Functional Neurological Disorder - FND Hope
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Is a service dog an option to help me?

Hello,im matthew.

I was diagnosed with FND after years of symptoms, Im 16.

Im pretty lost in the lack of information i can find. My symptoms arent getting better...and doctors arent helping me.

Ive always considered a dog but now im not sure if that will help plus i dont know anyone with a SD who has FND.

Help?

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I was falsely diagnosed with FIND however I am now getting tested for celiac as it is more likely the cause of my many many symptoms. Keep an open mind in terms of what other things could be causing your problems.

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Hi:

I also was falsely diagnosed more than once. One Doctor told me that I had Fibromyalgia and I believe him for a long time. Then I met other people with Fibromyalgia and boy they were really sick, so I started my own research and I relized that I did not have this horrible condition. I had severe food allergies, Lactose which I sort of knew but I didn’t want to give up my wonderful cheese. I also have Celiac which I had to get a biopsy, Fructose Intolerance which I never heard of. Once I changed my diet all symptoms went away. That’s why you must be your own Adovate.

Take Care

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Wow. Glad to hear you figured it out! That’s very true they don’t always have it right the first time.

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Hi Matthew - I think a service dog might be helpful - if it helps to reduce anxiety/ have an external focus when things are bad - then yes maybe. I don't know your exact symptoms so I'm unsure if you need a fully trained SD or if just a well trained and calm pet would work - SD's are great but very expensive to train. Many hugs - you are not alone

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Hi:

What are your parents saying about this? Have you had a food allergery Panel Test done? You seem to be to young for this. You are only 16 years of age. Have you had an ANA blood test done to see if you have some kind of Autoimmune Problem. You are young you can look at all of your test results and try to see if the Doctors missed something. You and your parents must advocate for you. Make sure you have copies of all of your records and MRI’s CT Scans etc. including your Doctors Notes. You have a right to have all records. I don’t know about a Service Dog. Good luck keep in touch

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my parents want me to just act normally,pretend i feel okay ect. ive spoken to them about service animals ,if also spoken to my current psychologist who thinks im just talking about emotional support animals and doesnt take me seriously.

all of my EEGs and MRIs are perfectly normal.

i went to mayo to get it done, their awesome.

i havent done ana blood testing yet and im not sure about autoimmune stuff...

i know i dont have a food allergy.......question is this abnormal for me to be so young?

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Hi:

I think you are way to young, but I am not a Doctor. Did they x-ray your neck? Spine? What kind of symptoms are you having? I am still testing at the Mayo not sure what I have. I did not know that I had Fructose Intolerance until they tested me. That can cause so many symptoms. I didn’t know I had Celiac either until they did a biopsy. See if they tested your ANA through your blood work. Any Doctor can test your ANA. Talk to you later

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If you get a service dog and then recover from your FND, you will be in an awkward situation with your service dog. You can return the dog, though, right? I would try to recover from FND instead of getting a service dog. There is a book called Functional Neurologic Disorders, volume 139 of the Handbook of Clinical Neurology, that has a section on treatments that I recommend you read.

You might want to rent a regular dog from a humane society for a few days, to be sure that you are able to clean up after its pee and poop.

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I have two dogs both are the perfect age to start training, i have many other problem to need a service dog like chronic migraines and non epileptic seizures(starting to think its PNES), and bad depression and anxiety(signs of cptsd). because my FND i also struggle with mobility and stutter and stumble over words,and blackout completey .i might recover but im pretty sure the dog will continue to work. ive been thinking about it for awhile ive read the ada laws and i am what my doctor considers disabled.

thank you for the advice tho ;)

ill be reading that as soon as i get through finals.

p.s i dont think you can rent a dog plus im very sure it would hurt the dogs hopes to find a home =p

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Hi:

I just read your other post, you have a lot of symptoms. I agree with pickleweed buy that book I would definitely get a food allergy panel. Headaches can be caused by certain foods. I never heard of Fructose Intolerance until I was tested. I eliminated all sugars good sugars and bad sugars and what a big improvement, no honey, no gum not a single molecule of sugar. No more headaches for me. What do you have to loose. Maybe your headaches.

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Hey, just did some blood work, hopefully they'll find something... they are talking about the possibility for autoimmune disease so thats a start. I caught something recently and its just getting worse which make it even harder to get through my day so i when to the doctors today. Ill talk to you when i get the results

-Matthew

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Also how do you even cut sugars out?

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Hi:

It was the hardest thing that I had to do. Read all labels on whatever you buy. There are so many hidden sugars, corn syrup is one of the worst. I would start with the corn syrup and all candy cakes, pies😋😋 my favorite, pop including diet pop. I know this will be extremely hard to do. Least try it for a month or asked your Doctor if you can have a Fructose Intolerance Test if you really don’t want to give up all sugars, but you should least get rid of the simple sugars those are the cakes, candy, definitely the corn syrup. The test is where you drink this liquid (pretty sweet) then every 15 mins. you got to blow into a bag that can go on for 40-60 mins. It is a fairly easy test. After I drank the liquid within 30 seconds I became so sick and I knew I had a problem. I am glad that I took the test. I was eating fruit daily and the only symptoms that I had was I became groggy and the next morning I would have diarrhea, not excessive only 3-5 bowl movements and I thought that was normal because I have been doing that since I was a child. There are so many people walking around with Fructose Intolerance and they don’t even know it. Sugars can cause your triglycerides to sky rocketed and cause different Dieases. I hope you don’t have this problem. As far as Autoimmune Diseases there are over 200 Autoimmune Diseases. Usually when you have a high ANA then that indicates you have an Autoimmune Diseases and it takes an excellent detective (Doctor) to figure it out. Usually a Rheumatologist can do that. As far as having Lyme Disease, well you have to find a Doctor that specialize in Lyme and you need the proper testing and that can be tricky because most Doctors do not do the correct testing that is why you need a Doctor that Speialize in Lyme. Well I hope this help. Be your own advocate. Talk to you later.

Good luck on your finals.

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Hi Matthew,

I was also wrongfully diagnosed with FND and Fibromyalgia and had to research more myself and was eventually positive for Lyme Disease. Lyme is known as the great imitator and many of FND symptoms are the exact same as Lyme.

Regarding giving up sugar.. Cut out gluten, caffeine, any ingredients that have a high dose of sugar labelled on it. The less ingredients on a food you eat the better!

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Sorry dogs are for loving you might have 2 so lucky😁 brave kid I have also 😃 hugs bro!

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