Does the Eply Manuever ever help your FND related Vertigo and Dizziness? My dizziness and balance issues are becoming more frequent. What can I do?
Also has anyone had success with treating FND pain with hypnosis?
Does your diet help your FND? Is so, what do you eat to keep from having increased symptoms? I have come to accept my diagnosis and have learned to stay clear of triggers but I'm still trying to keep it from progressing. My symptoms have been a steady progression over the past 3 years rather than sudden onset. Any feedback you all can offer on what did or didn't help is most appreciated. Is anyone else a steady progression like me?
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FNDhere
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Satiation from a high-calorie meal seems to worsen my FND, and to a small degree, hunger lessens my FND. Sometimes I can temporarily overcome my FMD when I try to get a chocolate.
It's worth trying the head tipping technique for vertigo. It's painless and harmless and just because you have FND it doesn't mean that all your symptoms are down to it.
Things I found that help are bioactive vitamins, bioactive B complex, vitamin B12 sublingual and vitamin D sublingual. I have problems absorbing B6 so I take more of that in the form of P5P. I also have to take magnesium with the P5P. I think I rattle when I walk.
I have a low glutamate diet to protect the B6 I'm absorbing and also low sulfite to prevent destruction of other B vitamins. You can't take them out of your diet completely, but P5P does counteract the effects. There are some diets that are more like eating disorders than actual healthy diets so if you are considering changing your diet and you have health conditions it may be best to consider professional help if you can get it.
I certainly think if you are short of a vitamin then take it in it's bioactive form as this means it's ready to use by your body. Taking them sublingually if you have problems with your gut means they go straight into your system - not all are available in sublingual sprays. Some people have problems methylating vitamins the MTHFR gene is relatively common.
Other than that it's a case of optimising everything. Keeping all medical problems under control, sticking to a strict sleep regime, getting natural daylight every day, relaxation and distraction techniques. I know it's not easy. It's hitting on something underlying that's driving it all. I knew I had B12 and D deficiencies, but it took a long time to realise that B6 was also a problem. It certainly made me see why I developed FND in the first place. It underlies other conditions I've had for years and one I was born with.
So I realise we are all different. There is no panacea. It's finding what's driving it whilst not worrying about it - not easy. It can get better. I'm finally on my way up after 5 extremely long, heartbreaking years.
I find it very interesting that you were low on Vitamin D and B12. I was low on those things as well. I'll be on B12 injections for life because I can't seem to absorb it. Once I fixed the vitamin issues, a lot of the symptoms either went away or improved significantly.
Yes it's quite common that we have these deficiencies. I found out I was short of B12 on reading my GP notes that were given to me for a PIP review. They had told me it was normal years before I became ill in fact the lab said check again in a year which wasn't done despite my numb feet. I was not best pleased because I was telling my neurologist that it was normal.
B6 deficiency goes hand in hand with B12 about 40%. I developed FND when I had an asthma attack. Apparently you are more likely to have an asthma attack if you are low in B6 and then the steroids they give you for the asthma also destroy your B6. I'd had an allergy to the inhalers too so had lots and lots of steroids, tablets, inhaled and IV. I've had short bouts of FND when given steroids years ago, but I didn't have it long enough to seek a medical opinion. B6 deficiency was the last piece of the puzzle for me.
My doctor won't give me the B12 injections so I have to have sublingual sprays as otherwise I can't absorb it. I'm glad to hear you are improving. I know I had to have the B12 sprays for about 9 months before things started to see improvement. P5P helped a lot more quickly.
What makes me smile is that it totally flies in the face of what all those "it's all in you head" morons keep spouting.
It really does. This is definitely not all in our heads. I feel like this diagnosis gets thrown around too quickly when something concrete can't be found. It's interesting that you mention asthma. I have chronic asthma, although it's much better controlled now that I live in a warm area. I've had it since I was 12, and have been on and off of steroids several times. Oddly, prednisone makes my symptoms better.
For me, the theory is that I have malabsorption from Celiac, which then caused these other issues. I hadn't heard about the B6, that's really interesting. I will definitely look at that as well.
What really drives me nuts about the medical community is that I've encountered at least 10 other people who had issues like ours, that were triggered by a B12 deficiency. Why isn't anyone paying attention to that?
I also recently started low dose naltrexone and that has really helped a lot. I'm as close to "normal" as I've ever been. I had to go to a naturalpath to prescribe it, so it was initially more expensive than my other doctor visits. But it has been worth it.
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