Has anyone tried LDN to help fibro symptoms?

I haven't got fibro but I have an under active thyroid so I'm on the thyroid forum. I'm on here in support of my friend that had fibro and also my endocrinologist has suggested I may have it but that's as far as we've hot as yet. What I wondered is had anyone tried low dose naltrexone for fibro and felt it made a big difference x

5 Replies

  • chronicfatigue.about.com/b/... hopefully this link will work

  • Haven't tried it, but would like to. My doctor refused as she said it was too costly for the practice and she wouldn't be happy to prescribe it. She told me to ask at Pain management Clinic. I did so and the consultant hadn't even heard of it. I then posted him a lot of information on it, and as yet haven't had any response, but at least he knows what it is now!

  • You can get it on the NHS on a named patient basis but with it not being licensed it isn't easy like you say. It's very easy to get a private script £30 for phone call to the gp and I think it's about £20 for the liquid LDN, your welcome to private message me if you want any info your welcome to send me a private message. I only know this info due to ordering it for myself for my thyroid condition s x

  • I'm going to ask my pain specialist about LDN soon (no appointment date yet but GP was supposed to have referred me few weeks ago). I gave my GP info on it but don't think she read it. Will hand it to pain specialist but would be better if he had read it before the appointment... Perhaps I could email his secretary?

  • I hope you get it but if you don't and your in a position to pay for it it is easy to get hold of. I think the £30 consult over phone fee which give you a script for LDN is for 6 months, and then after that follow up scripts are cheaper.. I think. I should know this as I've not long ordered some via this root. I'm surprised That LDN isn't getting used more often for fibro x

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