Is phycotherapy a sucess in these conditions what does it involve and what's the risks and what is it used it for please can any one explain this I need to know many thanks
Does phycotherapy cure nerological c... - Functional Neurol...
Does phycotherapy cure nerological conditions
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Hi Juliet, I am very sorry I cannot answer the question that you are asking. I can say I don't believe there would be any risk involved to try it. I have not. I do not have cd, I have dystonia and possible fnd the Dr. says. I still to date have not heard of anyone that has been completely cured of this from psychotherapy, but that is not to say there is not someone out there. I have known 2 people that have had CD who have not been able to walk, or feel their legs, or pain or any sensation in them. They were cured from CD as soon as the root cause was extablished for their breakdowns. If you have further questions I would be willing to help if I can. Hopefully others will respond that can be of more help. God BLess, Cathy
Thanks for the message I was told I had dystonia by pain management but sadly I have been told all kinds I would like it if you are ok with it we could talk .i have lost my voice have swelling all over I suffeer non epilectic seizures I have a facial slanting and muscle spasms I am sensitive to light poor balance headaches sickness neck twisting stiff joints can you tell me if you can relate to this. I would appreciate some information and how they new you had dystonia as I was told by the way my body is thank you love Julie.
Hi Juliet, I am glad that you found this board and posted your question. Welcome to the FND family! None of us want to be here, but you will find some really amazing people working to live well with FND and on the Facebook group! Like you I have dystonia, and all kinds of twisting in my body. I have periods where I am "neurologically normal". What is understood about conversion disorder and FND is pretty minimal, so you have to be willing to take on a lot of responsibility for learning how to live well with this and recovering. I believe people can recover from FND/CD. Unfortunately it is harder to find those stories. Most of us on these pages are still working with our symptoms. I will say that I have had periods of remission and been symptom free. To address the conversion disorder idea… some people are adamant that they have no psychological problems and hate to be lumped together with people who do… unfortunately that can reinforce the weird cultural perceptions of mental illness being a choice. No one would chose to have a mental illness. Kids don't choose to have ADD or OCD or Autism, why would an adult choose to have a conversion disorder? And kids get FND too… but I was just making my point about mental illness not being a choice. I probably do have a conversion disorder as I was abused as a child. My brain got creative and learned to survive. Now my brain is going to have to get creative again, and learn new ways to more than survive but thrive. Brains are really amazing and capable of adapting and changing at any age!!! There is ample evidence of this in neurological journals, but some of the stories defy what is understood about the brain, and a lot of Doctors don't have the intellectual curiosity to explore these uncharted territories. Some do. One part of your journey is to find a good Doc! And a trustworthy openminded therapist. I know this is a lot of information all at once. I've been living with for two years now, and have had a lot of time to learn. But I still have questions and frustrations! OK, getting back to can you be symptom free? I believe you can. But try to focus on small goals and small changes you can make to create more comfort and support for yourself in the moment. The big change you want will follow! And if it doesn't you will at least be more comfortable and living fully with what your brain is currently doing. You may wish to join the FB group. Welcome to our quirky but very caring family of "movers and shakers" ! Wishing you comfort! And the cure you seek!
Best regards,
Hi again Julie, Yes I can relate to all of it. You could be describing me. If you are interested you could email me at grandmas16@gmail.com. Just got back from my new neuro now. She is wonderful and seems to very knowledgeable with what is going on with me. I am very pleased and very blessed. Sometime Julie, when we don;t fit into a neat little diagnosis of any of the standard dystonias, we fall into the cracks of fnd or cd. For the first two years I suffered with this, that was me. Then PTL!!! I found a great internist at the time, who started treating me for dystonia, as that was what it looked to him like it was, just a little different than the norm. Meaning he said I don't fit into a neat dystonia disgnosis, but he was fine with that. For 13 years he was my Dr. every so often he would get stomped and send me to a Neuro, who would help us through a bump in the road. Last year he left his practice, thanks to our OBAMA Care, and now is in hospital staff only. When I got sick with my new Dr. he freaked as he had no idea what to do. Sent me to a different hospital with new Neuro's. At first they got the dystonia part but then also thought MAYBE partly functional neurologic disorder. Ugh...But now after today that is once again gone. I have dystonia, a peculiar kind but dystonia, or at least a movement disorder. I personally think most fnd people have a movement disorder, not yet defined by the medical profession. I am not sure about the CD part in all of that. But for me I think they all the same thing as us, a undiagnosed movement disorder that is yet to be defined. Hope this helps. And yes Julie, for two years in the beginning I could not talk at all, was learning sign language. Constant dystonic storms, sometimes not being able to move anything, but always concscious. I too had the pulling of the face and mouth and tongue for that 2 years. Now only when very sick with my dystonia. Since they increased my sinemet I have been completely symptom free now for several months. Again I hope some of this helps. God Bless,Cathy
Having read so much regarding Dystonia and felt I should provide some information. My son has dystonia and after several times in two different hospitals, he finally went to the hospital for neurology and neurosurgery in London. He had deep brain stimulation. You can find more information regarding that on the internet. According to Professor Marsden of the neurological hospital, some years ago he provided information for patients. They are neurological disorders.
"Spasmodic torticollis, blepharospasm, spasmodic dystonia, writer's cramp and generalised dystonia. Meige's disease is a combination of blepharospasm and oromandibular dystonia. Miege was a French doctor who first described the illness in 1910. The condition is also known as Brueghel's syndrome because the 16th century Flemish artist, Peter Brueghel, the elder, painted patients with the condition.
I will provide more information very soon.
Until then,keep going strong.
As far as I am aware true psychological instances of neuro type manifestations are extremely rare.I believe that most of us have real and varied causes for our problems.I don't feel that there are any risks to attending sessions-just keep a balanced view.Sometimes they can help with more practical things like coming to terms with your new condition,pacing,finding new ways of doing tasks more easily etc.If you feel that your problems have a psychological root,fine.If not,stick to your guns-don't be talked into something that you don't feel relates to you.Take care x