bcg woes: tomorrow I have my 12th dose... - Fight Bladder Cancer

Fight Bladder Cancer

1,206 members359 posts

bcg woes

peterh profile image
8 Replies

tomorrow I have my 12th dose of bcg.when I first started the treatment it went fine,but now I find I am going to the loo every 15/20 mins.I now also get pains in pelvic area front and back.also very tired as I lose a lot of sleep due to toilet habits.beginning to get me down now,does anyone else have similar problems with bcg?oops have to go,need the loo !!

Written by
peterh profile image
peterh
To view profiles and participate in discussions please or .
Read more about...
8 Replies
hotoz57 profile image
hotoz57

I didnt have BCG but i did find that the more chemo sessions i had ,the worse the side affects were. Heres hoping it is doing what its meant to. Good luck with the treatment. :)

Allyp69 profile image
Allyp69

My husband only managed 1 BCG as side effects so bad so you have done well to cope with 12. It depends on the type of cancer and risks of it returning but everyone is different. My husband will have more BCG if cancer returns...

peterh profile image
peterh in reply toAllyp69

I now have a 6 month break from bcg so hopefully things will calm down

ChrisRS profile image
ChrisRS

Hi Peter

Yes, I have had the same problems with BCG treatment. I've had 18 and the side effects got worse, with pain & urgency/frequency. However some good news is that for the last set I took some prescription anti-inflammatory tablets (Naproxen) during the treatment period and was prescribed a high dose anti-biotic (Ofloxacin) by my consultant, which you take twice on the day of the treatment, and the combination reduced the side effects considerably. I was originally taking the anti-inflammatory for an injury, but realised it was really helping with side effects of BCG on the day of treatment and the days after. I would recommend you talk to your consultant about these medications.

Best wishes

Chris

peterh profile image
peterh in reply toChrisRS

Thanks for your comments Chris,I will have a word with my consultant

FergDevins profile image
FergDevins

I have now had 18 BCG "treatments". I seem to be one of the fortunate ones that has not had a lot of complications with them. I do see more blood in the urine after the treatments...but that only lasts a few hours until the end of day. The other critical thing is what the nurse recommended as "drink like a fish". After the two hours of holding the BCG in, I start to drink water constantly. I also start with a nice bowl of chicken noodle soup. I virtually keep drinking until the evening, constantly. This seems to wash things out and get me clear urine by the evening.

Warlockgor profile image
Warlockgor

I think it depends on the nurse that does it also my second one was always the worst (I had mine in batches of three) perhaps the doses are different I had all of the above on my second dose the rest were fine.

The worst for me was not being able to have a cuppa for two hours but that was the least of my worries.

Hope it sorts its self out Perterh

rosietheriveter profile image
rosietheriveter

After 5th bcg I was going to the bathroom every 5 minutes. Could not hold urine.

6th treatment next week with a lower dose.

Not what you're looking for?

You may also like...

BCG

Hi i have just returned from seeing my consultant and i am to start a course of BCG. Just wondering...
Anniemouse profile image

BCG success

Hi nice to have some good news for once, after my Husband finished the last of 3 sessions by 6...
madnanny profile image

BCG problems.

I'm new here but my husband (72) was diagnosed with bladder cancer in Oct 2015. Had tumour removed...
Allyp69 profile image

Bcg update

Hi all just had first dose of bcg not as bad as I thought had no adverse effects. Wishing everyone...
Liz2597 profile image

BCG treatment was a success!

Had my 3rd Cystoscopy today following a 6 week course of BCG. Apparently my bladder is in terrific...
julib profile image

Moderation team

FightBladdercancer1 profile image
FightBladdercancer1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.