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Glioblastoma Support

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Grade 4 Glioblastoma Diagnosis

My partner was diagnosed with a grade 4 GB in mid July and sadly passed away on 4th September. We’re just so shocked and struggling to come to terms with how...

My partner was diagnosed with a grade 4 GB in mid July and sadly passed away on ...

Shavey83

•28 days ago

3 Replies

Constant headache

My husband was diagnosed with a GBM grade 4 in an inoperable position in March this year. He has had radiotherapy and chemo tablets. Also taking a low dose...

My husband was diagnosed with a GBM grade 4 in an inoperable position in March t...

Portugal1

•1 month ago

8 Replies

Living on my own with GMB 4

Anybody else out there living alone with this condition?Got good network of friends family but living alone Any tips suggestions..Just took early retirement....

Anybody else out there living alone with this condition?Got good network of frie...

Imstillstandin

•1 month ago

7 Replies

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New Life's Journey

Hello EveryoneNew to group and not sure what to expect but just thought l.would hop on and send a friendly hello. Just getting over an operation to remove a...

Hello EveryoneNew to group and not sure what to expect but just thought l.would ...

Imstillstandin

•2 months ago

3 Replies

Have you or a loved one been diagnosed with a Glioblastoma?

Researchers in Oxford are in the early stages of a planning a new clinical trial called Recurrent-GB for patients diagnosed with a Glioblastoma and would...

Researchers in Oxford are in the early stages of a planning a new clinical trial...

Maddie_TBTC

Administrator•2 months ago

2 Replies

Focused US......

Good morning to all, 3 AM here currently, have a quick question. Has anybody on here had any type of focused ultrasound used as part of their GBM treatments?...

Good morning to all, 3 AM here currently, have a quick question. Has anybody on ...

GBMRockStar

•2 months ago

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Husband about to commence chemo/radio.

Hello Everyone, My husband has been diagnosed with GBM grade 4. It’s unmethylated and I know the standard treatment may not be as favorable as hoped . He...

Hello Everyone, My husband has been diagnosed with GBM grade 4. It’s unmethyla...

Yeoktsan66

•3 months ago

23 Replies

OPTUNE TTF v Insurance

hi community. we live in the UK, my husband has stage 4 GBM-methylated, and are fighting our insurance company (not sure if I can name, but they begin with a...

hi community. we live in the UK, my husband has stage 4 GBM-methylated, and are...

Dex2010

•3 months ago

3 Replies

Hope or preparation for death?

I would like to hear your insights on my huge dilemma. My 63 year old mom was diagnosed with glioblastoma grade 4, had a successful surgery with 99.99% taken...

I would like to hear your insights on my huge dilemma. My 63 year old mom was di...

AvocadoForever

•3 months ago

13 Replies

Advice required

Our son was diagnosed with glioblastoma in 2022. After intensive treatment all cleared up but is now back. Tumor was on left side; he can't use his right arm...

Our son was diagnosed with glioblastoma in 2022. After intensive treatment all c...

worriedparents

•3 months ago

3 Replies

I need all the help I can get.

Hi,This is my first post. My brother has recently been diagnosed with a Glioblastoma grade 4. It's been alot to take in as I'm sure you can all understand. He...

Hi,This is my first post. My brother has recently been diagnosed with a Glioblas...

Melon44

•4 months ago

12 Replies

A New Milestone

I would like to share some good news. On Wednesday I had my review with my Oncologist for my annual MRI scan. The result of the scan was that my brain was...

I would like to share some good news. On Wednesday I had my review with my Onco...

Tansi75

•4 months ago

9 Replies

GBM experience

my husband diagnosed with GBM last November and did RT and TMZ . Now he is on his 5th cycle of TMZ. He is doing well except that he cannot read and write very...

my husband diagnosed with GBM last November and did RT and TMZ . Now he is on hi...

birdyellow

•4 months ago

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Macmillan Cancer Support Survey for those with Glioblastomas

Hi everyone, we have been made aware of a survey run by Macmillan Cancer Support to better understand patient experiences of treatment-guiding biomarker tests...

Hi everyone, we have been made aware of a survey run by Macmillan Cancer Support...

Maddie_TBTC

Administrator•4 months ago

Be the first to reply

Dad diagnosed with GBM grade 4

Hi, my dad was diagnosed with a glioblastoma about 4 weeks ago. He has gone from being a fairly healthy 58 year old man who travels around the UK and holidays...

Hi, my dad was diagnosed with a glioblastoma about 4 weeks ago. He has gone from...

KerriC05

•4 months ago

24 Replies

Offered palliative care only

Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated...

Dear all, Writing to ask if anyone may have an answer to this: My mum 76 year...

NJRV

•5 months ago

3 Replies

very new to this

My Mum has stage 4 inoperable glioblastoma and in the last few days has started suffering from painful thigh muscles and teeth. Is this normal. She’s been...

My Mum has stage 4 inoperable glioblastoma and in the last few days has started ...

LunaAster

•6 months ago

8 Replies

what have I joined?

I have a Brian tumour had the surgery now going to treatment radio chemo etc… Been told exercise is good Any advice on how much? Or little? any tips on...

I have a Brian tumour had the surgery now going to treatment radio chemo etc… ...

Ppmoorman65

•7 months ago

2 Replies

Looking for additional treatments for GBM 4 husband

Dear all - It’s been the hardest journey I’ve been on in my life. My partner and love of my life was diagnosed with GBM4 on November 30, 2023. We live in...

Dear all - It’s been the hardest journey I’ve been on in my life. My partner and...

KatyaBoston

•7 months ago

6 Replies

Tumour is stable but having seizures

Hello everyone. I’m wondering if anyone has any advice please? My Dad is now 75 and was diagnosed with a GBM nearly three years ago. He’s has done amazingly...

Hello everyone. I’m wondering if anyone has any advice please? My Dad is now 75 ...

Cranesbill

•8 months ago

2 Replies

Is there a link between the use of Wi-Fi to the increased growth in people of all age groups being diagnosed with a brain tumour?

Since the start of my involvement in the co-creation of The Brain Tumour Charity’s (TBTC) new strategy. I have spent a lot of time pondering this question...

Since the start of my involvement in the co-creation of The Brain Tumour Charity...

Tansi75

•8 months ago

6 Replies

Sign our open letter

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. We're calling for: 🔬Pioneering research into brain tumours. 🏥Access to...

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. ...

Zhaleh_TBTC

Administrator•8 months ago

2 Replies

My Tumour is shrinking

I am at the end of chemo cycle. In August my tumour was 1cm after I had the MRI. So 80% removed from right side of my brain. I have gone to 1cm to 1.5cm. In...

I am at the end of chemo cycle. In August my tumour was 1cm after I had the MRI...

Denni60

•9 months ago

6 Replies

URGENT! Has anyone had Lomustine and Sativex together?

My brother was diagnosed with GBM in May of last year. He had a vigil craniotomy in May 2023. He then had chemotherapy and radiation therapy together. He was...

My brother was diagnosed with GBM in May of last year. He had a vigil craniotomy...

Hermanito

•10 months ago

2 Replies

GBM and Keto Diet - Urgent

My brother was diagnosed with GBM (grade IV) in May 2023. I wonder, please, if any of you know about the Keto Diet and how effective it might be in treating...

My brother was diagnosed with GBM (grade IV) in May 2023. I wonder, please, if ...

Hermanito

•11 months ago

8 Replies

Support Team Christmas opening times

We know that this time of year can be difficult for many in the brain tumour community, which is why our Support Services will still be opening at reduced...

We know that this time of year can be difficult for many in the brain tumour com...

Zhaleh_TBTC

Administrator•11 months ago

Be the first to reply

hi, my husband had a surgery last Saturday and my whole world had crashed. GBM grade 4. I’m lost, and scared. I have 3 kids. 16, 13, 13

I’m looking for emotional support and chat. I live in California. My whole world has crashed in a second. What do I do?

I’m looking for emotional support and chat. I live in California. My whole world...

Manty54

•11 months ago

15 Replies

Help- my 18 year old just diagnosed with grade 4

My oldest, my 18 year son was complaining about headaches for a week. We took him to doctor on Saturday and by the evening we had an MRI of large brain lesions...

My oldest, my 18 year son was complaining about headaches for a week. We took hi...

Sjdhunt

•11 months ago

9 Replies

Chemo pills

My husband started his radiation and chemo pills Monday. It is recommended to take the pills before bedtime. After taking the pills he won't go to bed. He's...

My husband started his radiation and chemo pills Monday. It is recommended to ...

Nylo

•1 year ago

4 Replies

Aphasia

My husband is one month out of his tumor being 100% removed. His aphasia seems to be worse then it was 2 weeks out from surgery. He just started speech...

My husband is one month out of his tumor being 100% removed. His aphasia seems t...

Nylo

•1 year ago

4 Replies

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Posts - Glioblastoma Support | HealthUnlocked

Glioblastoma Support

Grade 4 Glioblastoma Diagnosis

Constant headache

Living on my own with GMB 4

New Life's Journey

Have you or a loved one been diagnosed with a Glioblastoma?

Focused US......

Husband about to commence chemo/radio.

OPTUNE TTF v Insurance

Hope or preparation for death?

Advice required

I need all the help I can get.

A New Milestone

GBM experience

Macmillan Cancer Support Survey for those with Glioblastomas

Dad diagnosed with GBM grade 4

Offered palliative care only

very new to this

what have I joined?

Looking for additional treatments for GBM 4 husband

Tumour is stable but having seizures

Is there a link between the use of Wi-Fi to the increased growth in people of all age groups being diagnosed with a brain tumour?

Sign our open letter

My Tumour is shrinking

URGENT! Has anyone had Lomustine and Sativex together?

GBM and Keto Diet - Urgent

Support Team Christmas opening times

hi, my husband had a surgery last Saturday and my whole world had crashed. GBM grade 4. I’m lost, and scared. I have 3 kids. 16, 13, 13

Help- my 18 year old just diagnosed with grade 4

Chemo pills

Aphasia

Search posts

Pinned Posts

Latest poll

Have you, or your loved one, had support from any of these specialists to help manage symptoms and aid aspects of rehabilitation?

Archive