Gluten related slurred speech and unsteadiness

[GlutenLadYorkshire]

Last year I had slurred speech and unsteadiness, I thought it was caused by an ear infection I had, I already had coeliac since 2015 and didn’t follow the diet until last year, I don’t have any of the said symptoms now has anyone had any dizziness and slurred speech with coeliac disease?

[Hidden]

I get both of those I do have coeliacs disease but I also have anxiety and get bad migraines so could be any of the three

[GlutenLadYorkshire in reply to Hidden]

Well I was suffering from depression and anxiety i only got really bad headaches once in blue moon, they say it may be gluten ataxia but I really doubt it I think that it is the above but we shall see

[Hidden in reply to GlutenLadYorkshire]

I’ve never heard of that

[GlutenLadYorkshire in reply to Hidden]

Not have I really but it’s not good like it when gluten attack’s the brain and causes irreversible damage so I hope it’s not that

[Penel]

Coeliac U.K. has some information on this.

coeliac.org.uk/coeliac-dise...

I hope you are managing to follow a gluten free diet now.

[GlutenLadYorkshire in reply to Penel]

Yes I am on a gluten free diet and I feel loads better I’m pretty sure I don’t have gluten ataxia, I definitely have coeliac, I’m also signed up to CoeliacUK thank you for your post.

I was wondering if other have had any issues especially depression and anxiety after the gluten free diet.

[Penel in reply to GlutenLadYorkshire]

Having to give up foods containing gluten can be a big shock, it’s a real loss. I think that feeling anxious and depressed about what you can or can’t eat are very common feelings, and can take time to come to terms with. Have a look to see if you have a local Coeliac group to give you some support.

[GlutenLadYorkshire in reply to Penel]

It’s a real struggle sometimes when I see my family eating what they want sounds silly but I feel left out.

[Penel in reply to GlutenLadYorkshire]

It doesn’t sound silly at all. I try to balance out that feeling with reminding myself that I must eat gluten free for my health. It’s not always easy and I still need to remind myself of it after 10+ years.

When the whole family are together, I try to find gluten free versions of food so that we can all eat the same foods, eg. gluten free pasta, and cook from scratch. Bread etc is kept completely separate from where I prepare food, so there is no possibility of cross contamination.

At home with just my OH, we eat completely gluten free. Again, cook from scratch. There are lots of gluten free recipes on the Healthy Eating site if you need any ideas.

[GlutenLadYorkshire in reply to Penel]

We eat gluten free pasta, I make my own cake we get ideas of a lady called Becky excell food is cooked from scratch, we also cook Chinese food, the only thing I find eating gluten free food is the bread is still not found one I like there is no substitute to the real thing although I don’t eat it, lots of convince food are not gluten free and I struggle there I don’t eat them but I’m really tempted, there is a gluten free fish and chip shop near me so that’s the only take away I’ll have.

[Penel in reply to GlutenLadYorkshire]

You’re right about the ready made gluten free bread! I tend to make pancake or wraps if I want to have a sandwich type meal. Making your own gluten free bread is an option but can be tricky to get right.

Our Indian take-away is ok as it uses Gram (chickpea) flour for its batter, so I only need to avoid the naan bread.

[Suit]

Yes. I thought a lot of my issues was caused by the eczema I had in my ear.

But when I was glutened on purpose last time. I figured it was due to gluten. More loosing words probably. But I also lost balance, even while standing still, with people laughing and asked if I was drunk.

[GlutenLadYorkshire]

I had similar symptoms to you I already knew that I had affects to gluten I only lost my balance when walking.

[Marz]

Being a coeliac or gluten sensitive it is important to know your levels of B12 - Folate - Ferritin and VitD - as absorption of these vital nutrients will be impaired. B12 if below 500 can be the cause of depression - unsteadiness and many other neurological conditions. It is a serious condition which Docs do not understand.

[GlutenLadYorkshire]

I’m currently taking vitamin d3 and folic acid, I am depressed but I think it’s to do with not working or driving and not being financially dependent I was unsteady last year but I’m not now the neurologist has said I’m not to work or drive till I see a specialist in gluten related diseases in Sheffield he is some sort of professor I do have coeliac disease.

[Penel in reply to GlutenLadYorkshire]

The professors at Sheffield Hospital are the best in the country, so you will be seeing an expert who should be able to give you a definitive answer. I hope it will be helpful to you.

Do you have anyone you can talk with, to support you through this difficult time? Perhaps look for a local Coeliac group?

[GlutenLadYorkshire in reply to Penel]

Thanks I have heard that he is an expert in gluten related disease and world known so I’m pretty fortunate to be seeing him. I do hope that I will get a definitive answer when I go.

[Fatima66]

Not dizziness but slurred speech and extreme fatigue.

[GlutenLadYorkshire in reply to Fatima66]

I think everyone has different symptoms it’s not good whatever you have