pip fibro

[Bjjfibo]

could anyone help me with my pip forms for fibromyalgia and anxiety and depression

[Dizzytwo Moderator]

Hi there, it may help if you spoke with someone from the citizens advice if you are needing help filling in forms for pipIf you're having problems with the form, your local Citizens Advice might be able to help you or find somewhere that can - get help from an adviser. You might also be able to get help from a local disability or mental health support agency. You can: find disability support agencies on Scope's website

Momo

[Bjjfibo in reply to Dizzytwo]

Thankyou for your help I have contacted the citizens advice and awaiting an appointment

[Dizzytwo Moderator in reply to Bjjfibo]

That's great. Good luck 😊

[Bjjfibo in reply to Dizzytwo]

thankyou🤞❤️

[Hazel_Angelstar Administrator FMA UK Staff]

Our benefits team can send you guidelines. Local Cab, welfare rights, disability organisations may be able to help with completing them

0300 999 0055 (Mon, Wed, Fri 10.00-12.00) or email [e-mail]

Telephone helpline not available on Monday due to bank holiday

[Trappedmoth in reply to Hazel_Angelstar]

AgeUK helped me. I suppose that it is age dependent. However, they were very helpful.

[CM1EDSUK]

This is a useful site concerning applying for PIP as it shows where you may face difficulties, need support, etc: mentalhealthandmoneyadvice....

You can search for somewhere local to you that may be able to help with filling in your form here, ideally a Welfare Rights Office, or Citizens Advice, as already mentioned, by choosing 'Welfare benefits' from the drop down menu: advicelocal.uk/

Whomever you may contact, remember they will need your input as to how your disability affects you considering the activities/descriptors that are looked at with PIP.

I'm pleased that Scope has been mentioned, as I'm sure you'll find my following advice repeated there (tho I have also said it here quite a few times!). This is to try & give a couple of recent, detailed examples as to the difficulty you face for each applicable activity/descriptor when completing your form, i.e. when did it happen, where, what exactly happened, why, did anyone see this, & were there any consequences to attempting/doing an activity such as increased pain/fatigue?

Say if you can't do an activity 'reliably,' i.e. safely, to an acceptable standard, repeat as often as one would reasonably expect, or if it takes you much longer than someone without a disability.

Remember PIP isn't about any diagnoses, but is about how you are the majority of days. With a condition such as fibromyalgia, which can fluctuate, you should therefore describe all of your days.

You can also ring the PIP enquiry line on 0800 121 4433 to ask for extra time to complete the form, & you will be given another 2 weeks without question. Keep a copy of your claim form, & get a free Certificate of Posting from your Post Office when sending your form off.

Please come back with any questions.

[Bjjfibo in reply to CM1EDSUK]

thankyou ❤️

[cathy64]

the pip forms made me a bit of a wreck, but honestly just read the questions carful, then tell them about your worst days, and what you can’t do, some of the questions are pretty much the same only worded different, so just write the same thing in it, tbh, take your time, if you have someone you can have with you who knows how your days are, that can help, my sister sat with me, an she pointed out things I hadn’t thought of, so she was a help, it’s not so bad really, good luck with it, I’m sure you will be fine, sending gentle hugs 🤗 x

[CM1EDSUK in reply to cathy64]

Please don't say to write about your 'worst' days, as you should rather write about all of your days. PIP is about how you are the majority of days, & to only say about your worst days could be considered benefit fraud.

[cathy64 in reply to CM1EDSUK]

my apologies, I didn’t mean it to sound like that,

[Rainyru in reply to cathy64]

it didn't sound like anything at all Cathy, it was a positive response of support for someone and others reading it , and the worst days must be included first because if like many who need the support from PIP people are never not ill or suffering to some degree , which I know makes people forgetful and have difficulty remembering , particularly with some conditions I totally understood your response , it was kind and thoughful.

[cathy64 in reply to Rainyru]

Hi Rainyru

Thank you, I’m glad you understand what I meant, I did panic then, as I was only trying to help, there not an easy form to fill in, because like I said, a lot of the questions are the same, it then gets confusing

So a big thank you for replying, and making me feel better

Sending hugs xx

[Rainyru in reply to cathy64]

hiya Cathy

Not a problem , and Id guessed you maybe..You are so right they are and as the people are ill they get fatigued with just the thinking ,with so many conditions. the review forms are just as bad , if you put no change which seems to be the most reasonable response if they havnt. As theres not enough information it triggers an assessment. The review forms have to be treated as new claim form in my opinion. Also where I am , we have no welfare rights support , and the CAB well here difficult to get hold of and very very very basic in what they put on forms, not enough . That may differ elsewhere.. So glad you feel better Cathy take care !xxand hugs to you too xx

[cathy64 in reply to Rainyru]

thank you 🙏🤗💕

[CM1EDSUK in reply to Rainyru]

To both you & cathy64 - I apologise if I came across wrongly, as that was not my intent. I do often waver between saying something, or nothing, but hope it may perhaps help others later reading a post when I comment.

I have no doubt that cathy64 was indeed supportive, as I find everyone else here on this forum to be. My concern is that if a person only described their worst days, then was comparitively fairly good when they had an assessment, then it might come across to an assessor that how they were, & what they'd put on their claim form might then greatly differ.

I'm sorry cathy64 - on another forum I unwittingly gave the wrong advice some time ago - I felt awful, but later felt thankful that another was able to politely correct this (as I hope I have done) as I wouldn't have wanted to say the wrong thing.

This thing about saying about your 'worst' days is often mentioned on social media unfortunately, so you weren't at fault. Again, apologies.

[Rainyru in reply to CM1EDSUK]

Hi thankyou for your apology., bless you . We are all trying to support in anyway we can aren't we. The fact this has arisen just shows how these forms and assessments and open to different interpretations . My understanding is . Even if you having a comparatively what would be classed as an okay day, you must describe your worst typical day, if these are more than 50% of the time . If not you would be classed as well"". They do ask what a typical day is. If you are having what would be classed as an okay day on the day of assessment. This can be explained to assessor how your condition varies or fluctuates, which many do. I doubt many are well or having good day as this whole process makes so many people relapse and ill.

Take care and Once again Bless you and Thankyou

Rainy 🌸🌸🌸

[Bjjfibo in reply to cathy64]

thankyou soo much

[Debsdelight72]

Hi Bjjfibo,

If you are close to a carers centre they not only help you fill in forms, They also keep your answers so you can go and see your forms and redo them each time.

Hope you get the help you need

Take care

[lynn_lunn]

I had help from citizens advice filling in my form, a lovely lady talked me through the process, I had a pencil when I was on the phone and as we talked through each question I penciled in the boxes as I would have forgotten what to write later, she also filled in the questionnaire on her computer at the same time with the info i gave her. When the form was completed she was able to tell me how many points i had and if i was eligible to claim.

[Bjjfibo]

thank you I’m waiting for an appointment of the Citzens advice