How many of us have been told that when we have FND Conversion Disorder that it is not treatable in any physical sense and the suggested route is the psychiatric/psychotherapy? I know that I'm one of them. I know someone posted earlier about us all pooling our efforts and getting better research undertaken. So in that vain many may be interested in this article (which I think was peer reviewed and was not a single left-field suggestion) that I found. ncbi.nlm.nih.gov/pmc/articl...
Although I am not a medic no-one has ever suggested to me that some electrical stimulation of the brain e.g. ECT, can be beneficial. Although it seems that although there is marked immediate improvement this tends to fade to minimal improvement I think many of us would like even minimal improvement.
The summary says that the available evidence to date suggests that the application of non-invasive brain stimulation is feasible and beneficial, although that summary is caveated by the lack of published cases. The article is dated 2016.
Perhaps we should be asking our Neurologists about these treatments.
Sitting here on the sofa with my legs still paralysed after 2 hours of my seizure. Not long I know but I have also had hospital admissions were I have been completely paralysised for 5 days and had to be taught to walk again.
No offence intended to those who have been paralysed by this illness for a long time. I'm hoping I'll de-freeze in the next few hours - you just never know how long symptoms will stay after a seizure. I was outside in a paddock we use to exercise our dogs and I fell onto a pile of thorny tree cuttings, just missing the iron and metal things. My arse didn't half hurt as my poor husband drag me over them and then tried not to let go of the wheelchair we keep for such emergencies. If any of you are from the UK and old enough to remember the scene from Last of the Summer Wine when one of them careered out of control down a steep hill in a bath we did actually have a laugh about the situation. The steps up into the house proved the scale of a military exercise! Last night after a seizure I was mute for about 3/4 of an hour. 2 days ago I went out for a walk as I was going stir crazy and had rested up. Ended up lying across the road round a bend. Husband happened upon the scene and can't believe someone didn't turn and drive over me.
Well I'll stop rambling and wait for the backside of my trousers to dry out - casualty of the house steps.