Routine GP blood tests

[deborah27]

Can hardly bear the pain, burning, numbness, stiffness and fatigue. Have lived with this for many years. Then there are the flare ups, severe and knock me sideways. I had routine bloods done last week, came back within normal range., including the inflammation one. This particular GP, does not think that fibromyalgia is a thing and said that bloods showed no inflammation, so he said that I'm fine. I have a brain injury and have been like this ever since. He had referred me to a neurologist some years back, his referral letter portrayed me as a woman who imagined she has lots of illnesses.The MRI showed brain injury and there was no follow-up. I have no quality of life. I have worked in my particular profession for twenty years. I only work and sleep, I am in so much pain and burning, it is nearly driving me off my head. There is no relief from sleeping or rest, just stiffness and more pain and fatigue. We have a group practice and this GP continues to put negative remarks on my notes, so a different doctor is also reading these comments. I feel so weak and vulnerable. How can bloods be normal!!??

[Loobielu]

Hi Deborah, my bloods all came back normal too! It's most frustrating isn't it. I have also lived with this for many years but was only officially diagnosed last year. It's a most cruel and baffling condition because on the whole we look pretty normal from the outside and this makes it harder for others to appreciate how we are suffering. Unfortunately I have no words of wisdom but I do completely understand how you're feeling. Gentle hugs x

[ANJI-UK]

FIRSTLY, CHANGE YOUR DOCTOR, PREFERABLY WITH FIBRO AND RELATED KNOWLEDGE. Some are more knowledgeable than others in different categories. Seems your doctor is adding to your stress levels and probably depression which both can have a sleepy effect. BURNING LEGS.... are you diabetic? Circulation problems? Burning, pins n needles i get all that, but i also have diabetes and bad circulation too. Apparently mine is nerve damage from the above and i am on GABAPENTIN im on tramadol too but that good be for other pain i have, i get confused and forget a lot these days, Which is put down to the depth of depression and sleepless fatigue, If i get 2hrs sleep in 24hrs i would sing if i could lol If you get the burning while out and about, get of your feet and rest, have a brew somewhere, if its getting no better, not calming down then i usually go home if i can and rest properly. I try rub it away you can always tell which is my worst leg because ive worn holes in leggings and pj bottoms where i keep rubbing the pain away if im in a supermarket as soon as it starts i tell whoever took me shopping ive got the burn and they know i need to get out of there before its worked its way thru my whole leg, thats when walking becomes a problem as i use 2 sticks. I dont know what else i can tell you? If home and leg gets really itchy and hot i use a cold damp flannel rather than scratching. GOOD LUCK

[Michelleswshopping]

Hi , I def feel how u are took my diagnosis 3 yrs saying it was sciatica . It def does sound like fibro my symptoms are almost similar and many more ontop. Bloods test will be normal has that's how they no and u wany have inflammation it isn't like that go onto NHS site and look up fibro best way . For many years it has been un unknown condition and what they called fake illness so your not on your own . Get a different doctor and they will do u a referral. There isn't a cure we have to manage it happently and I'm not there either .if it Is hope u get somewhere .take care xx

[Julsie]

I know exactly where your coming from. The only people who understand it are the people who suffer from it. All my bloods are ‘normal’ except my vit D which is always low due to coeliac. My children do to a certain extent because they live with me. My friends do not. I don’t know whether they think I’m putting it on”, but when your not believed by your nearest and dearest, it’s not surprising people who don’t know us well struggle to comprehend what we go through. Sadly if it’s not treated as a serious condition (or believed )it will never be curable, imo. Gentle hugs, and change your GP xx

[Pdady]

Hi Deborah I think we have all had the same abuse from gp's at some point. I've changed my gp twice now and still get so much miss information about fibro I have got to the point where I have give up with them. Most medical professionals will tell you your levels are fine until they drop below zero by that time I think more damage has been done to our bodies.

As for fibro it seems strange to me that for something that has been around since the start of the industrial revolution it seems odd that so little is known about the condition and so many professionals within the health authority dismiss it or don't even believe in the label they give their patients . It wouldn't surprise me that the next generation of people to suffer with these symptoms will be labelled with long covid to cover things up even more. From what I've seen all these conditions and labels have similar and overlapping symptoms over the years they just get given different names but yet doctors still don't understand the cause or the condition.

[Elaine200756]

Wow! Your doctor and neurologists responses are disgusting. They basically abandoned you when you needed help the most. Is it possible to see another doctor? You deserve so much more. Sending you love and prayers xx 🙏

[Tillytrots]

Hi Deborah I was like you with the pain and everything that goes with fibro when my Dr came out to me I asked him if there was a blood test to see if it was fibro or something else I had blood tests done and he told me if the tests come back and there is nothing there then its definitely fibro also he could feel how my muscles were when examined me and said its the fibro flare up but it took me a long time to accept it ime still not right there yet it takes a long time so ime sending you gentle hugs. 🤗🤗Take care love Tillytrots. X