Saw the consultant today who confirmed I do have Coeliac. He couldn't tell me how damaged my villi were however. Just thought I'd share my journey with you all.
I first went to the Dr about this with neurological issues at the end of this summer. Thankfully she ran a coeliac screen amongst other tests. Four months later I have my diagnosis. Looking back I first started having gi problems when I was 19 after a bad bout of gastric flu. This then triggered years and years of ibs which doctors tried to treat with peppermint oil. Eventually I just accepted that was the way my body was. After I was pregnant with my son everything settled down and I would get very occasional flare ups but everything was manageable. Then this summer the neurological issues started. I've always bloated after bread but to be honest thought that was nothing and happened to everyone! It was a real shock when I got the positive blood test but looking back the signs were there.
I'm very glad I started gf diet after endoscopy. Things are going well with that although it's amazing how your mindset about food changes. Six months ago if you'd have told me I'd have to give up gluten forever I wouldn't have known how to cope. Now I have first hand experience of how poorly it makes me feel it's not a difficult decision at all!
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Sparkstar2
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Hey good luck Sparkstar2 knowing what was causing the issues is a great relief and once you've been gluten free for a while and your villi recovers your vitamin and nutrients level recover and you'll feel younger and better than you can imagine.
What works for me is a naturally gluten free diet based on whole foods and I bake most of my own bread and cook from meals from scratch.
On the Healthy Eating forum we have a gluten free Topic section with lots of gluten free recipes and meals:
Unfortunately your story to diagnosis isn't that unusual. I'm glad they finally tested you and you have your answers now
Good luck with the GF diet. You'll find a lot more foods than you expect are safe to eat
Great you finally have an answer. That's the beginning the positive journey.
Can I ask - did you have the blood test intially for coeliac, and if so, did it show a positive result for coeliac or did it show negative for coeliac (which sometimes happen even though endoscopy is positive).
I had 2 blood tests, one abnormal at 27 and one positive three weeks later at around 33 I think. Endoscopy didn't see anything wrong but damage evident on biopsy.
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