ITS MY FAULT(WELL PARTLY): I was very... - Fibromyalgia Acti...

Fibromyalgia Action UK

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ITS MY FAULT(WELL PARTLY)

30 Replies

I was very sorry to hear today that christine else has left the forum completely and will no longer be able to be part of the community as she was deleted from the forum and alot of it is because she was fighting for me and sticking up for me so i feel really bad it was to do with a blog i wrote and got 70 + responses that i am still waiting to have reinstated, as so many members wanted it back and i was mislead in asking if i would like it to be deleted and things just went on and on and now because of that and few other issues our very good friend chris is gone for good

i for one am very very sad at that news as she was such a lovely person and she always gave lovely advice to us all and has helped many of us especiallly when she was a volenteer so i felt you should all know that she wont be on here anymore and i am sure you will all miss her as much as i will

i dont know it seems at the min alot of members are leaving this forum which is a shame so i hope that my blog will be reinstated for you all and perhaps chris will get an apology and decide to come back and it will all go back to how it was. i do hope so as this is a lovely site and i have made some lovely friends and it is nice to talk to people with the same condition

oh well love to you all i hope you have all had a good day diddle xx

30 Replies
beth2 profile image
beth2

hello diddle I hope chris comes back she always give good advice I dont write many blogs but enjoy reading them take care love beth xx

Ang01 profile image
Ang01 in reply tobeth2

Hi Beth, I dont think it is likely that Chris will come back to the site as I understand from Diddle's blog that she has been deleted by the Admin Team who regulate this siite. Take care, Angela xx

beth2 profile image
beth2 in reply toAng01

HI Angela it is such a shame bout chris thank for replying you take care & all the best love beth x

Ang01 profile image
Ang01

Hi Diddle, I too am saddened to hear that news about Chris. I am writing this comment in support of Chris as I think it is very unfair the way she has been treated although I no longer wish to have a big part in this site. I think support should also go to Lynn13 as she is another person who has disappeared from the site without good cause.

I choose not to be too involved in this site now as I do not like the way the site is run which is very sad as I made some lovely friends on here, you included. It is also sad because these people who are being suspended have given very positive feedback and been very helpful to so many people. The site is the loser at the end of the day.

Take care Diddle and we will catch up again very soon on DC. Love Angela xx

fairycazzie profile image
fairycazzie

Hi diddle yes it is a big shame!! i ahve had some private msgs from her too and what a dedicated volunteer she was and a very VALUABLE one with so much help and info on so much . she is a massive help and is there at click of fingers too!

Will miss her and if any way could have her back so would!!

lets flood Admin lol and get her back everybody inbox her heheheh ..

Well diddle there are quite a few of us regulars on and we MUST keep it going strong as we can and HELP each other the best we can and share what info and experience we know.

got an idea just hang on i will do something ;-) xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

in reply tofairycazzie

aw thanks oh yes we must keep it going in a posotive way too but there must be some apologies too and a blog i wrote reinstated as i have had so many messages wanting it to be reinstated i cant believeit the trouble is most of those members dare not publicly say it on here through fear of being banned or restricted so thats why i am asking for it to be done as there were 70+ responses and they were all so posotiveit is nice for members to see the closeness of the site when it comes down to it isnt it also it is nice for me to go back and read them when i am having a bad day as we all do

lets all hope the right trhing is done and i feel alot of respect would be gained love to you diddle xxxxxxxx

LindseyMid profile image
LindseyMid

No diddle, it wasn't your fault at all. It's all part of a bigger issue that has been ongoing behind the scenes for some time.

As far as the FibroAction team and HealthUnlocked are concerned, this issue is past and we have been happy to see the community become a positive and supportive place again as it should be.

Hi i am glad that you all feel the same as me and lets hoe hen that chris is reinstated with us as well as my blog and we can all be as happy as we were a few months ago thankyou for all your support and i have not written this to cause a ruck on the forum or dig things up i just know that there is lalot of unrest and no one dare to say anything so i thought it only fair to say something as i am an honest person and if something is not right i have to say so thankyou all for the replies and fingers crossed perhaps now it ill all be dealt with i hope you all have a lovely day lots of love diddle xxxx

well lets hope my blog is reintated then and christine gets an apologyshe deserves and others too love to you diddle x

RealTSM profile image
RealTSM

Diddle.....I love ur posts n I can't imagine what u posted that could've had such an impact.....hopefully Chris will be reinstated because one of the main reasons I love this site is because there in no judgement just feeling....after all....we are all only human x

in reply toRealTSM

Aw thankyou so much for your support it is nice to know chris has alot of backing as she deserves too she is a lovelty lady love diddle x

RealTSM profile image
RealTSM

Lally.....if it comes to that I'd better find another support group!!

in reply toRealTSM

i think alot of peoplewill you will be surprised how many people are in touch with each other and not happy with things even though on the surface it looks like it is lol love to you diddle xx

retiredpharm profile image
retiredpharm

I am so sorry to see that Christine Els has left the site.

When the site first started she weighed in with so much good advice and was partly the reason I stayed.

I have missed quite a few blogs the last 2-3 weeks because I have a whole load of extra problems myself but I find it difficult to imagine what has been said to cause all this bad feeling.

I shall stay and chip in with advice and help as I have done before but I think it is a sad loss to thi site not to have Christine.

Has this site grown too big ?

Jeannie profile image
Jeannie

Hope these issues get resolved as I love this site xxx

Jeannie profile image
Jeannie

Hope these issues get resolved as I love this site xxx

Jeannie profile image
Jeannie

Tried to message Christine els but her names not registered. Have I got it wrong??? People on this site are too poorly to argue. Love all round I say!!!

FionaP profile image
FionaP

Why am I not seeing posts when they are placed?

It is real sad to see Christine gone and others who were here from the beginning.

This is such a good site and I worry for those who have gone.

Sureley they need support? They must be real low. Diddle. Are you able to pass on our care, concern and FaceBook names? I hate to think of the helpful ones being cast out and needing support. My Facebook is Fiona Prothero and I would be happy to add Christine and any other fibro friend to my friends there.

This site can make a real difference. Not just in our lives but in the offices of doctors and specialists who are gaining a much broader picture of the complexities of our lives.

We need to be able to agree to differ within the running of this site if we are to be able to bring up any issue we have. I hope and pray for this site to weather this storm and become stronger for it.

So glad that you did not go Diddle. Best wishes and hugs xxx

in reply toFionaP

hi i dont know i can see them so i dont really know why that is happening i can pass on your good wishes to chris for you , i am not on facebook sorry love diddle xxx

FionaP profile image
FionaP in reply to

Thanks Diddle. I will pop on here whenever I can to support anyone needing it. I remember too well what the first 5 years were like for me, wishing I were dead and no support or information. You think in the early years that you can never have a life. Funny how we mostly end up having a simular attitude to life and make fun out of most situations we get into. I love my fibro friends with such care. Bless you xx

its not just christine hat was banned it was paradise also, we re all ill, we dont need this, why on earth cant we all just have a peaceful existance. I dont know the Middlemass, but I dop know to ban poeple is wrong, that is just my opinion

in reply to

bless you yes it iswrongbut hopefully they will be reinstated and my blog and few apologies and all will be restored and the members who have contacted me will start to come on here again they do come but dare not or wont write anything i am having problems with the blog it keeps going to members only so someone is hacking into it it wont be hu as they hacveto notify you that they have done this so someone is messing about twth the system i habve emailed tje top men at hu to look into it as it is worrying that people can go on your account and change the settings without your permission or without notifying you so hopefully the troll who is doing this will get caught out and they will restore the settings back i have done it myself a couple of times but after 2 x am worried asidont like things like that on internets when people go into your personal stuff that is a breech isnt it i am hoping now i hav changed it whom ever it is will realise they have been sussed out and go we had a problem few weeks ago with trolls and it was not nice love to you diddle xxxx

iM ON FACEBOOK AND ALL MOST PAST VOLENTEER ARE MY FRIENDS, PAULINE ARKLEY. PHOTO ME WITH CAT

I'm on FB too , here's an idea diddle. If you don't want an fb account in your own name, you can use a pseudonym and then only the people you want to know who you are would know. Bit like on here really :)

Oh, meant to say I'm Helen Southwell on fb :)

xx

I FOR ONE HATE CONFLICT BUT I REALLY CANT UNDERSTAND WHY THESE GOOD PEOPLE HAVE BEEN BANNED.THEY REALLY HELPED ME WHEN I WAS STRUGGLING AND TO SEE THEM HURT REALLY BOTHERS ME

I know what you mean Pauline , not only are those who are kicked off devastated , but the people they really helped are too.

ALSO CAN SOMEONE ANSWERME AS WHY DIDDLES BLOG KEEPS GETTING CHANGED TO BE READ BY MEMBERS ONLY, SURELY THATS AN ABUSE OF POWER

IM BOWING OUT OF THIS SITE I WISH YOU ALL WELL AND I HOPE YOU AGAIN CAN BE A PEACEFUL HELPFUL SITE. I WONT BE POSTING ANYMORE. IVE HAD MY SAY. IM ILL AND ALL I WANTED LIKE ALL OF YOU WAS SUPPORT. THERE WERE GOOD PEOPLE ON HERE. MISSKITTYCAT. LYNN 13/ CHRISTINE ELS. WHIPPET PARADISE AND jULES JUST TO NAME A FEW. WHO NOT ONLY WELCOMED ME BUT HELPED ME TRY AND HAVE SOME SORT OF A LIFE.

in reply to

i can understand why you are going and to be honeset i may be following you as it i as you say an abuseof power from someone i dont know wh o but it is all wrong all the people you have named abpove were he 1syt ones who welcomed me and they were all lovelly so i i have all there contact details but if thing s are not put right i will also be bowing out i am not and never will be on face book for personal reasonds but i am on oir=ther sites and i have an e mail so anyone who wants my em ail pm me as if i go i will just go so get it now as i wont be back love to you all and lets hope it doesnt come to that allit needsis ia sa few sorrys and reinstatements so will see love diddle xxx

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