Claiming pip: hi for any of u lovely... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Claiming pip

14 Replies

hi for any of u lovely people out there have concerns about claiming if u go on tik tok there is some very useful information on there

14 Replies
desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

not sure your post is specific enough to be of help. For anyone looking to claim any benefits then I would reach out to our benefits team.

benefits poster
in reply to desquinn

hi sorry o should have mentioned her name is Chantelle wright I found some thing she said very useful

Mrdiagnosis profile image
Mrdiagnosis in reply to

Be careful with her, she says that she's been sent stuff by a whistleblower but can't tell you everything because of legal reasons....Which if there are legal reasons then she's already in trouble for having the information but won't share it... ! She says she's an advocate for benefits. Do you have to pay her ?

Be careful!

in reply to Mrdiagnosis

no I haven’t paid her anything . My son sent it to me as he has diagnosis of adhd he has taken some advice from her for his pip claim so waiting to see what they say I will bear in mind what u say and thank u for your advice

Mrdiagnosis profile image
Mrdiagnosis in reply to

I'm always wary of people claiming to know what the DWP do.

Good luck tho we all need support with the DWP they lie !

in reply to Mrdiagnosis

yes they do lie the thin I don’t understand also is I have limited capability to work on uc and have it for nearly 5 years no problem but claiming pip was a different ball game

Mrdiagnosis profile image
Mrdiagnosis in reply to

It depends on the person who you get doing the assessment. Which is wrong because they should all be the same . I get two benefits and one was changed yet thier assessment of the other said I had limited capability for work left hand doesn't know what right hands doing . So I sent them thier own assessment and they had to change their decision.Just shows they haven't a clue lol

Rebelpebble69 profile image
Rebelpebble69

I also watch chantelle. I started following her as I have an Autistic son and she specialises in helping neuro diverse. But I have found her informative as sadly it seems with being successful at claiming Pip it's not what to say its how you say it

Farmerboy profile image
Farmerboy in reply to Rebelpebble69

Good morning, that it it how we you or I present the claim information. The wording used to describe our abilities or our inability to preform the PIP descriptors safely also repeatable and in a timely manner. The same can be said when we have a face to face assessment .

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to Rebelpebble69

when claiming PIP (or UC/ESA) it is very important that you word your replies to fit in with the descriptors, and remember the reliability (safely, repeatedly, in a timely manner, to an acceptable standard) and fluctuating (being unable to do a task more than 50 % of time) rules.

our benefits team can send guidelines which help with how to word your answers

in reply to Hazel_Angelstar

hi thanks I have learnt a great deal from this site I think on my last claim which was a couple of years ago I wasn’t very knowledgable i will definitely get in touch with the team

M0wnt profile image
M0wnt in reply to Hazel_Angelstar

Hi Hazel, who do I contact about answering correctly? I was recent awarded PIP but didn’t get the mobility part. I obviously didn’t answer right as I manage to get out in my crutches once or twice a week and I push myself to walk my dog, very slowly and it takes an hour to walk a mile, with two crutches, someone with me and lots of tests and then I am led up in bed for a few days and then I can do it again. So I cannot do this more than twice a week. She also asked if I park in the disabled spot at a supermarket and I said I can’t drive since this has happened to me, and no I wouldn’t park in the disabled spot as it’s the only time in that month that I may have gone out so I would walk on my crutches as I want the exercise. So I got penalised for this! She also asked about my mental health and I can’t just perform for her, I can’t go into depth with her about it, this is why I have had counselling for the last five years. I told her I have considered euthanasia! I don’t go out unless I am with someone and my anxiety is through the roof, and that’s the days that I can face going out. Most of my days are led in bed or sat on my bean bag in garden for as long as my pelvis allows me.

I have been treated very poorly by my health providers and it makes me feel very sad. I have worked on the frontline for the health board for the last 8 years and I have been treated like a neurotic woman. My husband fell out his machine at work, just a short fall. He carries on working, drove home and was still getting some pain so he drove to hospital ans they MRI’d him straight away. I lift two 25kg bags of coal, on an already dodgy back and then I bent straight after in the bath and I had a pop, crack in my left hip and fell to the bath floor. I dragged myself out the bath, on my hands and waited 24hours for an ambulance, had to pee in a potty on the bed as couldn’t move. 34 hours later I got into a&e and the consultant didn’t even see me, they dragged me up so much, and I couldn’t walk properly or weight bear on my left left, and yet no MRI and still waiting 5months on for one. Physio has sent me back to square one and now on diazepam and more gabapentin as the physio is making it worse. After I complained on Monday and asked to speak to a senior who I had to argue with…..as soon as he assessed me he felt my pelvis and said you need an x-ray?!?! I still have to wait to see the results as they said it is taking around a month to get results!!!!

I am so angry and today I am agreeing handing in my notice under mutual termination. We have had ni money for the last two weeks and living of a local charity who gives us food.

I have been let down every step of the way on this journey.

As I have discoid lupus, the rheumatologist assumes my hip, back pain was fybromyalgia and not anything mechanical, and as my bloods didn’t show inflammation (before my incidence with the coal) he just sent me away saying it was fybromyalgia. I didn’t even assess me pelvis or back. He just dug me in shoulders and it was a shock why he would ask this and then asked me to stick my tongue out and said you got fybromyalgia.

Honestly you couldn’t write what has happened on my journey. Grrrrr!

Sorry I have to stop ranting bug I just don’t know where to turn for support at times. I talk to my hubby but his face just looks like, oh you’re moaning again. I know he doesn’t mean too but I just see it in his face!

I have tried to meditate each morning since weekend as I feel like I am breaking again at the moment with what physio is doing to me.

Take care all and I am so glad we have this forum. I may not talk a lot as I have to build my confidence as I am still trying to accept what is going on with me.

Take care all x Mwnt.x

if I get anther face to face assessment in person I think o will put my head on back to front 😝 so she can’t put in the report gave eye contact bloody ridiculous 😆

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

You can contact our benefits team

FMA UK benefits helpline information

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