Hi ho, hi ho, back to the doc I go.... - Fibromyalgia Acti...

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Hi ho, hi ho, back to the doc I go....

trae profile image
trae
15 Replies

Back to the doc to ask for better meds... paracetamol just isn't cutting it any more :( and cocodomol kills my stomach. Surely there's something out there that I can take?

Wish me luck, I have a feeling I'll be needing it :/

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trae
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15 Replies

Good luck and if you find something please let me know as I have been through loads and all I can tolerate is paracetamol... Which most days is like taking smarties.

Fingers crossed for you

VG x

trae profile image
trae

Yep that's exactly how I feel too x will keep you posted xx

Fibrofoggiest profile image
Fibrofoggiest

Good luck trae, I really hope that your GP manages to come up with a more effective pain killer that you can tolerate, cocodamol is so harsh on the stomach, and paracetamol isn't necessarily strong enough to cope with the pain you are in, but the most important thing is that you are able to take what you are given and that it doesn't cause more havoc.

sending you lots and lots of good luck and good wishes. Foggy x

Fibrofoggiest profile image
Fibrofoggiest

Good luck trae, I really hope that your GP manages to come up with a more effective pain killer that you can tolerate, cocodamol is so harsh on the stomach, and paracetamol isn't necessarily strong enough to cope with the pain you are in, but the most important thing is that you are able to take what you are given and that it doesn't cause more havoc.

sending you lots and lots of good luck and good wishes. Foggy x

trae profile image
trae

Thankyou foggy xxx

ladymoth profile image
ladymoth

Hi Trae, I take tramadol and paracetamol, which suits me pretty well, and takes the edge of the pain. If you can tolerate tramadol it might be good for you, though it makes some people feel queasy and spaced out.

It's supposed to be very addictive, but I don't seem to have a problem with it, and for me it's been the best so far!

Hope you manage to f ins something good!

Moffy x

trae profile image
trae

I'm not allowed tramodol as it interferes with my other meds xx

SparkyMark profile image
SparkyMark

Trae, like most other Fibro sufferer's, you will probably find that most normal pain meds such as paracetamol, co-codamol, tramadol and morphine will not work, they just make you so docile the time seems to fly by. Diclofenac, naproxene and ibuprophen turn your stomache to mush and can cause ulcers, so no good there either.

From the research I have done, I have found that most evidence points to neurotransmitters in the brain being low which causes normal nerve messages to be interpreted as pain, when infact it can be nothing more than your clothes touching your skin. Internal joints get minor inflammation from time to time, but your brain interprets this as horrific crippling pain, so pain meds don't work.

I am currently trying Pregabalin (Lyrica) and have been on it for 5 months so far and I think it is now coming to the end of its useful cycle as my pain levels are escalating however, since being on it, I have not had a flare.

Another one to ask for is Gabapentin, this and pregabalin work by altering neurotransmitter levels like an antidepressant such as Amyltriptaline which most FMS sufferers have tried from time to time.

There are currently trials of a drug called Naltrexone in the States, which in large doses is used for something else, but trials have shown that small 4.5mg doses in FMS patients seems to be working, however, it is still in the research stage so it could be years before it reaches the UK.

Keep on at your GP and if necessary ask for a refferal to the pain clinic at your local hospital.

Soft hugs.

Mark.

trae profile image
trae

Thankyou so much mark that was very informative. Ill let you all know how I get on x

trae profile image
trae

Some success! Amitryptiline has been upped, diclophenac been changed to naproxen and got a stomach tablet to help heartburn. Also strict instructions of not hesitating to go back incase they don't help and the lovely doctor has promised to study fibromyalgia as he doesn't know mush about it and is intrigued about fibro fog and other symptoms.

Not what I expected at all - very pleasantly surprised :D

trae profile image
trae

Lol I meant much

Good result...

trae profile image
trae

Yeah I'm chuffed. If only all doctors were like that...

Lucyw profile image
Lucyw

Hi

I live on Zapain 4 times a day. It's the only tablet that works on me.

All the rest have no effect. Saying that I'm back to the GP today begging him for something else I'm in agony all the time all over never get remission.

I've tried everything out there all the meds you've all mentioned.

The Rheumatologist diagnosised me and then discharged me at the same time. I feel alone on the whole condition.

Is there a regional fibromyalgia club or something I'd love to go and meet, chat and listen to other people's stories and advices, so if anyone knows please let me know.

trae profile image
trae

I'm also looking for a regional group so I can meet people with the samecondition. I wish you luck on your quest for decent pain relief xx

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