nervous wait for results

[alex1964]

had a ct scan a week ago and still waiting for results,how long is usual to wait? is it a case of no news is good news?

[Rossi68]

Hi....worst time is waiting for results...i used to have ct scan one month then see my consultant/surgeon the next month ...do you have an appointment or will they send a letter...I'd say at least 2 weeks

[alex1964 in reply to Rossi68]

nope no appointment,aint heard anything,they were very quick in getting me the appointment for the scan,it was done within 3 days of the referral so thought the results would be just as quick

[Rossi68 in reply to alex1964]

Ah ok....do you have your consultant's secretary phone number to find out when you will get results

[alex1964 in reply to Rossi68]

sure I have it somewhere,ill give it till Monday then chase it up,thanx for the advice

[Rossi68 in reply to alex1964]

I'm sure they know how anxious everyone is waiting for results especially when you have no follow up appointment...if in UK remember it's bank holiday on Monday

[Rossi68 in reply to Rossi68]

I have phoned my consultant secretary many a time...I've even emailed her to show her my tattoo I got done for bladder cancer lol...and she replied

[alex1964 in reply to Rossi68]

lol not sure ill be going as far as a tattoo but obviously worked for you lol

[Rossi68 in reply to alex1964]

Lol Alex ... I got it to for 5 years cancer free and in memory of many friends I've list to bladder cancer

[alex1964 in reply to Rossi68]

yay good on you,and great to hear your 5 yrs free of it,long may it continue

[Rossi68 in reply to alex1964]

Thanks

[Warlockgor in reply to Rossi68]

Tattoo? Oh that's interesting.

[Rossi68 in reply to Warlockgor]

I'll try and post a pic of tattoo tomorrow

[Warlockgor in reply to Rossi68]

I think the problem is we don't realise that we are not alone it is a worrying wait I empathise with you.

[Hidden]

Id ring the scan dept and see if the scans been read yet and sent to ur doc. They can take up to 2 weeks. It took 10 days for my partners which showed a rumour on his bladder.

[alex1964 in reply to Hidden]

thanx Rachel,i will once the bank holiday is over,hope your partner is doing ok and treatment is working

[Hidden in reply to alex1964]

Hes quiet poorly unfortunately his tumour between a t3 and t4 so bot good and muscle invasive. He starts chemo this week so hopefully it may shrink the tumour

[alex1964 in reply to Hidden]

sorry to hear that,fingers crossed for him,stay positive,im sure he is in good hands and the advances in treating cancer is amazing,my thoughts are with u both

[Hidden in reply to Hidden]

Good luck

[come-unto_Me]

Waiting for results is difficult and stressful, I have had 2 scans so far and have had the results within a week each time, my next scan is on the 17th June, this is the most important one for me as it should let the Oncologist know if the Chemotherapy is working. Hope you get good news soon, praying for you.

[alex1964 in reply to come-unto_Me]

thanx for that,ye I just wanna know so I can get on with things, its just like being in limbo,hope your next scan brings you good news

[peterh]

Hope your scan is clear.i had to wait 3 weeks for my results! And even then I had to phone up to get results.good luck

[alex1964 in reply to peterh]

thanx peter...were your results clear when u finally got them?

[peterh in reply to alex1964]

Yes it was clear.just have inflammation caused by bcg treatment which presents it's own problems!

[alex1964 in reply to peterh]

thanx peter,gives me some hope then,appreciate that

[Hidden in reply to peterh]

Does the inflammation from the BCG present symptoms? I am high grade but not muscle invasive. My last two TURBTS showed what was thought to be cancer, but turned out to be clear, pathology wise. I have been clean now since August 2015 but I have been having low grade nuisance pain in the region above pubic bone as well as strong urgency and pain at urination. Just curious since you mentioned BCG inflammation. My last BCG was in December of 2015.

[peterh in reply to Hidden]

Your situation is very similar to mine.bcg now makes me want to go to the toilet frequently and suddenly,although I don't do much when I get to toilet.also aches in pelvic area and tiredness

[erinlewis]

Good luck Alex the waiting around is very stressful

[alex1964 in reply to erinlewis]

thanx erin,it is stressful,especially when I feel fine,i was passing blood all day several weeks ago but that stopped,no pain,no feeling unwell,cant help but think it was just a one off and it seems a lot of fuss but I'm no expert

[erinlewis]

Hi,hopefully will be good news for you.If not you will be in good hands.I had other symptoms all connected with my waterworks.To cut a long story short had a cancerous tumour removed and follow up all clear,so for now ok but does seem to come back in a lot of cases.My name is Martin.Erin and Lewis are the names of my two young children.Have a good day and try not to worry

[alex1964 in reply to erinlewis]

thanx martin,fingers crossed it stays clear for you,im pretty positive to be honest,i think the fact I don't feel unwell or have any pain makes me feel that way,just be nice to get it confirmed,sooner the better.

[erinlewis]

Yes Alex that's very true once you know what's going on you can deal with it.When I was told my head was all over the place but family and friends were amazing.Good to be positive

[Louise_John]

Timely reminder to all. Don't be afraid to ask relevant questions at any appointment. However caring the staff are .it is still routine work for them, and they can forget how stressful not knowing an answer is, when they are so busy themselves. They should tell you how and when you will get results. They do a fantastic job, but they are also fallible humans.

[hotoz57]

My wait was about 2 weeks, in my case the ultra sound had already shown i had tumours so it was no great surprise. Good Luck with your results Alex

[Iffette2]

I had a cancer to our removed a month ago and just found out yesterday they got it all...just have to get scopes at hospital every 3 months hope your comes back as good!

[alex1964]

glad to hear your prognosis is good,just don't get why it takes so long to get results to people knowing how important it is to treat it early not to mention the stress,every little niggle you have makes u wonder is it cancer,if they told u a lot sooner you wouldn't have to think that way

[maxnchewy]

I contacted one of my support nurses from urology and I was glad I did as I am now also being referred to gynae clinic for something they could see on the scan

[alex1964 in reply to maxnchewy]

hope it turns out not to be anything too serious

[maxnchewy in reply to alex1964]

Thanks alex finally got an appointment for 28th june , so fingers crossed

[alex1964 in reply to maxnchewy]

fingers crossed for ye...im still waiting for my results after almost 3 weeks so looks like good news for me otherwise I'm sure I would have well heard by now if there was anything up

[Ladbrokes66]

I waited 10 days, have spoke to others, this is about av

[alex1964 in reply to Ladbrokes66]

ye seems to be the impression I'm getting...were your results clear?

[Ladbrokes66 in reply to alex1964]

YES, clear of cancer, but heavy bleed last week, in hosp 3 days with catheter, they think just infection, bloods seemed OK, as a precaution CT scan kidneys and ureters, and yet another bladder camera in 7 days, was on pwerful anti biotic 5 days, bleed stopped after 4 day, and feel well, able to swim and light gardening, docs advised no cycling and this could open a self healed wound. The wait is always not good, knowing is best, even when the news is not the best.

I hope you get good news, they take their time with good news, or it seems that way

[alex1964 in reply to Ladbrokes66]

thanx for the reply,makes me feel more confident knowing yours wasn't cancer,gives me hope,like u I feel well and don't feel like I have lost weight or anything,i have not bled since that day so makes me think it was something like a broken blood vessel if not an infection but I'm sure I will find out any day now so ill post the good news when I get it

[missrae70]

They say no news is good news which I found out to be kind of true because Mine was like as soon as I got my test and stuff instantly knew