Coeliacs,NCGS and Milk

[Sotonowl]

Hi everyone. I've only recently started navigating myself through this minefield.

I understand Coeliacs can go hand in hand with milk intolerance or lactose intolerance but has anyone been able to still use the Lactose free milk without showing symptoms?

[Penel]

Hi

Problems with dairy are very common in coeliacs. They sometimes resolve over time, as the small intestines heals.

If your problem is with dairy generally, then it may be the dairy protein casein, rather than the sugar lactose, that is causing it. If you have lactose intolerance then lactose free milk should be ok for you, but you won’t know until you try.

I find that I can only tolerate a small amount of lactose free dairy products.

[ROBNUTT in reply to Penel]

I have been celiac for 52 yrs and have tried all different types of milk

I have found that as my stomach has healed i can now tolerate milk and milk products, since a child i have used goats mik whick is easier to digest and has a lot of health benefits

[Sotonowl in reply to ROBNUTT]

Thanks for the information and the reply.

Where do you get the goats milk? Is it available in supermarkets? I wouldn't know as I've never looked for it. Do you use it in tea?

Think i'll probably try the lactose free first. Do they do a lactose free goats milk?

[Rosepetal60 in reply to Sotonowl]

I expect you have now found out where to buy Goats milk. But just in case. I see it regularly on the Waitrose milk section. Use to buy it for my daughter & later for myself regarding Osteoporosis. I did find it superior to the local goat farm milk. And a more refined flavour. St. Helens Farm goats milk also sold at Waitrose & ? some supermarkets is very good too and they make their own cheese, yoghurt & cream.

[Sotonowl in reply to Rosepetal60]

I've still never looked for it or tried it to be honest. I'm struggling with milk so I try to avoid it. If I have butter in mash for instance I'll get a reaction. I just drink the fruit tea now during the day and use almond milk quite a lot. I like a few alcoholic drinks on Saturday night but my Traditional British beers are now off the menu, I have to put up with cider, wine and I do like the rhubarb gin with tonic.

[Rosepetal60 in reply to Sotonowl]

In that case, Watch out for the wines that contain milk. Vegan wine being ok. Red fruit teas are good for one. I think they are good for eyesight. I have quite a selection of herbal teas and fruit ones. Have you tried Redbush tea? Quality varies with price but there are some good supermarket ones out there. No milk required and I find it pleasant to drink on a regular basis. My first cup of tea to start my day. And often an afternoon tea drink too. I’ve read it’s Good for the bones if one can drink 8 cups a day. I can’t as I like more variety

[Sotonowl in reply to Rosepetal60]

No never tried Redbush although I have heard of it previously, I use a brand called Knightsbridge.

[Penel in reply to ROBNUTT]

I’ve tried goats milk but unfortunately it’s got too much lactose for me to tolerate. I’ve been gluten free for 10+ years and can now just about tolerate some cheese and yoghurt.

[CATRYNA49 in reply to ROBNUTT]

I, too, resorted to raw goat's milk almost 40 years ago, switching from raw cow's milk that I had been drinking for 10 years previous to that. I am fortunate to have a friend who keeps goats.

[Hidden in reply to Penel]

In regards to the casein thing, there's what they call A2 milk that has that protein removed. But I've never tried to find it. I'm pretty sure it's the casein in milk that causes all the, well, snot! Sinus trouble, drainage, etc. Seems more logical that it would be the lactose for coeliac people that causes the trouble. There's a crowd out there that think humans have no business drinking milk from a cow in the first place- it's not designed for people. And like Robnutt said, goat's milk is the best substitute for human milk, but I've never looked for that either!

[Penel in reply to Hidden]

Only about a quarter of the world’s adult population can digest lactose. It was a useful adaptation to evolve, probably meaning that you had more chance of surviving.

[Karen49]

I can eat dairy though I had to eliminate lactose from my diet 6 years ago, I use a splash of lactose free milk in coffee (3 cups a day max) and soya in porridge no adverse effects. BTW I don’t drink tea.

Traditional hard cheese and butter (not spreads) is safe, natural yoghurt (but not the flavoured or “Greek style”) is also generally safe but do remember many processed foods and medications contain lactose.