Hi everybdy. Just wanted to say hello, I am a newbie and I am looking forward to sharing information and positive thoughts.
Bank holiday weekend consists of packing for me as I am moving house next week. Sadly after 18 years in my home I can no longer afford to live here so I am moving in with a friend. Being skint is another legacy of having this condition, no doubt one that quite a few of you will share! On the plus side (there's always a silver lining) my new home will be close to work so will save me a tiring 30 mile round journey 4 days a week.
The fibro isn't too bad right now, apart from the TMJ, (jaw pain) - it's driving me crazy!! Going to see if I can get an emergency appointment with the dentist to see if anything can be done. I know I grind my teeth a lot when I sleep which is probably the cause of the pain & the clicking so perhaps a night teeth guard will help.
The M.E. is a bit of a killer - I ALWAYS overdo things, I can't help it, I can't sit still! So usually at least 2 days a week end up being recovery days with almost total bedrest (this is why I am a Facebook addict - at least the games keep my brain active!) I must learn to pace, but in all honesty find it very difficult.
I am waiting for the outcome of my DLA claim, but am not holding out too much hope as I know it's near on impossible to get an award with this condition. I have left it and left it despite my health care professionals encouraging me to put in a claim. I recently had an operation, was off work for the best part of 5 months and was denied ESA, for stupid and complicated reasons to do with me being self-employed (they use your earnings from 2 years ago but your last 12 months NI contributions).. you'd think being self-employed, i.e. no one to pay me sick pay when I'm ill I would be able to claim something but no, it's tough, I'll have to starve (or get 6 months behind with the bills as the case may be).
Take care everyone