I have just returned from a brilliant holiday to Cambodia. We go to Asia this time every year . While away l have no pain , ibs.,our sleepless nights .Came back on the 20th . I have been in so much pain .none stop ibs, and the bad sleep nights are back .
This is the first time I have experienced this on my return home ..
Hi there, do you think it may have something to do with fact that your feeling more relaxed and giving less thought to your health issues while your away from the stresses of everyday life. I find the same works for me during the warm summer months. Been away from all the stresses and mundane routines and been able to the outside of the 4 walls of my home. Then throw in a good pinch of warm weather and it certainly would help me feel better thats for sure 😊
Quite the reverse when the winter month start to approach. I have more time to think and a great deal less mobilty in my case. That really racks up the pain for sure 🙄 I do hope you feel better soon.
Momo
How wonderful too do this ever year , I do agree with Dizzy that our bodies are so much more relaxed on a holiday, perhaps the warmer conditions helps as well. The adrenaline rush of looking forward to going away and it’s as if when we come home from travelling we hit a brick wall again. Could you arrange a call back from your doctors surgery for a chat for a piece of mind just too rule out anything else, I do hope you feel better soon xx
Thank you for your kind words . I have never had this before , and we go away every year .But this time round l have really been feeling it . I think that like all of us, I am not getting any younger .And may have to rethink our holiday choice ,and may be not do long ball flight in the future.
I understand totally and quite awhile now since I flew, I did 7hrs as a passenger the year before too Dorset , M25 @ roadworks was a nitemite (holiday itself very quiet @ideally situated ) another English week booked too Sussex this year with beach front location @quiet place. So at i am trying once a year now and actually going parts of England I’ve never visited before . I do get uncomfortable travelling which is why it dosent happen so often Shame but I keep trying . 😀
Hi That's a coincidence as I returned from Thailand on 18th it was amazing for our sons wedding and I also felt great whilst there and have been not too bad until a couple of days ago and now pain is back with a vengeance I did have a couple of massages whilst there which were fantastic cannabis is now legal there and was considering bringing some home but was terrified of getting stopped at airport x
I’m happy to hear you have had a lovely holiday & sorry to hear your suffering with increased flaring of symptoms now that your back. I hope someone in the group can help you. Can I please ask a question, how do you go about getting travel insurance? I have FMS,CFS,IBS ( sounds like I’ve got clever qualifications? I might start adding that to my work CV 😂) Tinnitus, arthritis in various places. I’ve put off going on holiday as cannot face ringing the insurance company to go through history.
I do alot of cruises and have always got my insurance online. The screening is also done online so you don't have to speak to anyone. I have Fibromyalgia, IBS, acid reflux and high blood pressure and have always had reasonable quotes from Insure And Go or more recently, Staysure.
Thank you I’ll add this company to the list of insurers to try x
Let me know how you get on x
I do wonder if it's to do with the weather. The life style .
I was wondering how to word what I wanted to say. Having read the other replies, I now don't need to! The replies you already have, fit perfectly.
I found, that last summer I pretty much felt great. I had more energy, less pain and slept soooo well. The second the cold set in, I felt terrible again. I find myself in constant pain, so my flares are less noticeable really, they just blend in and have become normal. But for those couple of months, I remembered what "normal" felt like.
I think our brains must respond differently to certain stimulates. Maybe the chemical messages are different when we are relaxed, or experiencing pure enjoyment? Or maybe we are just stubbornly determined, that fibro isn't going to ruin it! I wish someone could do some research on this phenomenon, because there is definitely something in it.
There is quite a lot about PRT (Pain Reprocessing Therapy) on Youtube that seems to fit what you are describing - I have only begun looking into it but it sounds reasonable to me.
Unfortunately, it plays into the whole "fibro is made up" idea, and we know there are still those who love to treat us as flakes. It's a frustrating condition for sure, even those of us who have it can't make sense of it. I will have a look on YouTube to see, maybe someone with the skills will find some answers. None of us are lazy, or faking, and living like this is certainly not for the faint hearted.......wouldn't it be lovely to get some semblance of our old selves back? (Yes I know). 10+ years in, and I'm still struggling with accepting this version of me!
I've come across some GPs, and even some specialists, who give the impression they think our pain is imaginary. PRT is different in that it recognizes the pain is very real but that it is the pain pathways in the brain causing the pain rather than the actual location on the body where the pain is experienced. Makes sense since all pain killers act on the pain receptors in the brain.
I find the cold and damp conditions in UK make my pain and stiff joins much worse. Especially just before it rains. Don't know if anyone has noticed this?
i am living now in a much warmer climate and i am doing generally much better. This is a very mysterious syndrome but really my experience so far is that pharma + cold weather makes our condition much worse. Doctors dont know how to treat it. There is really hope for any sufferer out there and this is my humble personal advice: Move to a warmer country, do regular exercises (especially lifting and aerobic), avoid sugar and processed food, take regularly some supplements (probiotics, vitamin B12 and D, magnesium. etc) and please avoid if it is possible any pharma. All the best
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