Where are we all situated in UK?? Wo... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Where are we all situated in UK?? Would be good to be in touch by phone or even getting together sometime??

Goodienuff profile image
48 Replies

I know this might be a pipedream (am not sure how possible it will be to get any more than 2 fibromites together on a good day) but would be good if we could get together, swap phone numbers etc.

I am in Barnsley South Yorkshire

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Goodienuff profile image
Goodienuff
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48 Replies
Goodienuff profile image
Goodienuff

P.S. I am a 57 year old female, daughter of two, Nannan to 3. I was diagnosed in 2004.

I'm 48, 2 grown up sons ( youngest with autism ) and I'm now living on the edge of the New Forest just on the outskirts of Southampton .

Originally from the West Midlands ;)

susie59 profile image
susie59

i am 59 and female, i live in portsmouth, i was only diognosed 10/12 weeks ago.

JoJo007 profile image
JoJo007 in reply tosusie59

Its awful eh...I was diagnosed just over a year ago and still finding it hard to re-adjust to this...Hope you find this site useful...Does help you to know your not in it alone :-)

Think we've done this before?

I'm 60 this year, living in Cambridgeshire, originally from West Yorkshire.

I've got 2 grown up sons, Mark 40 and Andy 36. Andy lives in the Netherlands, Mark in Hertfordshire. Nanny to Hollie who is 7.

Husband Steve is in a nursing home with amzheimer's. He's 61.

hiya.. i am 50yrs old female. diagnosed 2011.

also have osteo arthritis in all my joints

live in northumberland

Sandy247 profile image
Sandy247 in reply to

I live in Forest Hall near Newcastle upon Tyne. I'm 48 and was diagnosed with FM 6 years ago.

Whereabouts in Northumberland do you live loopyladye?

julieru profile image
julieru

I am 47 living in Warwickshire. Single due to my illness, would be happy to talk to others

Spirit profile image
Spirit

46 year old female - suffered since 1998, dx 2012. Living in North Wales and originally from Staffs x

Goodienuff profile image
Goodienuff

Hmm, we're pretty widespread then, maybe sometime we'll find others local to meet up.

trisha64 profile image
trisha64

im 47 and live in liverpool maybe we could set up skype calls ??

kasp767982 profile image
kasp767982

Hi

I'm Jane, 51yrs & live in Wiltshire (not far from Bath) Mum to 4 sons & Nana to 9 grandchildren

I was diagnosed approx 10yrs ago & also have Ankylosisng Spondylosis

topcat7007 profile image
topcat7007 in reply tokasp767982

Hi Jane,

I live in Bristol, so Im not that far away. If you would like the opportunity of meeting fellow sufferers in your area, then please let me know. I have several contacts who run support groups in the local area. Nice to meet you x

kasp767982 profile image
kasp767982 in reply totopcat7007

Hello,

That would be good please all the groups I know of are quite a long way from me & I can't drive x

topcat7007 profile image
topcat7007 in reply tokasp767982

Hi there, thanks for the reply. If you are on facebook, my profile name is fibro queen. Please request me as a friend & let me know who you are so i know to accept your request. I will then invite you to join a facebook group with fibro sufferers who may live in your area and introduce you to local support groups too x

topcat7007 profile image
topcat7007 in reply totopcat7007

my profile picture has a pick background with a cute teddy on it & the fibromyalgia ribbon on it x

Swannie profile image
Swannie

im 38 dx 2010, 2 kids, im from Leicester but live in Doncaster now xx

hi yes it would be a site for sore eyes too all of us in our varoius states of illness lol with sticks and other things and jelly legs going everywhere hah ah we would certainly cause a stir but it would be lovely i agree i live in lowestoft suffolk love to you diddle x

forgot to say i am 47 years old this sept and have 2 girls 25 and 19 2 grandsons 4 and 2 and a doggy 6 but know nothing about skype etc lol now that would be funny surprised i can do this online love diddle x

JoJo007 profile image
JoJo007

Im 47 and live in Edinburgh..WOuld love to keep in touch with people...Helps me know I am not alone in all this suffering

JoJo007 profile image
JoJo007

P.s find me on FB :-)

JoJo007 profile image
JoJo007 in reply toJoJo007

Sorry forgot to leave my name...Jo Taylor...Feel free to add me :-)

Goodienuff profile image
Goodienuff

Oh Yeah, I am on facebook too AvrilGoodall

JoJo007 profile image
JoJo007 in reply toGoodienuff

I will look you up if thats ok?? :-)

JoJo007 profile image
JoJo007 in reply toJoJo007

Whats your profile pic?? :-)

Goodienuff profile image
Goodienuff in reply toJoJo007

On facebook? It's a pic of me and Ian Towning, the antiques expert from Dickinsons Real Deal. I bumped into him believe it or not in Valettaa, Malta 18 months ago!! I love that guy and was so thrilled to see him.

I might try and get that pic on here sometime.

JoJo007 profile image
JoJo007 in reply toGoodienuff

Yes on FB...I did try to look ffor you but it only came up with 2 people with your name and none of them is someone mixing with a star ha ha...You can try find me if you like?? Jo Taylor...I have a pic of me and my girlfriend :-)

Goodienuff profile image
Goodienuff in reply toJoJo007

I think I got yer JoJo, sent you a request xxx

Mrs-Spoon profile image
Mrs-Spoon

Evening All,

I live in Emsworth, Near Portsmouth.

I was mis-diagnosed 15 years ago with RA, formally diagnosed with FM just over a year ago.

I am 35 years old and mother to Bea and Dan with are 17 and 15.

I am luckly (or unluckly) and work full time whilst trying to study law.

Gentle hugs to all

xx

heavenly profile image
heavenly

Hi everyone. I am 60 feel like 90 most days haha. I live with my husband and have 2 adult children who still live with me. I live in Swansea Wales. Not sure if we can get together as we are all over the place. I had a idea though, if your interested and have the energy why not place a advert in the local stores or post office ect to ask if there are any other fibro sufferers in your area who would like to get together to socialize and meet up for support. Maybe you could hire a community centre for example sometimes you can get them cheap for hire and then share the cost. The only drawback is be careful about leaving your phone numbers incase you get some idiot who thinks its funny to phone you at stupid o clock, possible ask the store owner if they are happy to take phone numbers off anyone interested who sees the advert, just a thought to ponder on, Good luck xx

rubywhiplash profile image
rubywhiplash

Hi All I am 51albeit 52 in August live in Wiltshire on the borders of Dorset and Somerset also God knows how long I have been diagnosed seems like forever with the pain just getting worse! I have 3 boys 29 next month one 27 week after him and the oldest 32 in Oct plus 3 g/kids all girls this year 11 4 & 3 actually going to make an effort to go and see them for a little awhile tonight as long as my bladder behaves was bad in the night and this morning but much easier now so fingers crossed, as Fluer keeps asking where I am bless her heart.

Hugs Ruby xx

lyn-elliott profile image
lyn-elliott in reply torubywhiplash

hey ruby im in warminster myself where are you at x

topcat7007 profile image
topcat7007 in reply torubywhiplash

Hello

I live in Bristol, so Im not that far away. If you would like the opportunity of meeting fellow sufferers in your area, then please let me know. I have several contacts who run support groups in the local area. Nice to meet you x

kasp767982 profile image
kasp767982 in reply torubywhiplash

Hi Ruby

I live in Wiltshire too, but I am near Chippenham :) x

nadine1974 profile image
nadine1974

im 37 (38 in a week aaah) diagnosed nearly 3 years but told ive had it 10plus years due to symptoms etc. 2 children teagan nearly5 with hypermobility syndrome and ryan nearly 9 with adhd aspergers and ocd.

ive got bulging discs l4 l5 s1.....fibro, overactive bladder, intersitial cystits, ibs, bipolar, anxiety and panic attacks (new symptom).

and ive been single mum for 5 years from NORWICH xxx

KatiMaiTay profile image
KatiMaiTay

Hi Im Kathy Taylor and I will be 59 years of age in July, I live in Pleasley a small village near the town of Mansfield which is in Nottinghamshire, I was diagnosed in 1999 with Fibromyalgia,Diabetes,OverActive Bladder,IBS,Hiatus, Depression Hernia,Rheumatoid Arthritis, Panic Attacks, I am sending Gentle Hugs to everyone who suffers the same as I do. Find me on Facebook if you fancy a chat.xxx

gypsycrafter profile image
gypsycrafter in reply toKatiMaiTay

found your fahu questions on fb but not your wall? I am in mansfield too about 2 miles away from you. dx last dec fibro, oa, spondilosis, ua thyroid, panic attacks, ocd, af

my name is steph crawford with picture of loch lomond at dawn.

ldjboothby profile image
ldjboothby

Hi I'm Linda --I live in York but my son lives just outside Barnsley -not far from the Yorkshire sculpture park ,so vaguely know the area---i'm on facebook which you can use for private messaging and skype where you can have group conversations free of charge ---very easy to use

Chris-Dee profile image
Chris-Dee

Hi i'm Christine.

I am 49 years young from Staffordshire.

I have 4 Children a girl, boy & twins who are a girl & a boy.

All the Children have grown up & have homes and families of their own.

It would be lovely to share a cuppa & a chat.

I'm Sue Moorhouse was Easton on fb. And I can never find anyone!

Sue x :)

Whiterabbit profile image
Whiterabbit

Hi iam Andrew and iam 42 from Ashton under lyne

I have twin girls , one at uni to be a nurse and other is a manager at river island so iam ok for advice and clothes :), and a great wife and if any one wants a chin wag or email me please do

Iam a great listener ( done counselling for mind and a district advisor in special needs in scouting ) phew

Butterfly54 profile image
Butterfly54

I`m jayne all on me owny o in Hastings 58yrs young lol

hi i am pammy 49 no kids just fella and two dogs, one is a colllie cross and the other is a very large mastiff very gentle ..

i live in kent and have seelica disease, hiatus hernia, disco bulge, depression, cronic fatgue, fibromyalgia,cysts onmy kidneys, cronic puj.panic attacks, anxiety attacks.

lyn-elliott profile image
lyn-elliott

hi im 46 was dx 2yr ago i no live in warminster wiltshire have family in south yorkshire sheffield area and notts not far from doncaster and my 2 boys in norfolk great yarmouth and my daughter lives in eastbourne im hoping to buy a campervan soon and go travelling would be great to vist ppl luv and gentle hugs to all xxx

kasp767982 profile image
kasp767982 in reply tolyn-elliott

Hi

I live in Wiltshire too, Chippenham way :) x

lyn-elliott profile image
lyn-elliott

ps find me on fb lynelliott@ymail.com

topcat7007 profile image
topcat7007 in reply tolyn-elliott

Hi Lyn,

I think that I may've requested you as a friend. My Facebook profile name is fibro queen. I live in bristol but I am in touch with people who live in Wiltshire including local support groups. Please let me know if you would be interested in joining a new group x

topcat7007 profile image
topcat7007 in reply totopcat7007

A facebook group is what I meant to say!

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