My son (13) had glandular fever 18 months ago, it went on & on, and all the doctors thought he had Chronic Fatigue Syndrome (ME). Blood tests for coeliac disease were negative - but we do have coeliac disease in the family (my daughter, and my husband's sister & uncle are all coeliac). My son became so exhausted that he needed a wheelchair to get out & about. To cut a long story short, I suspected that he might be coeliac, he agreed to start a GF diet, & has been improving steadily ever since. After 3 days on the diet he commented that his bones don't ache any more. After 2 weeks he was able to come out on family walks.
When I told the consultant about this, he categorically stated that my son is NOT coeliac (because blood test was negative), but he is probably allergic to wheat. He intends to do a RAST test for this (measures IgE I think....)
Obviously my son cannot now have the biopsy for coeliac disease (& he is not at all keen to start eating wheat again) - but I have ordered a genetic test from a lab in the USA (recommended by someone I trust) - this tests for coeliac disease/gluten intolerance. But has anyone else heard of an "allergy to wheat", or does anyone know how this differs from coeliac? Thanks.