glioblastoma

[Flowerpot1611]

hello, I am 23 and recently found out my dad has 2 months left to live after being diagnosed with a glioblastoma.

This has all happened so quickly, from discovering the tumour on the 11th November, to having most of it removed on the 9th December, and now he has 2 months left with me💔.

My dad and I were so close, we would speak everyday. I don’t have a very good relationship with my mother, so my dad is my everything!

I’m struggling a lot at the moment with guilt. I feel guilty that I can do things he now can’t. I feel guilty that I get to continue doing the things that he use to love. I feel guilty that I didn’t notice the symptoms sooner.

I don’t know if that will ever change.

Did anyone else have this awful guilt?

[popG]

I’m so sorry to hear about your dad ‘s diagnosis. It’s normal to feel guilt but it’s not your fault and you shouldn’t feel guilty. You should spend as much time with your dad as possible with the time he has. I was also given 3 months after my initial diagnosis but went through the standard radiotherapy and chemotherapy which would have given me 12-18 months. I’m now in my 5th year and feeling positive. I don’t know anything about your dad’s situation but have you been told that radio/chemo is not an option?

[Flowerpot1611 in reply to popG]

I’m so sorry you’re going through this! Sending all the love 🤍🤍

I’m so lucky to have him! He’s now been moved to a nursing home 10 minutes from me so I can see him daily!

Treatment isn’t an option unfortunately. We found the tumour quite late. He has symptoms for a little while but he put it down to other things. He only got help, as I told him to. Stubborn man! Every day he seems to be getting worse. It’s heartbreaking!

Wishing you all the best 🤍

[Moish]

Some people have seen success with megamin activ zeolite

[Cedarmarie Community Champion]

Hi. I hope you are doing OK. The guilt is normal but as the previous responder said, it isn't your fault so please be kind to yourself. I lost my sister and the amount of time I spent feeling guilty that I'd not done enough, not been there enough, should have noticed etc etc was immense, but doesn't change anything and just detracts from the time you have. I really hope you are getting some support. There's loads of info out there, I volunteer for the Brain Tumour Charity and there's loads on their website, worth a look. Very best wishes.