Introduction

[Hoppy123]

When I eat food with gluten I get severe stomach pains, I've had an endoscopy but showed nothing, had biopsy but no results.

What I would like to know is does anyone else have the same problem

[Activity2004]

I get really bad cramps to the point where I can't move if I eat something with gluten in it. What has your doctor said?

[Hoppy123 in reply to Activity2004]

The doc has no idea until she gets my results.

It's worse when I eat bread, then I actually am sick.

It all started this year just after my 50th, not the best of presents lol

[Activity2004 in reply to Hoppy123]

Sorry to hear that! When do you get the results?

[Hoppy123 in reply to Activity2004]

It's been 6 weeks now and nothing, I call them weekly but I think I'm just getting on their nerves.

How long have you had gluten issues and are you around my age, I only ask as I wondered if it could be age related some how.

Hoppy

[Activity2004 in reply to Hoppy123]

I've been GF for almost 3 yrs. and I'm 35 yrs. old. I put myself on the GF diet because I feel better when I eat nothing made out of gluten. I even did a mini experiment to see if I did have an issue. Not good when eating food with wheat gluten in it.

[Hoppy123 in reply to Activity2004]

I try to do the same but sometimes I grab a quick biscuit then very quickly pay for it.

The pain with me is in the middle of my stomach just below the middle of my ribs, the pain is unbearable and impossible to get comfortable.

I have a condition which causes nerve damage so maybe that has something to do with it.

Hoppy

[Activity2004 in reply to Hoppy123]

Oh! You should ask your doctor about it. The nerve damage may be a factor, but I don't know.

[Rosie11011 in reply to Hoppy123]

Six weeks is too long. It usually takes 4 weeks to get the results. Feel free to carry on pestering them!

[Hoppy123 in reply to Rosie11011]

Just called them again , they told me all results now get sent away from hospital

[appletina in reply to Activity2004]

my doc said it was all in my mind

[John419]

There is also non coeliac gluten sensitivity, and there is no test for this. So the way you describe it, avoiding gluten altogether is your only option.

Any supermarket with a Freefrom section will have gluten free biscuits.

[Activity2004 in reply to John419]

Yes, but you have to know where to find them in every store.

[Angel25]

Five decades ago my sister almost died because nobody knew about Celiac. I grew up on rice but did eat normal diet. However, Mom was warned to watch me and I can clearly remember getting in trouble in dayschool for refusing to eat gluten and punished severely before I could talk to tell Mom about it. So I think my body knew I couldn't have gluten even young. By 30 started having more of the severe signs. By 43 horrible enough but nothing like few years later when having it GF then eating it again. Switching gets worse signs so no cheating! Store products were never as good as Mom made even now. Eat better, yes. I just cheated and had the second worse case of IBS. Now, Pamelas's is good for baking flour if you don't mix your own but when you go back to baking products just google, experiment, and pick up a few cookbooks. Eating vegetables, etc., is better for us anyway. As for cakes and baking guar gum and xanthum gum both together; try it. Along with Sweet rice flour (I forget which bulk one, green maybe other than red bag in Asian markets) plus your own mix per recipe (others on here or on internet may help you with deciding) it's good to have a mix of three flours at least, like Fava Bean and Garbanzo before quinoa and flax was widely available was one choice for Mom with regular brown and white gluten free flours. Check out your local markets for gluten free products. Your flour is switched with no additions or deletions usually if you have a normal flour recipe. Make sure you get fiber as that's the killer with being Celiac. Rudi's breads are pretty good for many of us. It's a preference, really. Still, never better than Mom's as her homemade recipes could have been branded and marketed - but she had five decades of baking off and on. This makes it harder for me to pay high prices for junk I'd rather toss so have learned what suffices if I don't bake - and being gluten free doesn't mean go hog wild on eating bread products or eating twice as much which is a mistake new Celiacs can do because at first you don't feel full or seem to crave. Good luck.

[Activity2004 in reply to Angel25]

Udi's bread stays together better in my opinion.

[Angel25 in reply to Activity2004]

Yeah; I keep trying to say Rudi's and I know better. lol I just wish could bake like Mom did. Totally gluten free, melt in your mouth delicious bread, pancakes, cereal, you name it. The year she passed we finally decided I was showing too many signs for a long decade or more. Incredibly as probably said above or somewhere else she had been told to watch me for it showing up years later when I was born after my sister's near death from gluten and failure to thrive. Back then if that's all that happened then you had Celiac once they even learned of it. My sister was first in that part of area known. My, how times have improved.

[Angel25]

Do you like Spaghetti Squash? Excellent replacement as well as cauliflower I should do more. They even do crusts from cooked or baked cauliflower. Sometimes I think the Atkins diet when followed strictly I felt good for decades because I wasn't getting gluten. However just experiment with googling recipes, Paleo if gf and funny how diabetics if you notice will have pretty similar recipes if I am right with what I have noticed over time.

[Hoppy123]

I've never heard of spaghetti squash let alone tried it, I'm not the best chef in the world.

Where would you buy it from

Hoppy

[Penel in reply to Hoppy123]

They are also called zucchini, probably more common in the US than UK.

You can use courgettes to make your own vegetable spaghetti, just peel them lengthways into thin strips.

[Angel25 in reply to Penel]

Yes, I used to even have them in a garden. Hopefully any vegetable(s) we can get creative with. Hoppy, try googling it so you can see if available where you live if they ship worldwide. Any store with lots of veggies. But do google it so you can see it's yellow shape and form inside once cooked is like strands and try googling recipes. Delicious. I cheat once in awhile on diets and put butter, salt to taste, sometimes garlic seasoning along with dried Parmesan cheese you get for Pizzas is usually on hand instead of me running to store for regular cheese. So good but there are healthy recipes. But if you never heard of it, google it and see!! Yum!

[Hoppy123 in reply to Angel25]

I will give it a try.

Feel really tired today didn't sleep very well had terrible stomach pain, I've found gaviscon helps

Hoppy

[Polaris]

Hi Hoppy

I've had gastritis, gall bladder pain, IBS, reflux, etc. for years. An endoscopy could only find high h/pylori and I was given antibiotics, which helped for a while,

I've found huge relief in the last year since avoiding gluten and taking spoonfuls of sauerkraut daily (better than any probiotic).

In the meantime, I'd researched vitamin B12 and discovered that h/pylori, gastritis, etc. as well the medications, had probably depleted my B12. I was wondering if this had also happened to you, as severe B12 deficiency eventually causes nerve damage if untreated.

[Hedi]

Hi

did you done blood test for antibody IgA??or helicobacter ??