HI IVE HAD THIS WHAT FEELS LIKE A NAGGING NERVE PAIN ON THE LEFT SIDE RIGHT ON MY TEMPLE AND IT RADIATES DOWN MY CHEEK BONE AND INTO MY JAW BONE AFFECTING MY TEETH
IVE HAD TRI NEURALGIA BEFORE A NUMBER OF YEARS AGO BUT IVE HAD THIS FOR NEARLY 2 MONTHS
IS THIS THE MYOFACIAL PAIN THAT IVE READ ABOUT ON HERE ASSOCIATED WITH FM?
SO TO BE LONG WINDED!
LOVE TO ALL STEPHXXX
i hope you get an answer, i asked same question a couple of months ago. iits excruciating isnt it. hopefully it will stop, mine has at the moment. but it stopped before and then came back good luck tina
How annoying. I spent a long time writing out an answer, submitted it, and then it said 'Oh Snap ! We couldn't find this page !' (infact I am thinking of asking a question just about that because this happens a lot), came back on here, and my answers gone.
Before I was interupted I was going to say. Yes. I do. I get a lot of pain in my head, round my temples, into my jaw, on to my cheeks, and round my eyes. Sometimes it spreads to my neck and the inside my throat, so it feels like theres a 'lump' there. I often have no idea where the pain starts and ends. Or which pain is which (I confuse my jaw with my teeth - like you do). I've been told this symptom(s) is called Neuroalgia, and always just accepted it as part of the Fibromyaglia.
I think it probably is - remember that everyone experiance this condition differently- so we won't all get the same symptoms. Buts its unpleasent isn't it ? Does your head ever feel like it wants to drop off ? Like your neck can't support it ? I know I do. It would be nice if I could screw it off and carry it round instead - ya know, like ghosts do in Gothic fantasys? 
I cope with it mostly using simple massage techniques. You don't have to be an expert. I start at the place just between my eyes, the top of your nose, and spread around to my temples using the tips of my fingers which really helps. Try using a cream of some sort to make it easier (I use Badger sleep balm - a natural herbal product which is v. soothing. I always feel really blissed out when I rub it on my eyelids before bed - or anytime of day if I need to). Try then spreading downwards and then go round your eyes, back up, and then repeat as follows. Sometimes I press or massage around jaw, which helps. Or gently press the lump in my throat to ease tension.
When you have jaw pain - the last thing to do is clench it tigher- this is what I used to do on impluse and it always worsened it. I know it looks silly but try and let your mouth hang freely. Essentially gawp. Let the rest of your face relaxed by keeping it free of expression (I always use to scrunch my face up, which again, worsened it) And the tension should slowly flow out. If I can't keep my mouth open I force it using my fist. It hurts after a while, but I always feel relief upon taking it out.
Hope your okay. Try not to worry, but if this keeps bothering you maybe you should see your doctor just to check there isn't an underlying cause. Hope this helps somehow- I find simple things really benefit, but thats just me.
Hugs, wanderingwallflower xx
Hi Fay that was a realy interesting read thanks. I get a pain in my jaw next to my right ear and around eyes so will try what you do. (son says pain in jaw is from talking to much ha ha) soft hugs xx
Hey Scrumie,
Thats okay - no problem. I'm glad you found my advice useful. I like to help whenever I can.
I think its partly about developing the right habits/responses to pain which makes a difference. Sometimes I actually forget about specific symptoms - until others mention them here, like this question - because I have got so use to dealing with them in a certain way- usually with similar techniques to what I explained above. Another simple technique is applying a lot of pressure with the tip of my thumb, for example, onto a certain pain point- makes it disappear in seconds. The relief is immense.
Hehe, I have been known for talking too much ('wallflower calm down, you're going too fast', 'wallflower, breath' lol). The best advice I can give to anyone suffering is here is just listen to your body, really listen to what its telling you, trust and follow your instincts, and you will find relief.
Hope you're okay, and speak soon. Soft, caring hugs. xxx
I get neuralgia a lot , sometimes 2 or 3 episodes a month and it is excruciating , sometimes sharp pains shoot across my face and into my ear or eyes . I even find it awful to drink hot tea as the pains radiate into my ear . I have this for too many years to remember ,. When it settles after about 3 days I usually come out in cold sores . Not a pretty sight believe me !
I also get neuralgia on my left thigh and left wrist , seems to occur on left side mostly. Doc gave me a course of tegretol ( I think ) to try to stop the attacks occurring so often , it helped for a time .
Hi, I had this kind of pain last year and went back and forward to the dentist, he was sure it wasn't my teeth causing the pain and i couldn't understand how it couldn't be. Evetually a doctor confirmed it was neuralgia and gave me gabapentin which helped. Hope you get on top of the pain soon. x
I'm glad someone asked this question as I thought it was just me lol.I'm sure my jaw is out of line with it,it's mainly my right side but I grind my teeth subconsciencely and it's driving me nuts lol
thanks everyone thought i was going mad, i went to my gp on friday and she wants me to have blood tests for a poss blocked arterie! oh what fun
like I said fibro is so random !! gota laugh guys!!xxx
love to allxxxxxxxxxxxxx
It could be Neuralgia that you're describing Brindlelion, but it could also be Myofascial pain. Myofascial pain can occur in distinct, isolated areas of the body, and because any muscle or fascia may be affected, this may cause a variety of localized symptoms. More generally speaking, the muscular pain is steady, aching, and deep. Depending on the case and location the intensity can range from mild discomfort to excruciating and "lightning-like". Knots may be visible or felt beneath the skin. The pain does not resolve on its own, even after typical first-aid self-care such as ice, heat, and rest.
Myofascial pain and Fibromyalgia share some common symptoms. However, a patient may suffer from MPS and fibromyalgia at the same time. Myofascial pain may affect many parts of the body, it is still limited to trigger points and hot spots of referred pain.
It would be advisable to see your Doctor about this pain to verify exactly what it is and whether connected to your Fibromyalgia, Some pains are hard to distinguish from having Fibromyalgia and having other pains, so it's always best to check.
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