Yesterday I had my dreaded ESA appeal......I woke up after very little sleep feeling like a nervous wreck and deeply sick but I managed to dress myself quite nice (my friend hissed at me the night before 'don't wear red lipstick!!!') I put my lipstick on.....it's one thing feeling like you're dying but I won't turn off who I am to make people believe I'm ill. I took a great friend who visibly has arthritis and they asked her if she was there for her appeal!! They asked me some difficult questions relating to my claim last year...I said 'I can't remember last week!!' But answered the best I could...it was then the stress of the situation hit me and they saw my health decline. I was able to explain my symptoms moved around my body when and how they felt like it...the different types of pain, the impact of stress, the real risk of burnout and the struggle to parent my kids and run a home. I told them in my own words about some of the alternative treatments I use and how i have to build up energy to do things. It was hard and draining....fibromyalgia doesn't fit the guidelines within which they work so they put a special note asking i be left alone for a year...i came home with a terrible migraine, pain and deep fatigue but glad I got then to understand the impact fibromyalgia can have on a persons day to day living. I've not slept a wink....I've got a leak in my bathroom but I am relieved and happy!!
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