bed time

[dolphin21]

i really hate bed time knowing not gona get any sleep til about 3/4 tossing n turning huffing n puffing getting annoyed as i just want to sleep

[Brigga]

I’m the same. Don’t get to sleep until 3 am then wake up around 4 hours later. I read when I can’t sleep or listening to an audiobook on low can sometimes help. I’m trying to take more walks through the day but nothing is really working so far and doctors have been no help. It’s exhausting. You’re not alone. It’s one of the frequent symptoms of fibro. Sorry I can’t be more helpful.

[ladyjulia in reply to Brigga]

i have every sympathy for you. i am now housebound due to ostioarthritis and fibromyelgia. the pain is unbearable. have tried every treatment available no relief. doctor not very helpful. i am at wits end.everybody wants me to go into sheltered housing but ihave 2cats and i can not bear to let them. sorry about the moan!

[dolphin21 in reply to ladyjulia]

sorry to hear that, has a lot to answer to this fibro. understand about your cats they part of family not just pets. feel free to moan does us good

[rosewine in reply to ladyjulia]

ladyjulia some sheltered housing allow pets especially if someone already has a cat or dog. My mother's place was sheltered but each flat had their own entrance. People were allowed to being their existing pet but unfortunately weren't allowed to have another one when it died. Other places sometimes allow a cat if your flat is ground-floor. Worth enquiring of the ones near you.

[ladyjulia in reply to rosewine]

have looked into it but not found anywere suitable that i can afford. rents around here are very high. i live alone in a nice bungalow but its in the middle of nowhere!i have coped alone for 5years but my condition has got worse the last few months. pain everyday is hard to cope with. the cold damp weather does not help! i find doctors not very helpful. have tried lots of private treatments but no relief. they just say there is no cure. i only carry on because of my cats. they are a great comfort to me. i am looking into some private help at the moment. it should not be like this.

[dolphin21 in reply to ladyjulia]

no defo it should not be like it, you should not have look into going private doctors are waste of time tbh. thats the trouble everything is so expensive now. try keep being strong we all feel same take care

[rosewine in reply to ladyjulia]

That's a pity about the high rents. The middle of nowhere is great when you are fit and able but definitely not when you are struggling. I am lucky to have a husband but his health isn't good but still easier than trying to manage on your own. Yes animals keep you going. We have a rescue dog and she certainly takes my mind off things and makes me get up in the morning and to at least attempt a short walk. I am certainly thinking of getting a cleaner in the New Year as we are both struggling with certain tasks. No this weather doesnt help, I have had flare after flare this year and I am sure it is the wet, cold weather.

[dolphin21 in reply to Brigga]

thanks for kind words agree about doctors feel waste of time going sometimes

[Noodlenan]

I can totally relate - for me I am awake all night with chronic pain everywhere and the most excruciating leg cramps that make my ankles lock. It’s an absolute nightmare I usually end up dropping off at about 7am for a maximum of 2 hours if I’m lucky ! My tired is so tired it’s beyond tired!

The medical profession where I am seem to have no clue how to manage fibro and that constant battle is exhausting too!

Yet we keep going because we are all warriors!

Be kind to yourself because it’s better than constantly fighting against your own body xx

[dolphin21 in reply to Noodlenan]

i agree doctors dont seem to care about pain and not being able to sleep etc all mine do either up doses or change tablets, been on these ones now about month n half still no charge dont feel like taking them tbh

[dolphin21 in reply to Noodlenan]

there seems to be no ending to it at all does get you down just one night sleep be nice . keep strong

[Jillgib in reply to Noodlenan]

I am the same unfortunately I tend to sleep for 90 minutes wake up then can't settle or go back to sleep I'm being exhausted all the time xx gentle hugs xx

[Familyl]

I'm the same I go to bed around 11pm but read till about 1am until I'm so exhausted I think I will sleep ,unfortunately not the case I wake every hour in so much pain I've not had a good night sleep in months now so I feel for you .x

[rosewine]

I commiserate. I've always been a very light sleeper but since having fibro if I get two disjointed hours I'm lucky. I have a kindle by the side of my bed and read or I listed to music througn my small MP3 player. Anything is better than me tossing and turning and worrying about it. My doctor does allow me 2 low dose Zopiclone tablets a week but they just give me about 4 hours disjointed sleep but better than nothing. It is amazing that fibromyalgia seems to have people tossing and turning througn lack of sleep or sleeping all the time. I know which I prefer. I joke with my husband who can sleep for England that he must have stolen all my sleep.x

[dolphin21 in reply to rosewine]

ha my patrner can sleep to. you woukdnt think that fibromyalgia what doctors dont seem to know much about can cause so much pain and difficulities in us