Fibromyalgia Action UK
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What are your symptoms/can you pinpoint a trigger(s)

i just want to know if other's have symptoms similar to me - stiffness in joints (particularly on waking), pain in legs,hips,bottom,pelvis,arms, neck, shoulders, and facepain plus clumsy,and cant find the right word...(phew!!)

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Yes yes and yes yes and a few more tender points in my

Head, can't sleep, very very tired strange pains in my feet

And knees, and a few more that I can't think off that's the

Bliss of Mr fibro the B.........d

Love viv

aargghh - i forgot about the knees ! cant sleep withour cushion between them !

im the same sanj x

Hi sanj,

Yes, this is me too except for the face pain - it sometimes feels like my hips, bottom and pelvis are so rigid that it's difficult to move.

Caring thoughts xx

thankyou hugs

yes to all of those hunni its like a nitemare ,in so tired today aswell .soft hugs to u xx

gentle hug right back at ya

All of the above plus chest pain ( in the breast bone ) , nausea and stomach problems, gastric reflux, panic and anxiety attacks and agoraphobia . Dry eyes and mouth........... the list is endless though to be fair, not all caused by Fibro.

xx

yes I have breast bone pain....It feels like it is been slowely ripped apart, it is soooooo painful!!!!!! And I get an awful pain in my foot. The headaches and muscle pains are awful, like you have done a weeks full of 8hrs a day of nonstop excersice and more....

kind regards

gerry

theres a symptom i dont have yey !

Yes I get the pain in breast bone too. Feels like someone has danced on my chest at night and its soooooooo stiff in the morning. Good to know i'm not alone.

Breastbone pain is possibly the worse of my symptoms, it is dammed scary as well as painful.

Oh and fog........ how could I have forgotten the fog..... :)

xx

do you struggle with finding the right words or is that my menopause ...or the drugs im on or.......hmmmmwhat was i going to say ? ha

Ill start from head to toe

tight band around head

seizures

pain where skull attachs to neck

migraine

eye problems double vision photophobia

ulcers in mouth

biting tongue

teeth crumbling

neck pain

shoulder pain

upper back pain

fibrositis

sore breasts

tight band around ribs

constant cough

IBS

irritable bladder

osteo in spine hips

tigh band in thighs

hypermobility

knee pains

shin splints

achilles tendons tight

foot probs

dupytrens constricture in little finger

all over buring of skin

ant like feeling crawling all over

fainting

nausea

any one want to give me a job

one thing Ive still got is a sense of humour

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omg!

Hi Lally glad you got a sence of humour hun,then you can have a chuckle when I tell you Fibrositis is the old fashioned term for Fibromyalgia.

When I told my rheumy I had been told at 16 I had fibrositis he said(now 58) same problem longer name.

Love and hugs Butterfly54xxx

If it moves it hurts and if it dont move it hurts as well..

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love that analogy !!!!

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oh I agree if it moves it does hurt like hell

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Yes I get all these symptoms. I agree with baldy34 if it moves it hurts!!!!.

ive just read all my replies and i started laughing like a drain!!!

havent done that for ages....I kept thinking while i was reading - oh yes forgot about the foot problem and ibs etc etc.. what do we sound like? i think that fibro is the weirdest illness - for me it will settle generally in a couple of places at a time and then move on.

I was having investigations for my knees, my shoulder and bladder (geez i forgot about the irritable bladder !) gentle hug and giggles for you all

lol was laughing too not much though i got all that plus spinal fusion and just had another op am in so much pain hate how esa/medical treats me like am lying to them even after diagnosis iam late with form cause my hands swollen the operator wouldnt even note my name after waiting 33 minuets to speak to them on hold so my benifit will be stoped xxxxjen

Yes to all that you have described Sanj. I get a lot of headaches too...some real humdingers! The soles of my feet feel tender at times too...like I've walked miles but I've only walked a few steps. Very bad cramp like feelin on my right inside knee on tryin to unbend it after being asleep a few hours ....excrutiating! Soddin Fibro! :(

i had the inside kneepain for ages i know what u mean about straightening it out - vile pain !!!! arrgghhh

Lally, I copied your list but took out the things I don't suffer from....

tight band around head

pain where skull attachs to neck

migraine

ulcers in mouth

biting tongue

teeth crumbling

neck pain

shoulder pain

upper back pain

Lower Back pain

Tender points in Breasts

tight band around ribs...feels as though someone has me in a bearhug...ouch!

IBS

irritable bladder

tight band in thighs

hypermobility

knee pains

shin splints

achilles tendons tight

Tender soles on the feet

all over buring of skin

Itchy at times.

Carpul tunnel

Nausea

Bad memory

Poor concentration

Constant fatigue.

All this is down to Fibro. I've forgotten what it's like to be the old me now. :( I'm 43 years and I swear I feel as though I'm 93. It's tough going. But hey ho...I have to keep smiling and Like you Lally, I've still got a sense of humour. Soft hugs to all of you. :) x

Hi Everyone!

I’m a fibro sufferer also, came upon this post, didn’t realize it is in the UK, or that it was a 5 year old post. Anyway I’m in the US and a 62 year old woman diagnosed about 9 years ago with fibro.

I don’t talk about it around here because people generally feel like if you “look” alright, then you can’t be suffering. I’m so glad to know I’m not alone. I also have a triple fusion in my cervical spine , as well as many other health issues, but think the fibro makes me a homebody.

Thanks for listening, and I’ll be glad to speak with anyone.

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it hurts if you sit around, and ithurts if you stand up and walk. my ankles feel like i have twisted them, cannot lay on left side as everything on the left hurts.have to keep moving about to get comfy in bed, but i can sleep i sleep very deeply and they have given me a CPAP machine as oxygen levels drop when i'm asleep.

but i'm the same as Lally i have a sense of humour.

soft hugs to everyone xx

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