In the grand scheme of things, at 15 months post diagnosis of Fibro, I'm still a relative novice. So with this in mind I'm picking the brains of you wonderful Fibro Warriors ......
I'm interested in CFS.
How many have this condition in addition to Fibro?
How did you know?
And how did your GP diagnose both conditions?
Hi there, I have CFS and Fibro, diagnosed at the end of last year. CFS is my primary issue so I had a year of blood tests, exams, neurology tests to rule out other neurological conditions first. I am lucky that my GPs have been very supportive and keen to get to the bottom of my issues. Due to extra pain I have fibromyalgia as a secondary condition. I have been referred to my local fatigue service, but that could only happen once the neurologist confirmed the CFS diagnosis.
I’d recommend a chat to GP
Thank you for that.I've only recently registered with a new GP in this area due to a move from the Midlands to the North West Coast.
I'm due there for a 1st appointment for an "NHS health check" but the earliest I could get was 20th March. So will try to discuss then.
🙂
best of luck 
Ditto. Takes a lot to get to that point though Fibromyalgia is often diagnosed by GP’s 🤨
Both my daughter and myself have CFS as well as Fibro , we also have EDS , Dysautonomia and Chronic Migraine Syndrome as well.CFS and Fibro can be quite common as comorbidities (two or more health issues which happen together) , in fact many less knowledgeable doctors and consultants will misdiagnose one for the other , or show their real lack of understanding of these issues by saying that they are the same thing.
A big difference between the two is that Fibro can improve with regular exercise within your comfort zone and that improvement can mean you can slowly increase your activity or exercise with less pain. CFS , however, can be made worse by exercise or activity , even within your comfort zone during a flare. So , it becomes really hard to get the right balance in activity to help one without causing a flare in the other.
I know the difference between Fibro Fatigue and a flare in CFS because I can slowly work through the Fibro Fatigue even though it feels more painful , but just feel steadily worse and heavy in the body with little feeling of improvement from sleep with the CFS.
It's worth reading up on the two conditions via the Fibro Charity website, and any support forum or website for CFS before your up coming appointments, as you will be able to assess how informed your doctor is , and how effective their advice will be.
Write a diary of your symptoms too , even unusual things that you might not think are related and include a sleep diary . You can use this information at the appointment to remember what is going on and the doctor finds this evidence useful in making their diagnosis and assessing what treatment may be required for you.
Take care and Pace yourself ,,Bee
Hi- My gp didn't, I had a series of tests and they just ruled out everything else.
Mine started when I hurt my neck--- so badly I actually saw bright flashing lights. and went downhill from there. Even on a good day, the pain in my neck which extends up the back of my head is always there.. I've had a few times when I feel relatively okay for a while, but most of the time it's just pants.
I was trying to get a diagnosis of CFS but the Fibro came 1st, they are very similar but having the 2 together can be very challenging, my doctor actually diagnosed me with both. It is hard I think to separate the two sometimes so understand why medically they run tests, how long the symptoms have been going on , I did tend to keep notes as well . I was also referred to the CFS clinic. I hope your appointment goes well with the GP xx
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