I have recently been diagnosed and am in the search for some answers.
None of my family have Coeliacs but have had problems with IBS in the past. In the past I had sometimes experienced issues with IBS attacks somewhat randomly, however over the summer I 'suddenly' became very ill and couldn't keep anything in my belly everytime that I ate. I had some nights where I was cold and shakey and felt sick but never was, but the majority of times I had chronic diarrhoea every time I ate and what I describe as 'kungfu' going on inside my belly.
It happened so suddenly that we presumed it was a stomach infection, but it went on for so long and all of the many stool samples that I sent off came back as negative. Finally, the doctor suggested a blood test to screen for any abnormalities and that was when Coeliac was apparent. I then went for a gastroscopy and that confirmed things.
I'm just interested in finding out how yours started? Did it suddenly come on? Did mine get triggered? Was it something that I did? Was it something that I could have prevented?