monopost worries: hi everyone,Like many of you... - Glaucoma UK

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monopost worries

callie77 profile image
22 Replies

hi everyone,Like many of you on here Iam having trouble getting my monopost.

Iam down to my last 3 days and can't get any anywhere!

Have asked gp to give me a replacement but I'm worried what she might prescribe as I have been on so many different ones before that didn't do well with me.

I also have to have pf.

Does anyone know what is similar to monopost pf? and what is going on with the supply?

Sorry for rant but I'm panicking!!

Thanks for listening.

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callie77 profile image
callie77
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22 Replies
Nala2509 profile image
Nala2509

I also have had problems in getting monopost. I called all my local pharmacies and everyone confirmed no stock anywhere. One very kind pharmacist advised that monopost is due back in stock in 2 weeks. I have no idea how accurate this is.

My eye clinic have prescribed bimatoprost which are pf. Like you, I also have had lots of problems with other eye drops, so I’m hoping these new drops work for me and that monopost is readily available very soon. I understand it is a manufacturing issue. I hope this helps.

callie77 profile image
callie77 in reply to Nala2509

Thank you Nala for your quick reply it really helps to know im not alone.Think i might try and ring consultant secretary tomorrow and see what she says.

I'm also on Cosopt but can still get that.

I hope you are doing well on your new drops.

PeterRabbit62 profile image
PeterRabbit62 in reply to callie77

Eye drops seen to be a problem everywhere, and not just monoprost, my mum have her prescription of them with no problems in Wales, I don't use monoprost but have had difficulty in getting eye drops prescription in the past, I even have to swap chemist to get one brand, and neither chemist can get it now it was Simzbrina, I am now using two different brands instead of it, which I have not had any problems so far in obtaining, go back to your consultant they will sort it out for you. Best wishes.

callie77 profile image
callie77 in reply to PeterRabbit62

thank you for your reply. take care

Sunshine8888 profile image
Sunshine8888

hi Callie my local Boots contacted me yesterday to say they now had new supplies in! So check again, 🤞your lucky too x

callie77 profile image
callie77 in reply to Sunshine8888

thank you Sunshine got some at last

sylvester1 profile image
sylvester1

Hi. Try not to panic! I also could not get the Monopost anywhere. The substitute I now have been given is Visutrax. Single dose, preservatitve-free. They have been okay for me, and I was very anxious about it too. The only difference is these are in 0.1ml unit doses, unlike the Monopost which was 0.02ml unit doses. So needed twice as many for the month as used in both eyes. Good luck.

callie77 profile image
callie77 in reply to sylvester1

thank you Sylvester i managed to get some in the end. Hope you doing ok with your new drops

PBX142 profile image
PBX142

You can't ask your GP because he or she is not your glaucoma doctor. You need to go back to your glaucoma doctor or their PA and ask what they recommend as a suitable substitute for you. I did that and was told by email to ask the GP for Lumigan. So I printed out the email and took it in to the GP's surgery so they had the authority to prescribe it. Hope this helps.

callie77 profile image
callie77 in reply to PBX142

thank you for your reply, all sorted now thank goodness!

swanlady123 profile image
swanlady123

Oh dear hope you get sorted-I have to collect my monopost prescription on fri-see whether its there!!! Very worrying with drops when we so rely on them & not like we can so easily use something else. Does really concern for the future as many drugs seem to be getting problematic -is it the big Pharmas we wonder starting their extra money making and control??? Really hope you get some-we can well do without the worry!! Best wishes.

callie77 profile image
callie77 in reply to swanlady123

Hope you got your drops ok Swanlady x

swanlady123 profile image
swanlady123 in reply to callie77

I did thank you today eventually(saturday) but not the Clinitas for dry eyes -they are letting me know when that arrives.

callie77 profile image
callie77 in reply to swanlady123

hopefully it wont be too long.

swanlady123 profile image
swanlady123 in reply to callie77

I still have an unopened bottle so fingers crossed.

EthelPledge94 profile image
EthelPledge94

I just received my Monopost. In two halves. One, one week and the next half the week after. I'm in London.

callie77 profile image
callie77 in reply to EthelPledge94

glad you actually got them Ethel.

EthelPledge94 profile image
EthelPledge94 in reply to callie77

Thanks. I thought I'd have to wait longer as the pharmacy warned me. I had a week's supply left. Good luck with yours. Where in the country are you Callie?

callie77 profile image
callie77 in reply to EthelPledge94

hi Ethel,i did write an update on my monopost hunt but dont know where it went!

I managed to get some eventually from a independent chemist.

So till next time thank you to everyone for your help and advice.

Im in Warwickshire but I dont think it matters where you are, everone is having trouble getting it.

What a nightmare!!

Amjan profile image
Amjan

I have just received my Monopost on Monday, didn't have to wait any more than a week. I am in Leicester.

callie77 profile image
callie77 in reply to Amjan

thats great Amjan maybe things are improving.Take care.

Pamak profile image
Pamak

I have to have pf too but consultant said to get prescription of non pf until it’s all sorted. Luckily my GP surgery managed to get me two boxes from elsewhere. This isn’t the only medication in short supply.

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