Can I ask people's experience with thier mobility having Fibromyalgia ?I'm experiencing foggy head and walking into things ...going to pick something up and not quite getting it right . And also really awful pain in feet and hands .
Just feeling alone ATM and looking to see if people have similar symptoms.
The cold isn't helping lol
Hi, yes to all I'm afraid. I was never a 'clumsy' person but now, well, I actually amaze myself most days!
I swear the poor woman in the chemist has a nervous tic every time I walk in and hides the breakables.
I cleared the desk just trying to pick my prescription up. She now hands it to me very firmly!😂
Foggy head & spatial awareness work as well as wonky temp control, it's an absolute joy isn't it?
But, you're definitely not alone 😵💫
I can help you just ask me I’ve had fibro for 20 years
Good morning, I find it so reassuring when someone asks something about fibro and their symptoms sounds so like mine.
There has been many times when I have thought, surely these feet and hands would be better off because they cause so much pain.
I am constantly bruised from bumping into things. Most of the time I have no recollection of how I end up with a bruised. It's novel when I do remember.
Take care of yourself.
Hi, I'm afraid, so I'm like pinball bouncing off the walls at times. My feet I can only say. It feels like I'm waking on pebbles. As for the foggy head, I constantly forget what the words I'm trying to say or how to spell something simple. It's all so upsetting when you have never had these issues before.
yes to all of those.
Thats me to a "T" wish hubby would understand Its Fibro, keep fighting warriors xx🐷
Morning Mr D,
I know just how that feels. It started a few years ago, wallking down a corridor at work and I would just veer off towards one side. It seemed quite amusing to my Physio colleagues initially, but I became clumsy too. Dropping things , tripping over nothing and stairs were really dodgy. None of this has stopped, but I retired from work so at least I'm not putting anyone else at risk.
I have really bad pain in my hands and feet too, so much so that I was convinced I had fractured more than once. I have not fractured this time, but the ongoing pain feels very much the same as when I slipped on the stairs and fractured my big toe. Took so long to heal and so much pain.
I think it is OA which is definately made worse in cold and damp weather. I try to be very careful when on stairs or doing anything potentially dangerous. That means most things now.
Take your time whatever you're doing and try not to do too much in one go. I now walk close to walls etc, always use a banister and only cross a road at traffic lights.
I also am unable to regulate my temperature. Hot to cold and back again for no reason.
Fibro sucks basically. I really feel for you, but it does help to know you aren't alone. I don't know how I would cope without this site and the amazing people who post on it.
Good luck and take care of yourself. Bessed be.
Same here too, always bruised and the other day they sent paramedics out because I'd managed to cut a little piece of my finger off with scissors while removing plastic packaging! (Finger is fine now, just wouldn't stop bleeding so they were over-cautious about it). I use a stick most of the time just to stabilise myself - don't feel embarrassed to use or do anything that helps you. Also the painful feet thing - lately they are also constantly swollen with no cause found. You're definitely not alone in this. x
Hi , I'm 55 and used to work for an airline travelling the world until I had an accident at work .
I use a stick for stability but also because I have arthritis in my lower back from the accident. I'm Always embarrassed to use it mainly because my brain won't accept the situation I find myself in. Have a Drs appointment this afternoon because I think I have CFS too but how do they diagnose that when all they do is say it's the fibromyalgia.
I saw an authopeadic consultant recently and after explaining how I felt ect ect ...he looked at my stick and said so why do you have a walking stick
I was aghast to be asked the question when I had just spent the best part of my appointment "EXPLAINING" my life AGAIN.
Beggars belief that these people don't actually listen.
I have a CFS diagnosis as well as fibro and it was all a matter of eliminating everything else and filling out a lot of questionaires. The two do seem to go hand in hand a lot. And seriously, do they think we use walking aids etc for fun? Most of the time I do my own research and then tell the doctor what I want, like I had to really push for a referral to the pain clinic, but now I'm on the waiting list. I don't think doctors get any sort of training in this area, though some are better than others.
My GP is very supportive and does ask what she can do to help . So I'm lucky in that respect.
One of my feet and ankle swollen all the time, GP did tests and scans but nothing found, so now walk around with odd feet and ankles! Hope your finger is healing well. x
hi there yes unfortunately I m the same. You could do a dot to dot with all the bruises I have. I’m always dropping things ( I’m sure gravity is greater for those with Fibromyalgia) bumping into doorpost and I broke a rib falling down the stairs. And the brain fog knowing the words you want but can’t get them out or forgetting what you are talking about in the middle of a sentence is so frustrating.
Take care of yourself
Yes me too. Foggy head, cannot remember words, or they come out completely wrong, my spelling has gone atrocious, thank goodness for Google and spell check! I'm always bumping into things, or dropping things, I have bruises that I don't remember what I did to get them! Hand - Eye co-ordination is non existent! Welcome to the world of Fibromyalgia!
Update. Been to see GP today and she's diagnosed CFS . Knew it ... So glad I have such a supportive Dr .
Yup! Indeed I walked into the skirting board recently. It's been there since I moved in but that day, it decided to jump out and hit my foot; Baffling, colourful and extremely painful! On a positive note, it's good to know bones are still strong.
Of course it could be we both need new glasses? Nah! Too expensive. It's defo Fibro.
I've had my eyes tested and it definitely isn't that. I was concerned it could be Ms but it's not it's just Fibro. Look at Asda opticians lol I get vary focal tinted scratch proof glasses and lenses for less than £120 for 2 pairs .... see if you have an Asda opticians local. Even if you were joking 😃😃😃😃
Always up for a money saving tip. Sadly Asda is miles away, so no bargains for me! However, I often walk around the place in the dark with no issues. Walking into walls and furniture is surprisingly random, but I suppose if it wasn't, I wouldn't do it. I mean, despite how I can be quite daft, I'm not stupid.
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