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Fibromyalgia Action UK

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Hey all, does anyone know if there is a similar website to this for Joint Hypermobility Syndrome? Thanks X

BlondeHippy profile image
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BlondeHippy
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8 Replies

Hello there BlondeHippy! I had a look around for you and if you go to the DWP site there is a lot of info on Joint Hypermobility Syndrome and also links for support organisations etc. Hope the link below helps you :) :)

dwp.gov.uk/publications/spe...

jazher profile image
jazher

Hi i have hypermobility syndrome and fibro, there are plenty of people on here with it too. I have not heard of any site that is as good as this one.

hugs, kel xxx

Thank you so much Jazher, that's lovely! :) Hopefully with the info on the DWP site and all the lovely people in our forum's experiences, BlondeHippy will have more than enough information and friendly support to help her. :) :)

LindseyMid profile image
LindseyMid

I usually refer people looking for information on hypermobility to The Hypermobility Syndrome Association:

hypermobility.org/index.php

Gracie59 profile image
Gracie59 in reply to LindseyMid

I second that - finally been diagnosed at the age of 52!

BlondeHippy profile image
BlondeHippy

Thank you everyone. The links are very helpful. I saw a specialist and she has diagnosed this. I'm having an MRI soon on my back, hips and pelvis. Hugs to you all and make the most of the warmer weather thats on it's way - so they say ;) xxx

RattySarah profile image
RattySarah

Hi BlondeHippy

I agree with LindseyMid I would have posted the same link. The diagnosis is the first step, don't overload yourself all at once with info. It can be scary and daunting all the info but don't be afraid to ask questions.

Huggybear16 profile image
Huggybear16

Fm and joint hypermobility syndrome can be linked .think I may have been hypermobile as a child always spraining ankles arms etc.my boys are both very hypermobile I have FM and my aunt had lupus .they all the same group of symptoms xx

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