Hi All, thought I'd just introduce myself. I'm on a bit of an emotional roller coaster right now as my perception of my condition has been turned upside down. I was diagnosed with sero-negative RA twenty years ago and osteo in my hands and feet seven years ago. About three or four months ago I was told I also have secondary fibromyalgia. I saw a rheumatologist last month who said they now think I've never had RA but have had fibro all this time. Had a second opinion with a consultant last week who confirmed the "new" diagnosis but did at least take a little more time to talk it through and try to find some help with me. Have to admit I was in pieces as I'd gone to hospital expecting to have my meds changed to something more powerful and come out with the knowledge that apart from a bit of potential help with sleep and pain I was now on my own. I'd thought long and hard before asking for a re-referral as I was in no rush to take cyto-toxic drugs but decided it was better than having my life limited by pain and lack of mobility any longer. I'm still not entirely convinced of the revised diagnosis as 99% of my pain and stiffness has always been in my joints and, until recently, DMARDS have been effective and steroids have always helped - I'm new to fibro but thought neither of these were much use for it. Anyhoo ... I can hardly disagree with the consultant unless any other symptoms raise their ugly heads so I'm now trying to come to terms with the situation and get my emotions under control as I know they won't help matters. The consultant is arranging for a fibro nurse to speak to me and for the physio to arrange some hydrotherapy. Already seeing OT re my osteo and awaiting a podiatry appointment so no getting away from hospitals for the foreseeable.
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