feeling funny : hi does anyone ever... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,957 members67,095 posts

feeling funny

fibrogirl41 profile image
19 Replies

hi does anyone ever feel funny when you are out places or not. I was in marks and Spencers this afternoon and came over all funny and weird.i had to sit down for a bit till it went off. I felt so embarrassed about it but I hope I will be okay and don't know if it is anxiety making me feel like that or something else. I am talking to the doctor again on Wednesday. Thank you for any advice. I have had some dizziness and feeling like I was moving or off kilter to one side as if tilting, and told the doctor about it and said that I sometimes felt weird with the dizziness and he thought it was labrynthitus.

Written by
fibrogirl41 profile image
fibrogirl41
To view profiles and participate in discussions please or .
19 Replies
fmlife profile image
fmlife

with fibro can also get a bounty of extra illnesses, how lucky are we (not) the one that may of experienced is cfs

nhs.uk/conditions/chronic-f...

have a read and see if this is what experienced, it may not be.

(pacing and daily living aids will help, also ensure eat regular.)

would write or speak to gp to report this scary new issue

gentle hugs

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

I get this occasionally - in my case wouldn't say it was a symptom of Fibromyalgia but more due to the circumstances at the time. Often happens in shops where I might be struggling with pain and fatigue from walking, as onto that sensory overload from bright lights /noise... Then on top of that the shop itself might be warm /stuffy

I can normally hold it together until I get out the shop - but I have walked out and left shopping in the middle of the shop before (or left hubby to pay/pack)

fibrogirl41 profile image
fibrogirl41 in reply toHazel_Angelstar

hi thanks for your kind message x I was wondering if you take anything for it? Also I am having cbt therapy soon so hopefully this will help

Cat00 profile image
Cat00

Very similar to the beginning of my panic attacks, like Hazel says it can be worry about pain in an overwhelming environment.

Dizzytwo profile image
Dizzytwo

I think Hazel got it spot on. I have the same problems when in shops etc.

If I force myself to go out when in pain or overtired I react in the same way. Then it usually ends up in a panic attack.

Momo

saj01 profile image
saj01

Sounds a bit like the funny turn I had back in march my vision went funny and I ended up with double vision for weeks... it's gone back to normal now. They thought I'd had a stroke but I hadn't, but my blood pressure was very high so that was probably the cause. Thinking about it, low blood pressure can cause some of the feelings you had.

CheetieCat profile image
CheetieCat

Yes I get something similar, if I turn my head my head too quickly it seems to throw my balance right off and gives you a horrible sickly feeling. Get another strange one when i start to get out after parking the car, I sometimes feel as though the car is still moving, grab for the handbrake even though I know it's not. It's very strange 😳

Yassytina profile image
YassytinaFMA UK Volunteer

It does sound like a bout of anxiety, I have been in a shop and suddenly for no reason come over all hot and thinking I want too go home a I didn’t feel right,glad you are seeing the doctor Wednesday xx

biker888 profile image
biker888

hi , its all part of the fibro , usually gets worse now the atmosphere is getting colder , the lighting , the many smells from all the plastics , clothing etc etc on the shelves can affect the balance , quite often feel like im about to kilter over and drop dead in the supermarket in wintertime , tried many forms of medication many years ago , sometimes felt like it was a " pick n mix " from Woolworths aka Woolies :) , best to avoid all meds as they just increase more toxins in the body , toxins make us dizzy ,

Gaballetto profile image
Gaballetto

I had a bad bout labyrinthitis about 18 months ago, and although the worst of it has settled, I still feel slightly woozy for the first half of most days (a bit dizzy and as if the ground is not quite where I expected it to be when I take a step).

I have also found that the fluorescent lighting in most big wharehousey shops and supermarkets makes me feel very weird - dizzy and nauseous.

I believe they work by flickering between full brightness and less bright so fast our brains can't consciously detect it, but my brain sure can.

Camille1 profile image
Camille1

Yeah I have moments when I "feel a bit weird". It's like the start of a panic attack, but now I recognise it, I can usually control it and stop it from becoming worse (I'd been to A&E twice before I learned to recognise it). It all coincided with fibro for me.

Makie-Uppie profile image
Makie-Uppie

I get all sorts of 'thingies' like dizziness, double vision, headaches, retching and sweats, usually when I am out. Perhaps they occur too when I am inside but outside just makes them far more noticeable. I have been known to detonate when out and about and usually do not eat for 24hrs beforehand. This reduces the risk, but I still carry a clean-up kit.

Matrix profile image
Matrix

I have these attacks quite often I put it down to being exhausted CFS and as someone said we get a lot of other things associated with fibromyalgia and all of them free..I’m fed up with feeling rubbish .Hope it helps a bit .💕💕

fibrogirl41 profile image
fibrogirl41 in reply toMatrix

yes I know the feeling x I am fed up with it too x I hope one day I will feel remotely normal again

Matrix profile image
Matrix in reply tofibrogirl41

I hope you do too sweetie it’s not fun , have you been to a pain clinic yet . The best thing I found was getting a hobby it takes your mind away for a while when your doing it . Best distraction and exercise does help when your up to it . Keep your chin up fibrogirl . 🥰🥰

fibrogirl41 profile image
fibrogirl41 in reply toMatrix

hi thanks ❤️ I try to be positive and sometimes just want to cry but I need to do more exercise I don't want to put on loads of weight or anything. I hope to get back to swimming again soon x I am having hydrotherapy but we had to pay for it. I have not been to a pain clinic how do you get that do you get referred for this? thank you for your kind message x I do hope I can get my life back x ❤️

Matrix profile image
Matrix in reply tofibrogirl41

you will be very lucky if you don’t put weight on it seems to come with it for a lot of us I was tiny build but not anymore . I understand you crying when I was in my twenties I thought I can’t stand this for the rest of my life , but I have it’s not easy . I found you had to accept the things you can no longer do grieve for them and find new things to do . Xx

caninecrazy profile image
caninecrazy

i agree with all your replies as i work in a small supermarket and i too get funny feelings at times. i too think it's the bright chiller lights and noise that over whelms me at times. it happened yesterday so i sat in the tea room for 5mins to try to get my legs stronger as i felt suddenly weak & light headed. But please see you doctor, fibro affects us all in similar and yet different ways xx

Torti68 profile image
Torti68

I get that weird feeling a lot especially when I'm out. When I'm in a shop I start sweating profusely, I get really dizzy and my legs go weak and shaking. I feel like I am having a meltdown. I also find it difficult to walk in a straight line. I look like I'm drunk. I've only recently been diagnosed with FMS so I'm discovering all the different symptoms plus I have CFS so a double whammy for

Not what you're looking for?

You may also like...

hydrotherapy and fed up with feeling funny

hi I am sorry for the rant and moaning but I had a lovely session at my hydrotherapy yesterday but...
fibrogirl41 profile image

A funny thing happened at work

Well, after my last post saying how I felt energised by doing a pilates DVD (spurred on by my gorge...
melodypond profile image

Stupid funny turn.

We popped in Sainsburys this afternoon, only to discover they had no mobility scooters available,...
julieevh profile image

Some kind of vertigo and feeling a bit down 😞❤️

hi everyone, I hope you are all ok x I still have a lot of anxiety and have had some sessions of...
fibrogirl41 profile image

funny turns?

hi,i've just joined and was wondering if anyone has what i call my funny turns....one minute i'm ok...
louda profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.