My Mum has stage 4 inoperable glioblastoma and in the last few days has started suffering from painful thigh muscles and teeth. Is this normal. She’s been taking paracetamol and ibuprofen to help with pain. I want to ask GP for advice tomorrow. Anyone experienced these pains with this cancer.
she only got diagnosed 3 weeks ago so still reeling from the sad news.
Thank you
Hi Luna. I am so sorry to hear your mother has glioblastoma. My father suffered with pain in his back and legs and was prescribed cocodomal to help with the pain (he had a glioblastoma but it wasn’t diagnosed at that point). He also became very sensitive to touch later. Wishing you and your mother the best, remember there are lots of people you can talk to if you need support / want someone to talk to through this. X
Hi Luna,
Sorry to read about your mother's GBM. There are somethings you can do to help your mother fight this condition. I was diagnosed with my grade 4 GBM in May 2010, though mine was operable and removed.
Diet is important, so include blueberries, pecan nuts and turmeric in her diet, which have anti-cancer properties. Cut out all unnecessary sugar, which feeds cancer cells. Also include fresh meat, fish, fruit and veg too.
Since 2010 I have been taking Higher Natures, Immune Plus tablets, which are designed to boost the immune system and do recommend them as they have worked for me. Also their complete Omega tablets, which are good for the brain.
I know that it is an extremely difficult time for you all at the moment, but laughter is a great healer, so do your best to laugh as much as possible together. Talk to each other, share memories and take each day one at a time.
If you read through some of my earlier post, you will find the advice I have given to other people regarding my alternative anti-cancer treatments.
Regarding a Hospice, is this what your mother and your family want? Please remember that you all have a right to decide what is best for your mother and not just the Health Care Professionals.
Have you asked if there are any clinical trials, which might be available and suitable?
Can I also recommend that you use the Brain Tumour Charity's website to find out what support could be available not just for your mother but for you to. Your health and well being is just as important as your mum's, so please do not neglect your needs too.
thank you Tansi, what a lovely post and so helpful.
As a family we don’t want Mum in a hospice so I have taken a career break to be there for her in her house. She is the pillar of our family and so important to all of us.
Thank you for the tips on healthy foods. We are struggling at the moment as she feels nausea and her appetite has decreased markedly.
I’ve been watching old favourite films with her and having a giggle together definitely helps. Unfortunately there are a lot of repeated sad questions as her short term memory has been affected.
Lots of people have said I need to think about my health and I know I do. At the moment I am not finding the time to run which is what I do so I need to make myself pick it up again. I have to push through the mental tiredness to do this.
Thank you again for your help and I wish you well and lots of strength with your own battle. Xx
Hi LunaAster
So sorry to hear about your mum’s health, it is a big shock……even though we know things are going to happen ‘one day’.
Tansi75 said similar things to me a short while ago and apart from pecans and vitamins we had a good diet, started eating them now! I’m afraid I don’t know the answer and I too have stopped doing all my previous activities. My husband is currently in hospital as has cellulitis in his leg……in my opinion due to swelling caused by steroids, kept asking, but not getting anywhere, ..you do need to look after yourself…. I have just had 24 hrs plus in the same acute ward as on a visit I started to feel faint and kept being sick….. poss a heart attack, as an enzyme high…..probably due to the strain in my opinion…..keeping fit gone for the foreseeable. You may be lucky but it does seem to be a case of keep asking, keep alert, try to prevent unnecessary problems…….on leaving my husband earlier I noticed his IV antibiotic drip not connected …queried as thought maybe super efficient but turned out to be the opposite. I wish you all the very best, your mum is very lucky to have you.
Hi Snettisham,
Thank you for your lovely message. I am so sorry to hear about your husband and also about you!
I hope you can find the time to look after yourself too. I was telling my husband that I feel guilty doing anything for myself but I know that if I am a wreck then there won’t be anyone looking after Mum so I need to give myself a break and make sure I stay as healthy as possible for her and my 10 year old son who is really struggling with seeing her fade.
I send you positive thoughts and wish you both all the best. Your husband is lucky to have you! X
Hi LunaAster
I realised afterwards I hadn’t actually answered your question…..no my husband didn’t have any real pain until this cellulitis. We don’t formally know his prognosis and so haven’t asked what may be around the corner so can’t really prepare properly, guess we’re reacting to everything rather than being proactive. So difficult all round. And of course we all know how overworked, understaffed and underpaid the nhs staff are! Forgot to say on my ward lady next to me I later discovered had norovirus, I wasn’t told and had seen my husband! Touch wood he seems ok……..and watch some comedies / whatever else that you can do that makes you happy!!!
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