Sleep: Hi ive just been diagnosed with... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Sleep

Suncatcher71 profile image
12 Replies

Hi ive just been diagnosed with fibromyalgia. My sleep pattern is horrendous but finding it hard to get comfortable so hard in fact i dread going to bed. Any tips gratefully received.

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Suncatcher71 profile image
Suncatcher71
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12 Replies
Fra22-57 profile image
Fra22-57

some will tell you about certain mattresses.I couldn’t buy another as I already have the last I bought standing up in my spare bedroom I only used for 2 weeks.That cost a lot .I know how you feel as lack of sleep is not good.If there is a slight crease I can’t get off to sleep and a crumb is like a brick underneath.My main problem is the heat.As soon as it gets hot I have to jiggle along to find a cold spot.Good job my husband sleeps sound.

Welshcatlady profile image
Welshcatlady

Hi I only manage 4 to 5 hours sleep on a good night. I have a weighted blanket which really helps me, I feel as though I'm being swaddled, it has helped me a lot, before I had it my sleep was practically non existent. Lavender pillow spray is good for helping you relax.

Purple_Badgers profile image
Purple_Badgers

Hi! I really feel for you - a bad sleep can make everything so much worse.

When my sleep quality recently declined due to pain, cramps, restless legs etc I went to my GP. I was already on various painkillers and supplements and didn’t want to mess with those particularly.

So I’m currently trialling amitriptyline, just a small dose early in the evening (7pm ish), and it has made a huge difference for me so I think I will continue.

I would use lavender pillow spray if my partner could tolerate it, as I have found it effective in the past.

Also a gentle stretching of everything in turn before I hop into bed seems to prevent some of the pains (or at least show me what hurts before I get into bed, so I can rub ibuprofen gel or similar on the worst affected areas!)

Good luck, hope you can achieve a peaceful, restful bedtime!

CheetieCat profile image
CheetieCat

Magnesium spray is always worth trying, works really well for some of us and does nowt for others. I find it really good for muscles all over from neck to toes! Great for cramps & restless legs too 😊

Ellenindigo profile image
Ellenindigo in reply to CheetieCat

Hello - Do you know if magnesium salts work (in the bath)? am intrigued as saw some in TK Maxx!!

Sorry for asking on your thread Suncatcher!

CheetieCat profile image
CheetieCat in reply to Ellenindigo

Yes, lots of people get good relief from Magnesium salts/Epsom salts in the bath particularly at night. I'm starting to struggle a little getting out so rarely have one now, fear of being stuck! Have this scenario of fire brigade rescue playing in my head so mostly showers for me 😁

Yassytina profile image
YassytinaFMA UK Volunteer in reply to Ellenindigo

I do tend too get a supply especially when on promotion or a visit too TK,, Boots, any big Supermarkets, as I bath every night I.do miss an occasional night putting Epsom’s in as I found can make your skin abit dry. but in general I think helpful for me ,nowadays they do some amazing smells tooxx

Ellenindigo profile image
Ellenindigo in reply to Yassytina

thank you!!

Nelly1 profile image
Nelly1

Hi Suncatcher71

I find that a V shaped pillow helps.

I still struggle to get a decent nights sleep but the V shaped pillow has definitely improved on the amount o get now. Anything is worth a try.

amzn.eu/d/91KDMoY

Ladame profile image
Ladame

Hi, I fully understand what you're saying. I will be following this post as I too could do with some tips! I hope you find something which helps. I couldn't survive without a wheat sac ! 😂

Josie-Anne profile image
Josie-Anne

Hi Suncatcher71,

I have fibromyalgia too and I couldn’t get comfortable so I bought a body pillow off Amazon, it’s like a horseshoe effect with the round part that goes where your pillow would be then I place a pillow over it, I turn in each side but when I do I put the leg parts between my knees which helps take the pressure off my spine and helps with restless legs too, hope this helps 🤗

Yassytina profile image
YassytinaFMA UK Volunteer

Hello. I can empathise the sleep situation 🙁I am currently having trouble keeping my mask on (I have sleep apnea) but without that getting a few goods hours is beneficial so I do tend too get up and make a milky hot chocolate on nights I just cannot go off, I have a cream with lavender in , a facial mist spray (lavender ) I found company online who have brilliant reviews and use products with the NHS patients , been ordering with them for awhile now they are based in Somerset ,they do have a shop but I live in Suffolk. Worth a try (Herbs on the hill) xx

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