Include me too! I tend not to mention it to people other than family because no-one ever understands and even when I explain they tend to look blankly as if to say "well you're upright, it can't be that bad!"
In some ways we are our own worst enemy, but why should we have to convince people that we are ill. That's my issue. We struggle every day with our Fibro and other conditions. Just once it would be nice if someone out there understood apart from the odd understanding GP and Consultant. I am sure most of us think like this. Take care everyone.
I dont expect others to understand something I dont totally understand myself so unless it is to my benifit I dont try... I was with my husband outside having Lunch ( sitting on my mobility scooter ) and I heard my name called it was a lady I worked with 10yrs back, her first words ..... You look really well !!! I looked at her than at my scooter .. Errmm in the face you do, she said with a smile ... Lol. Yes we are our own worse enemy but is there any point to try and explain when a bit of catching up and reminience brings a smile and a nice warm feeling
Why is it that with fibro we look ok but the pain is just so bad. However, i have a few friends who can detect when I am going downhill rapidly, it just seems to happen so quickly. However, partner keeps asking what is wrong? Duh I just told you I was in a bad way with pain. Have had people tel me that I am not really disabled because I use a mobility scooter.
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