Nausea: My daughter was diagnosed with... - Gluten Free Guerr...

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Nausea

Pebbles1 profile image
10 Replies

My daughter was diagnosed with Ceoliacs disease just over a year ago but has recently started feeling nausea every morning again although she has been sticking to her diet. Has anyone else suffered with a similar situation? we can't understand why this has started happening all of a sudden.

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Pebbles1 profile image
Pebbles1
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10 Replies
ThatPandaGirl profile image
ThatPandaGirl

Hi Pebbles,

I have been diagnosed coeliac for nearly 10 years and for the last 5 and a half I have been permanently nauseated. I've had every test under the Sun to no avail and am as in the dark as I was when it began. I now control it to a certain extent with prescription anti-emetics and appetite increasing tablets and have discovered many other problems along the way.

I have a strong suspicion my issue is with cortisol. I've had many tests in relation to this and half the time it comes up low, half normal. Look into adrenal fatigue or adrenal insufficiency and see if it fits. Sadly my local endocrinologist won't treat anything that isn't full blown Addison's disease but my research has shown some very clear links between adrenal issues and coeliac, especially if the coeliac was a long diagnosis period.

Good luck and I hope your daughter feels well again soon.

1stgls profile image
1stgls

I get nausea every day---it is strange because it is not the deep down in your stomach nausea, which gives you a bit of a "heads up", but the instant "Oh my god I am going to be sick NOW", it comes on for no reason--making a cuppa/watching t.v/knitting, even in the shower. (I have lost the contents of my stomach twice, but usually it is just the intense feeling)

KimberleyB profile image
KimberleyB

Hi,

Have you tried going fructose free? I am wheat intolerant and was diagnosed 2 and a half years ago. After being wheat and gluten free for 6 months I still felt tired all the time and I started to feel very sick first thing in the morning.It was that bad that I couldn't keep breakfast down on a couple of occasions. The way 1stgls describes it is very similar to how I feel when I eat fructose. My GP sent me for a fructose intolerance test and this came back positive.

It involves going to the hospital for the morning. They give you a solution high in fructose and then take breath tests every fifteen minutes to record the amount of hydrogen in your breath. They also take blood every half an hour. They say whatever your body can't break down it turns into hydrogen and normal readings should be between 20 and 30 I think. I ended up giving a reading of 120.

Ever since I have gone fructose and gluten free I get no side effects. I can instantly tell if I have eaten something with fructose the next day as I feel very sick in the morning and get a headache. It may be worth asking about this.

Good luck, I hope you find a solution.

HazelG profile image
HazelG in reply to KimberleyB

One of the things the dietician said before the FODMAP diet might help. Fructose is more easily absorbed if eaten with an equivalent or greater amount of glucose. The trick is to space out fructose intake throughout the day (say breakfast lunch and dinner for fruit which is much higher in fructose than vegetables) and make sure that you do not eat fruit and vegetables with excess fructose These are:

Apple, Mango, Nashi fruit, Pear, Persimmon (sharon fruit) Rambutan Watermelon

super sweet pineapple peach Sugar snap peas (some mange tout) Artichokes (Globe & Jerusalem) Asparagus Beetroot Brussel Sprouts Cabbage Chicory Dandelion leaves Fennel Garlic Leek Legumes (Beans and lentils) Okra Onion (brown, white, & Spanish) Peas Radicchio lettuce Shallot Spring onion (white section). Wheat Barley and Rye are also in this group. Alternatives - the usual GF products.

You will find the onion family to be unavoidable in ready meals Pak Choi is a replacement for cabbage. I find that the legumes follow the NICE rules for resistant starch so that eating beans that have not been reheated in a can (e.g. frozen soya beans and broad beans) is alright but canned red kidney beans are not. Fresh broad beans from a pod in summer are even better. Others i know can tolerate beans in small quantities.

I have to make stock from chicken bones (independent butchers) I have not been able to find a stock cube without onion or garlic and have found a pressure cooker indespensable for this (otherwise 5 hours boiling every month). Hope this helps you both incidentally not all hospitals carry out that test. Mine doesn't. Happy new year to everyone

KimberleyB profile image
KimberleyB in reply to HazelG

This may sound silly but what is the FODMAP diet? The hospital I went to did the test but the dietician I saw was rubbish. I quizzed her about what I could eat and she had no clue. I have had to find out that invert sugar syrup contains fructose and many other things myself. The only response I got from her was try it and if it makes you ill don't eat it again! So helpful!

I use knorr stock cubes, don't know if they are onion free of the top of my head but I don't seem to get any side effects. I do avoid all fruit and veg though. I seem to have a very low tolerance. I think I have read somewhere that strawberries are meant to be one of the better fruits to have but I can't tolerate these at all. Even apricot kernels in cake will set me off if I have a piece a night for 3 days. Even one piece makes me tired.

If you have any other handy hints I would be greatful as I have had to learn stuff by myself which is not so great when you eat something not realising its bad.....like lettuce!!

Thank you,

hope you have a good new year

Pebbles1 profile image
Pebbles1 in reply to KimberleyB

Thank you for your advice, this is definitely something I shall keep an eye on. We have been to the doctors and had numerous bloods test which have all come back positive. However, she was not tested for fructose and at the moment the sickness appears to have gone away. As she has lost weight we have made an appointment to see a dietician so I am going to discuss the fructose situation with her as well.

Happy New Year to you.

laura_89 profile image
laura_89

How could I have not known about this?! I've been diagnosed for 22 years and in the last 3 or so years i've noticed this 'morning sickness' like feeling come and go, i've done multipal pregnancy tests all been negative but could never shake the sickness. Should I head to the doctors and get tested for this fructose thing? I've never even heard of it before!

KimberleyB profile image
KimberleyB in reply to laura_89

Wow!

It might be worth trying to go fructose free for 2 or more weeks and then try a piece of fruit and see if you have any noticeable reactions. Just be wary if you do as fructose is not always obvious on the ingredients list. It is in golden syrup, invert sugar syrup and molasses. It may also be worth trying the lactose one separately as it could be either like benjac64 suggested. I know a Coeliac who is also lactose intolerant.

If you get a reaction you could ask the doctors. It depends on what your doctor is like and what you would prefer to do. Someone did mention that not every hospital does the test so it might be worth asking.

Good luck, let me know what you do and if it is another intolerance or not. It would be interesting to know.

benjac64 profile image
benjac64

Have you tried going lactose free, some people who suffer from coeliac disease also damage the gut and prevent it from being able to breakdown the lactase. Lactose intolerance can cause nausea feeling, once lactose/milk has been elimanted for a period of time and if the gut is healed the person maybe able to return to milk in the diet (I was lactose intolerant for a long while, I have reintroduced milk products but still keep the quantity low and tend to use Rice milk) If after elimation of milk/dairy she feels better return to your doctor to ensure that Calcuim and Vit D levels are good they may give supplements. I also recommended the Liver and bowel cleansing diet - book which helps give advice on what helps to repair damage to your liver/gut. Hope this helps.

Pebbles1 profile image
Pebbles1 in reply to benjac64

Thank you for this it could well be something else we try.

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