello
My partner had a heart attack, like you the outlook has been very grim and he is in a state of msc. It took a lot longer to get his heart beating. His head does move and he makes sounds now and I feel he is trying to talk back. He had started to move one of his arms plus his finger and thumb but this stopped. I am not sure if it stopped because he did not get and physiotherapy for a few weeks and has had quite a few moves to get him to rehabilitation. I just wondered are they good signs although I know it is going to be slow progression. What things to look out for and in your experience what sort of things I should do to try and stimulate him please.
how do I cope with a loved one in a coma?
Exhausted trying to function!
how do people cope
