Fibro and B12 injections

Hi, I have recently been diagnosed with Fibro but also suffer with Endometriosis and IC (Painful bladder syndrome).

As well as sore muscles and joints, fibro fog and memory loss, I am really struggling with the fatigue and not sleeping.

Has anyone had B12 injections to help with the fatigue? I work full-time but am really struggling with the hours and desperate to find something that might help. I'm waiting from my GP to start on fibro medication but am also concerned at how long it might take to find anything that might give me some kind of relief so I can start coping with work again!

Any advice on medication would be hugely appreciated.

Tia

C x

17 Replies

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  • A blood test for Pernicious Anaemia would be the fastest way of deciding if you need B12 injections though there could be other causes of B12 deficiency

    nhs.uk/Conditions/Anaemia-v...

  • Thank you Ian123, I had a load of bloods done but the consultant didn't make it clear what exactly they were checking!!! I'll check with my gp when I speak to her on Tuesday :)

  • Hello clare Rosie. A lot of us find that Amitriptline helps in three ways , first as an anti deppresant, lets face it having fibro can be deppresing, secondly to help with sleep and thirdly as a pain killer.

    i take it myself and it is past time when i should take it and if i dont want a hangover in the morning, id best take it now.

    nice to meet you and im sure others will have better advice. :)

    Sue x

  • Thanks for replying Sue. I have tried amitriptaline in the past for my endo but found it didn't make much difference. I'm a bit concerned that the docs are going to ask me to try it again anyway, it not helping and then it being another 3/6 months before they agree to try something else itms? Yes, fibro is definitely depressing :( xxx

  • There are probably other things that you could try but someone else will have to come up with some thing.

    What dosage were you on? i am up to 75 ? forgotten what. :O

    Typical my body is doing well at the moment but my brain has gone walkabout. :P

  • Lol! I know that feeling! I think there a number of different drugs that the consultant has recommended that we try one at a time so hopefully I'll find something that helps! 😊 xxx

  • I hope so soon. :P

  • Hi Clare_Rosie

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and I genuinely hope that you find it useful, informative and loads of fun!

    I have pasted you a link to our mother site, FibroAction which hosts loads of useful Fibro information:

    FibroAction Website:

    fibroaction.org

    I have never personally had B12 injections, but I do hope that they work well for you. My wife has MS and she is prescribed a drug called Symmetrel for fatigue. It appears to work well for her.

    I do believe that what drug works for one may not necessarily work for another so medication can be a question or trial and error and therefore take a bit of time to sort out. I want to genuinely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

  • I think we all know the feeling of lack of sleep and feeling like we have had the energy taken out of us. I have been awake since 5am. Most night it takes me at least an hour to get to sleep. My brain will not switch off. Sorry can't help with themedication. I take vitamin B pills but I am not sure if they are making any difference.

  • Hello, when my body aches and fatigue began my doctor put me on B12 injections. Unfortunately, the did not seem to help me. However, I only took them for a few months. Perhaps I was not on them long enough. I don't see any harm in trying them. I had no side effects. I think the main reason I stopped them was that they didn't seem to effect me at all.

    Just to clarify, I am a 55 year old male with Fibro. I have heard many woman say it helps them but can't recall any men saying it has helped them. I could be wrong, but that is my experience. Good luck.

  • Hi Clare. Sorry to hear you are having such a hard time. I don't know about B12 injections but I have had some success lately with Amitriptyline. There are some horrible side effects but I think I'm starting to get used to them now. They do dull the pain xx

  • Hi, I have been having B12 injections for about 10 years or even more but it's hasn't helped my Fibro fatigue I still feel wrecked in the morning and can only do very short amounts of anything before I must sit down else I know that if I overdo something it will spoil the rest of my day, but everyone is different and anything is worth a try. best of luck and I hope they work for you, by the way I have mind every 12weeks and for the rest of my life.

  • Understand everything you say and I was having mine weekly for

    3 months and I a month for a year great post x

  • Thank you all for your replies :)

    I guess it is all a case of trial and error with regards to medication and from here on in I've just got to accept that there's no quick fix.

    :)

  • I got diagnosed with a bad low blood count, B12, Folic acid, Folic acid deficiency in 2012. I had the B12 injections right up till last summer. I had injections every 3 weeks, with blood tests every 2 months. My haemotologist took me off the injections and best day ever as hated them. Always get tested by your Dr, do not self diagnose. The supplements they sell in shops are nowhere near strong enough compared to prescribed medication.

  • Hi Clare Rosie. I had a Fibro flare just before Xmas and the tiredness and fatigue was awful, lasting right up to a few weeks ago. I take Amytriptiline 20 mg (among other meds) but thr Dr suggested putting it up slightly. I stuck it for a week but was like a zombie. I dropped it down again and decided to try acupuncture, mainly for the pain. However, my energy levels have definitely improved and it can only be as a result of acupuncture, as meds were still the same. It might be worth a try- doesn't work for everyone, though.

    My GP then suggested that I try stopping the A'triptiline to see if it makes any difference to my energy levels. I have had three nights without it, and so far I have not been able to get over to sleep. I may have to go back on to it again, but will stick it for the two weeks she suggested. The jury's out so far and I think it will be interesting to see what difference it makes to pain levels. With a newborn grandson to enjoy, I want to be as clear-headed as possible at the minute!

    Fatigue is sooooo debilitating that anything is worth a try! X

  • Yes I have had B12 but not really sure it was any benefit x

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