Hi I was refered to a rheumatologist because I had been suffering from bone pain and burning in my feet, alongside some other bone pain and other symptoms such as extreme tiredness and lack of libido, putting on weight, memory loss etc...have been struggling for the last 2 years like this with trips back and forth to the dr's until someone finally referred me.
The rheumatologist said the x rays showed that I had minor arthritis in my feet but that the burning pain was down to peripheral-neuropathy and that I have to take amitriptyline, he also said that he thinks I have chronic fatigue syndrome.
I am at the moment having a very difficult time getting anyone to listen to me or in fact treat me correctly.
The dr wrote to me and said we need to see you, I went down and she said "how can we help you", I explained that I had been to see the rheumatologist and he said he thinks I have peripheral-neuropathy and that he wants me t take amitriptyline, I stated that I didn't want to take a tablet like this until I had tests to determine if I actually have this condition, she asked why I didn't want to take the tablet, and rightly so I stated that if I have peripheral-neuropathy, I should have tests
to make sure this is the correct diagnosis first, and that then this condition will have to be monitored.
I told her I have spent 2 years trying to get someone to listen to me about the pain and exhaustion I feel and that this is no hurting my marriage and my family, because I am not the same person I was 2 years ago, I also find it hard because no one can see my pain, this makes me feel like people think I am a hypochondriac.
Anyway I was reading up on burning feet and it said this could be from hypothyroidism so I asked the dr to do a test as I felt that many of my symptoms fitted with that, they did the test and that has come back as normal.
It seems I am now back to square one, I am so depressed because my dr's just seem to pluck any illness out of the air and say I have it, for instance I am told I have chronic fatigue syndrome, they just send me away, not even with any advice, they say I have peripheral-neuropathy, but have done no tests to confirm this and I am left in extreme pain and very depressed because I feel that because I don't have physical symptoms (apart from the weight gain) I am not being taken seriously.
Now my thyroid has come back as what they class as normal I am at a loss as to how I deal with the issues I have.
Ha anyone found it really difficult to get their dr's to take them seriously, or even treat them accordingly or are these so called "invisible" illnesses, (rubbish) taken seriously.
I am 44, my youngest child is 12, I feel like I am much older, and am now at another dead end.
I was given some advice on the thyroid community which stated that just because TSH test shows normal it doesn't mean I am, and to keep pushing the dr's, but this is not how my dr's work, and because of the lack of things for the dr to see I feel like I am banging my already hurting head against a wall.
I would appreciate some advice please.