Allodynia: Dose any one suffer with... - Fibromyalgia Acti...

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Allodynia

sandyjo profile image
12 Replies

Dose any one suffer with Allodynia along with their fibro ?, i have just been told i do, any info would be great thanks xx

Oh ps i drop things not sure if this is why?

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sandyjo profile image
sandyjo
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12 Replies
jazher profile image
jazher

I dont know what allodynia is? I have never heard of that one. hugs, kel xxx

Allodynia is pain, generally on the skin, caused by something that wouldn't normally cause pain. Many people with fibromyalgia report having this symptom. Examples of Allodynia are pain caused by mild pressure from clothing, a light touch, gentle massage, or sheets rubbing against the skin.

Pain caused by touch is called Tactile Allodynia, while pain caused by movement against the skin (i.e., the brush of clothing) is called Mechanical Allodynia. Temperature-related pain is called Thermal Allodynia.

With Fibromyalgia the entire central nervous system can becomes sensitized to a stimulus. This is a proposed mechanism for many of the symptoms of Fibromyalgia and Chronic Fatigue Syndrome, including the way the body amplifies pain signals.

So in a nutshell, some people with Fibromyalgia can find that their pain receptors are affected and this can make them extremely sensitive to heat, cold, touch, clothing etc. I know personally that all of these factors affect me whereas they didn't before my diagnosis. :)

jazher profile image
jazher in reply to

Thanx libbyde, xxxxxx

soulsusie profile image
soulsusie

Well Libbyde I have never heard of this symptom but I certainly have most of the symptoms that you explain. Mmmmm I will look into this.

Regards,

Sue x x x

theshadow profile image
theshadow

Hi there,

I had never heard of this either, but it is something I will add to my long list of conditions! I have to cut labels out of clothes because they feel like barbed wire on my skin. Sometimes it gets so bad, especially in bed that I wear my nightie inside out as I can't bear the seams rubbing!

I always joke that it is my "Princess & the Pea Syndrome" !! Lol xx

hi i have never heard of this but i do get sensitive to toouch i cant say that clothes hurt my skin or sheets but def peoles touch and also i do dop things and have no grip really love to you diddle x

Tillybaby profile image
Tillybaby

I haven't heard of this but I am exactly like that! If I wear jeans and having a bad day, pulling my jeans over my skin is agony.

Sometimes when my hubby and I are in bed and he just touches my arm,it's really sore to touch.

It can sometimes interfere with my 'personal life' shall I say?? lol

xx

sandyjo profile image
sandyjo

Thanks for answering my question, noting the above replies i'm not as bad as some off you, I cannot cratch and ichy spot on me and it is in my hands mostly at the moment! LibbyDe thanks for info and maybe you guys should ask ur gp as it was mine that told me i have it.

Tibbybaby mmmmm 'personal life' what is that? nt very offten xx lol

My pleasure sandyjo, happy to help any time! :) :)

Sarah-Jane profile image
Sarah-Jane

Never heard of this before. Just looked it up and guess I may have it too! I now have another question to put to my doctor. the only name I had for this was myofacial pain. Its no fun is it? I have to wear pjs to bed cos the bed clothes make it a big prob settling. Thanks for putting up your question - I didn't know I had one!

Soft hugs and sweet dreams 1

Sharolina profile image
Sharolina

Hi all,

I suffer with fibromyalgia and was recently told that the pain I feel in my feet and ankles and my upper torso is in fact Allodynia. It now explains why I feel so tender and sensitive in those parts, because Iam in so much pain even when I am touching these areas, and usually we can tolerate more pain if we inflict it on ourselves. Wearing a bra, tight fitting clothing or some shoes makes my body feel so compressed, as if things are really closing in on me. It has become so bad that I tend not to wear a bra, unless I really have to, and then I can't wait to take it off again.

I am on so many painkillers, and yet nothing has helped with the Allodynia, and I have no idea if these symptoms with improve, disappear, or if this is something else I now just have to put up with. The sad thing about it, i that I now dread someone coming toward me to give me a hug.:-(

Poppy-poppy profile image
Poppy-poppy

Hi, I must have it as well I cannt stand my husband arms around me because it hurts and feels so heavy sometimes my throw hurt my toes when I sit down the back of my knees hurt against the chair and I must keep them raised I wear a jml bra and my husbands hairs on his body hurts me and feels like thousands of pins are sticking in me when we are in bed, socks hurts and many more things I could go on and on, but these are things you learn to live with unfortunately.

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