fibro: having pain for 35 years... - Fibromyalgia Acti...

Fibromyalgia Action UK

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fibro

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having pain for 35 years gradually worsening overtime different medication all the not know what causing all this pain going for blood test scans X-rays everything finally got a diagnosis today 10- 07-23 although pain can be excruciating it was good to finally have a diagnoss

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Macdoual profile image
Macdoual

I totally understand what you have said. I was 17 years of "it's just your depression and anxiety causing the pain". The relief I felt getting the diagnosis was something else, I could've kissed the doc. That feeling of thank god , I'm not insane, it wasn't all in my head. Sending gentle hugs.

in reply to Macdoual

hi yes totally agree

jhorsf profile image
jhorsf

Fibro is a collection of symptoms they do not know much about or how to improve your pain , just my opinion based on over 50 years of coping or trying to .

in reply to jhorsf

hi totally agree there other symptoms itchy skin hives sweats pins and needles thank u for your reply

Lia06 profile image
Lia06

hi I totally know how you feel you’re not alone I had same problem for about 20 years but after so many different tests like nerve testing blood tests scans etc I was finally diagnosed 9 years ago I’m on pregabalin naproxen tramadol codeine all sorts but nothing is helping drs say there’s not much more they can give me so I’m struggling quite bad but just have to get on with life which is hard tbh, it just seems to be getting worse crippling most days all I can say is you’re not alone me and others all understand what you’re going through hope you feel better with your medication x

in reply to Lia06

hi thanks for your reply - yes I am on pregabalin and amtyripaline at the moment have been on other meds in the past but was working so some I couldn’t take but now I don’t work partly due to the pain so now see how we go

in reply to Lia06

hi thank u for your reply I agree u do have to get on with it but getting a diagnosis after so long is a relief even though it doesn’t chang anything

jhorsf profile image
jhorsf

I have all the usual meds as above plus pain patches , to save having to increase the dose of the patches I leave it off for as long as I can as I have found it ineffective after a few weeks

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