ct scan: just a quick question,has... - Fight Bladder Cancer

Fight Bladder Cancer

1,195 members357 posts

ct scan

alex1964 profile image
17 Replies

just a quick question,has anybody been diagnosed with cancer through a ct scan after all the other tests came back normal?

Written by
alex1964 profile image
alex1964
To view profiles and participate in discussions please or .
Read more about...
17 Replies
Rossi68 profile image
Rossi68

My initial ultrasound showed growth on bladder...but ct scans are what I've had every 6months after bladder removed...glad they've found out though

alex1964 profile image
alex1964 in reply to Rossi68

the only thing my ultrasound showed was a small cyst which the specialist said was usual in someone my age and wouldn't really cause a problem

Rossi68 profile image
Rossi68 in reply to alex1964

Glad they did further tests and eventually a ct scan

alex1964 profile image
alex1964 in reply to Rossi68

luckily I don't have to wait long,saw the urologist Monday and they called today and have got me in tomorrow :)

Rossi68 profile image
Rossi68 in reply to alex1964

Wow that's good...let us know how you get on tomorrow

alex1964 profile image
alex1964 in reply to Rossi68

will do cheers,not sure if they tell me anything or if I got to wait for results though

brimas profile image
brimas in reply to alex1964

hope all went well

Kiki376 profile image
Kiki376

Yes after 3 contrast catscans they did one without any dyes or contrast there she was taking up 1\5 of my bladder. They of course had to remove her and dissect her for a proper diagnosis. You can't confirm cancer through just the scan they have to look at the cells. Some tumors are benign.

alex1964 profile image
alex1964 in reply to Kiki376

thanx kiki,hopefully ill know more today

FergDevins profile image
FergDevins

I had a strange sensation in my upper left back, had ultra sounds - nothing showed up, but some shadowing on the tests. I went to my acupuncturist who worked me over and said that my condition was "internal" not muscular and to go back to my doctor and press for more tests. Upon telling my doctor this story he ordered at CT scan. Bingo...CT scan showed something in the bladder...assumed to be minor. I was then referred to a urologist and via cystoscopy they found two tumours, removed and diagnosed as high grade...but non muscle invasive. I'm all clear since March 2014...and 18 BCG treatments behind me.

alex1964 profile image
alex1964 in reply to FergDevins

thanx for the reply,i had a biopsy on my bladder but turned out to be nothing,doctors still wernt happy so sent off for a ct scan,awaiting the results,if this comes back all clear then the passing of blood in my urine is a total mystery and must have been a one off,glad to hear u have been clear since 2014,long may it continue

in reply to FergDevins

I had lower back pain followed some time later by passing blood when I urinated. A CT scan found my tumors. The rest of my story is just like yours. I am not sure I could handle 18 treatments of BCG. They knocked me in the dirt. I have had 9 and the side effects take me to my knees for pain while trying to urinate. This lasts all day the day of treatment and then the next day I wake up sick. Thankfully I am only down two days.

alex1964 profile image
alex1964 in reply to

sorry to hear your suffering,not sure how I will react if the worse happens,thought about it a lot and so far I'm looking at not getting any treatment if push comes to shove,i feel well at the moment and that's the way I wanna stay

in reply to alex1964

52 is way too young to not do treatments if they are needed. Your cancer will become invasive if you don't do any treatments. Many patients do not have the side effects I have had from BCG. I must also add that the effects came on gradually. BCG is a much better alternative than chemo or radiation. So don't let horror stories control your destiny.

FergDevins profile image
FergDevins in reply to

the trick I have found with BCG is "drink like a fish" - after the two hour roll around (I know not necessary but want to make sure it is covered if there all the way around)...I usually have chicken noodle soup and then water after water after water - I basically keep myself topped up as much as possible. This seems to really keep me flowing and by evening I'm "all clear" in the urine, after starting with blood in the early passings.

in reply to FergDevins

I had an 11 hour round trip by vehicle to get my treatments once a week. So I was already at a disadvantage by most standards. As soon as the BCG is instilled, I feel my body start going south, meaning that I start out feeling good before the treatment, but before I am through rolling, I am already starting to feel less than 100%. I had to carry a bleach bottle or a plastic hospital urinal bottle with me in the vehicle in order to get myself 45 minutes to my sister's home because you can't just go anywhere. The urge to go was happening about every 20 minutes. I would stay the night there and my wife and I drive another 5 hrs the next day to get home. A couple of times we made the round trip in one day. Those were really hard days that knocked me down a couple of days afterward. The good news is that I am in remission.

brimas profile image
brimas in reply to

well done all the best to you both my husband had his bladder and prostate removed oct 2014 goes hospital 23 june