Should I be wearing an emergency bracelet to let others know I have FND in case of an episode?

[BossStateofMind]

Hi everyone. I was diagnosed about a year ago with FND. I live in Maryland and have not received further treatment. I am longer working as of two years ago. Is there any help in Maryland for people with FND?

[Goodliving]

Much of the time FND results from past or present trauma. Physical or mental. Because of this there can be a disruption of the movement of energy in the body and brain. I had trauma at birth and complex trauma so it made me more susceptible to FND or illnesses like it. Yes most providers do not know about FND, but that should not keep you from finding treatment. Therapist that that have experience treating trauma seem to learn how to treat FND with the help of the patient and also it seems to me that psychiatrists and primaries that have a more natural path approach seem to get the fact that all processes of the body are connected much through the movement of energy and I think that is the core of FND. Energy movement is no flowing properly.

[BossStateofMind in reply to Goodliving]

Thanks for information concerning FND. I am currently going to regular physical therapy and it is not helping. I am receiving strength training exercises and therapy for back pain. As I do more research I am learning that regular therapy will not help with my chronic weakness, paralysis, loss of sensation, etc. I about to call my health insurance and ask what services they provide for my disorder. Please let me know if you have any advice and excuse me if I miss words that I forgot to type. Take care

[Goodliving in reply to BossStateofMind]

Well it seems that FND condition is just the brain and body systems not communicating properly because energy is not flowing correctly in the body and brain. That is how signals are sent to move, problem solve etc. So focus maybe on how you can manage and regulate the energy movement. The healthcare system is really not designed and run to address this type of condition well so you need to become self taught and learn what works for you. Discover what the triggers are that deregulates your nervious system which is basically energy movement. Think of it as a circut breaker box that flows a fuse. If plug in the wrong things to a socket it can blow a fuse. So focus on things that you can do to regulate energy because those with FND are more susesptible to deregulation often stemming back to childhood trauma, birth complcations or a head injury casuing TBI. Tai Chi, Meditation, Yoga, walking, music, natural sounds our harmonics like nature sounds, reducing sensory overstimulation, accupuncture etc.. Holistic approach seems to work best. Those practitioners seem to understand how everything is connected and be more open minded.

Do remember that a proper diagnosis is important and also you could have other health conditions undiscovered so looking at the big picture is always very important. But note FND patients can easily fall into the trap that something significant is going on because we loose function when it is usually the case that it is the disruption of flow of energy so the body looses the ability to control it self.

Hope that was helpful.

Pat

[BossStateofMind in reply to Goodliving]

Thanks so much for the information. I truly appreciate all that you have described in detail. It makes so much sense and I feel hopeful on this journey to beat FND!

[Lady4 in reply to Goodliving]

Hi Pat, thanks for that

My son has been recommended talking therapy as they think not able to fully express himself, built up emotions etc. He doesn't think (or acknowledge) anything wrong with him (so just rests up after a fall, headaches etc) and quick to dismiss FND and CRPS.

A friend of mine does holistic therapies and readings and I wondered what auras surrounded him and maybe realising what they meant would help with self management. Its fascinating what all the colours etc mean.

She also does spiritual healing but needs to be in the right head space herself.

[Van604]

My neuropsychiatrist wanted me to get a bracelet, but I was finding that, every time I went to the hospital they would treat me well until they saw the FND diagnosis on my chart. Then it was get the heck out of here! So I put a note in my wallet instead to say test my potassium levels (which are always low during an episode) so at least they would do that and replace it before they throw me out...

[BossStateofMind]

I guess the best thing to do is not tell ppl the same thing regarding FND. I'll just keep a list of my symptoms of FND indirectly so I at least get treatment. Thanks for the heads up.