hi im new here and would like to become part of the community....do many people get high dla? thanx gerry

[gerry1]

[Ang01]

Hi Gerry, nice to hear from you and you will soon feel part of the community, everyone is very friendly and helpful here.

I get lower rate DLA but that was based on my lymphoedema more than the fibro. I am intending to go to my local disability advisory service to get a benefits check with them tho. I was advised to put in another appeal after my tribunal as it was felt I should have had more but at the time I had been through so much and found it soo stressful I didn't have the energy to carry on fighting. All the best if you are going for higher rate DLA, I wish you every success. xx

[gerry1]

hi thank you for your answer, you must muster the energy to fight it and get n agency to help you, cab or sombody because you can get it. Fight the tribunuals because they do come through in the end.

god bless

[Hidden]

I only get lower rate care and mobility components and similar to Ang01 I hadn't the energy to fight them to have it increased . I was also aware that if I appealed I could end up losing the award altogether . It's due for review in October and I'm guessing the way things are going I could well lose what little I am getting.

[gerry1 in reply to Hidden]

thanx for your reply speak soon

[lynz]

i got refused any ,i have fibro and arthritis ,but they refused me and my appeal

[gerry1 in reply to lynz]

thanks for the reply speak soon

[Swannie]

Hi there and welcome, im on High Mobility and middle rate care but i too have spinal problems xx

[gerry1 in reply to Swannie]

thanx for the reply speak again soon

[boyzonemad]

Hi There, I am on low rate care and high rate mobility but have finally got up the courage to apply for middle rate care. I have put off applying for so long because I know you can lose the whole lot (it's happened to me before). I have quite a few health problems besides fibro. I have got a meeting this Thursday with a member of the NCODP and they are helping me with the forms, I also have a letter of support from my GP so fingers crossed it will work out ok.

xxxx

[gerry1 in reply to boyzonemad]

thanx for your reply speak again soon xx

[lyn-elliott]

hey gerry im sorry to be the bearer of bad news but ive been waiting for 2 years for an appeal with esa and i have just appealed against the dla desision im waiting to hear what they have to say be preparedfor a long ardious time cos its really hard to get recognised ive been diagnosed by a professior in rumotoligy and threee gp two physios and nhs rumatologist but tey still say nothing is wrong with me

[gerry1 in reply to lyn-elliott]

thanks for the reply... speak again soon

[Ang01]

I must have been lucky with my tribunal then cos mine came through in a couple of weeks. Mind you, I had put in a complaint about ATOS so that may have had some impact on them pushing it tho quickily. I wont give up the fight, now things have calmed down a little I am going to contact the local disability services office and hopefully they will help with the paperwork next time. From experience I know its the way you complete the form that often depends on whether or not you get the benefit. Good luck to anyone else in the same situation x

[gerry1 in reply to Ang01]

thanx fr your reply....speak again soon

[Hidden]

hi and welcome to you i hope that you get alot out of being on the site it truely is a lovely place to be and there are so many people on here with all sorts of different things they have jus fibro to a number of things so i am sure you will get great comfort from here as most of us do you take care and love to you diddle x

[gerry1 in reply to Hidden]

thanx for the reply and speak again soon...

[Hidden]

I get lower rate mobility and lower rate care and that is only the care component because my hands seize up a lot and my concentration is low i continally forget im cooking something and it burns so i am not able to cook a proper meal myself, and the mobility because i suffer bad anxiety attacks if i go further than my local shop (about 5mins). But i can hardly walk nowadays due to leg and back pain and sometimes i am sat in my room for days on end because i cant always manage the stairs and get out of breath bt i had to fight really hard to get even the low rate (appeals etc) so i havent got the energy to fight for any more.

I am new to this site too and have no support here at all so thank god for sites like this.

[gerry1 in reply to Hidden]

thank you for your reply..........speak soon

[Hidden]

refused dla at tribunal dx with me, fibro syringomyelia, and arthritis

[gerry1 in reply to Hidden]

thank you for your reply...

[Brujah81]

hiya i am on high rate mobility and high rate care, i am also on incapacity benefit. i do have severe fibromyalgia and hypermobility syndrome, i have carers and i am unable to do most things for myself, eg wash, shower, dress, cook, etc etc

I use a wheelchair when i am outside and crutches inside my home.I can not stand with my crutches for more than 30 seconds. I have neuropathy in my hands which means i can not feel them or move them very much at all, almost all my joints are effected my the hypermobility. I have IBS, sleep apnea, Vitamin deficiencies, hypothyroidism, i have to use catheters, i also have brittle asthma.

I see a NHS rhemy regularly and have only just started seeing a good GP after years of seeing a really useless one! I had to go to tribunal to get my high rate i was hoping to get middle rate after being on low rate for a long time and my conditions getting much worse.

I am 30 years old. I was Dxed 5 years ago but have had fibro for about 7 and was born with hypermobility syndrome.

[gerry1 in reply to Brujah81]

oh my god............. thanks for your answer,but i am so sorry to hear about what you have and how life is for you. Bless you, i will say some prayers!

[wiccamom]

i would always advise appealing as when i first applied for dla they said no. i now get ESA with support group allowance, low rate care and high rate mobility. i only suffer from fibro, no other conditions and found that welfare rights agents are very helpful in filling in the forms to help you get the right amount due. hope you get sorted, and i have found this site pretty great so far!

[gerry1 in reply to wiccamom]

thank you for your reply.....speak again soon..!

[gerry1]

thanx for the reply... speak again soon xx

[Gracie59]

I have lower rate care and higher rate mobility. I have osteoarthritis as well as fibro.

[gypsycrafter]

i do but for osteoarthritis and spondilosis.

[Chookles]

I've been trying to get both components of DLA for about 6 years now with no luck. It's very frustrating. Good luck with it ;0)

[WEEme]

I got my diagnosis beginning of last year I have polymyglia rheumatica and secordary Fibromyglia and have never tried to claim any DLA, I am able to work full time. Hopefully if I need to claim in the future I will, but at the moment happy with working when I can. xx I have been told that I can claim for my polymyglia xx