Latanoprost: Hi there. I am new to this post... - Glaucoma UK

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Latanoprost

Avocado01 profile image
11 Replies

Hi there. I am new to this post and diagnosed with glaucoma about 3 months ago. I was prescribed Latanoprost and I Just recently started to experience extreme exhaustion with lower than normal blood pressure. Anyone else experience the same? I contacted my eye doctor and was asked to stop taking the eyedrops for 2 weeks and come back to discuss if symptoms go away. I am very nervous to do this as my understanding is taking these eyedrops are detrimental.

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Avocado01
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Beecalmed profile image
Beecalmed

If your consultant feels it won’t be detrimental to your glaucoma to stop taking lantanoprost for 2 weeks in order to see if your symptoms stop then I think I would do it. You want to know if it’s the Lantanoprost or something else causing your symptoms and exclusion is the best way to do it .

There are other eye drops that can be tried so follow your consultants guidance as problems with one glaucoma drop doesn’t necessarily mean problems with all drops.

You could also ask about the possibility of laser treatment (SLT) which may be an option depending on your particular diagnosis and can possibly remove the need for eye drops for some people.

Hope you get to the bottom of what is causing your low blood pressure! 👍🏻

Mimi987 profile image
Mimi987

Hi Avocado1! I am on latanopost and Dorzolamide/Timolol. The Dorzolamide/Timolol is a beta blocker which does lower blood pressure I think. Do you have glaucoma in both eyes? I only have it it in one and this eye is interfering with the other eye so I think I might try and lower the dosage. I also think lying down as I do overnight is not as beneficial as sitting or standing up!All the best to you!

Avocado01 profile image
Avocado01 in reply toMimi987

Hi thank you for response and yes I have glaucoma in both eyes. I ended up calling back my eye doctor and instead of waiting 2 weeks for a recheck off of drops they are going to see me back in one week which makes me feel a little bit better. I have considered laser treatment but eye doctor explained to my that since I am 54 yrs old that she advised holding off on surgery until I am older as if I did surgery now it most likely will have to be repeated again and each time you have it done it becomes less effective and as we age we tend to forget to take eyedrops or may have difficulties putting them in etc so she thinks saving surgery would be better to hold off on. I understand what she is saying but now I have been on drops for about 3 months now I am rethinking laser as I hate the way the drops makes me feel

Beecalmed profile image
Beecalmed in reply toAvocado01

Hi Avocado1!

OK so I see you’re in the US. Obviously the guidance might be different there. However we in the UK have something called NICE guidelines here which advises all medics on best practice. The NICE guidance changed around 2019 to say that SLT laser procedure should be considered as a first line treatment for open angle glaucoma. It’s not considered an operation more of a routine procedure. It’s thought younger people will opt first for SLT over drops and older people will opt for drops over SLT. You can have the procedure multiple times if necessary. You can have both drops and SLT.

I was diagnosed at 54yrs old. Similar so to you. I had SLT 2 -3 yrs later when I had had issues with eye drops not preventing progression plus allergic reactions to some eye drops and preservatives. I still have to take drops but I have preservative free. So SLT was a good option for me. SLT is a simple quick procedure that takes 10 mins in the chair.

I took Lantanoprost with no problems. I now take Bimatoprost (same family) still without issues. My allergic reaction was to Simprinza which made me giddy, light headed & occasionally breathless. And preservatives were an issue, so I’m now on preservative free.

The thing that seemed to halt my progression though was SLT. It didn’t drop the eye pressures as much as hoped but when I had it second time in other eye it just seemed to kick start something and my glaucoma stopped progressing. They are considering doing it again now.

Hope this info helps. Everyone’s diagnosis and situation is different but worth having another chat with your consultant maybe?

valfrance profile image
valfrance

SLT is not surgery takes 5 minutes each eye. I had this so far touch wood its been 4 years. Better on a virgin eye i would get if you have if you have open angled glaucoma. If you dont have single dose vials. It is not preservative free. I take monoprost same group as lantaprost. That is preservative free.

Bucanero profile image
Bucanero

Are you taking diamox alongside the eye drops? Diamox lowers BP and causes exhaustion too.

Avocado01 profile image
Avocado01 in reply toBucanero

No, only on Latanoprost

Conniegirl profile image
Conniegirl

I really could not get on with Latanoprost. I had palpitations- started within a few days of use and became quite severe. after three months. The palpitations went as soon as I stopped using them.

I had very dark rings round my eyes and my skin looked grey.

They certainly brought the pressures down though. From what I read on this site the majority of people are ok with them.- trust me to be different.

I would give it the two weeks and see if you feel different. There are many other brands the Dr could prescribe. Hope it goes well.

Carolnew profile image
Carolnew

been taking lantanoprost since April 24

Also changed to-preservative free

I am suffering from body aches and sinus problems ,under eye swelling , generally feeling unwell ..weight gain .dark skin on my eyelids . I have put myself on a low fat diet .. my eye doctor says that she can change The medication but all have unwanted side effects ..I had a full blood test to make sure it was not something else causing it but came back all clear ..I ve really had enough of feeling unwell and it’s making me feel very anxious and depressed

I feel the way forward for me is Laser treatment

Avocado01 profile image
Avocado01 in reply toCarolnew

yes… I feel the same about trying Laser treatment. I see my eye doctor in 2 days and I think I will bring it up. My understanding is Laser treatment may not work and drops may still be needed but it’s worth a try ! Anything to not feel this way as I have always been an active person and this feeling of exhaustion and too tired to do anything is terrible.

Carolnew profile image
Carolnew

It’s not nice not feeling urself I feel ur pain

This diagnosis has turned my life upside down ..can only hope we get some treatment that makes us feel better .. I just want to feel myself again ..

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