I was wondering if any body experiences walking around and feeling like your legs are going to buckle or not strong enough to hold you sometimes. I hope you are having a pain free ish day x
Fatigue and legs: I was wondering if... - Fibromyalgia Acti...
Fatigue and legs
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fibrogirl41
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83 Replies
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hi ,
Yes my legs feel so weak at times like ive climbed a 100 stairs, standing up in the morning is one of my worst times, especially before the medication has had time to work, also like with every part of me, my whole body feels bruised like ive been beaten black and blue, so to answer your question, sorry but yes, no good news really, just find things you can do and ficus on what you can do, cus what you can't do is frustrating, all takes time to process and finally get to a stage of acceptance, theres no exact time this will happen, as were all different,.
Hi, exactly how I feel. Legs feel like they could give way at any time. . Also feel like I’ve been beaten up, sore and bruised. Also have plantar fasciitis, had for 20 years, along with prolapsed discs in neck and spine, impinging on nerves and arthritis in hands and wrists, . Makes life extremely challenging. Never found anything that really helps, just have to take each day as it comes and try to keep active, I do find if I give in to it all I stiffen up even more and feel worse. Commiserations to you, but keep smiling, bless you all 😀
thank you it is nice to know that I am not alone either x I wish there was a cure x you keep going x🤗
hi, the lists of things seem endless dont they, lights, noises, fatigue, pain everwhere, oastioarthritis in my spine, i designed for myself a drawing of a person and tried to write all the things next to each body part, seeing it all is alot, saying a word like lights is just one small word but the meaning behind it is so much more, how bright lights affect my eyes, a small dim light can be like a shining torch in your eyes as bright as the sun, noise, my god noise, i want to put my fingers in my ears till they reach my brain, i truly never ever realised just how many things you can be experiencing all at the same time without the person standing next to you having a clue what your going through. My back feels like someones heel of there foot is twisting deep into my spine, my memory is failing me where even having someone jog my memory, nothing is there, but even dealing with this, the worst part for me is having someone say, isnt that all your head, and are you better now, how many times can you tell family/friends before you just say fine thanks. Sorry for waffling on, but thats what i do best🤐🙂
waffle onx I do I hope there will one day be an end to all of this pain x the one thing that I look forward to is hydrotherapy x I hope you feel better soon and your back pain sounds awful x gentle hugs x
hi have you been to a podiatrist about your plantar fascitis. I was also advised to wear either ascics or new balance trainers as they have the best support. Its done great for my plantar fascitis.
thank you, and yes I have. I was given custom inner soles, cortisone injections, deep tissue massage and shock wave therapy. Have also got a tens machine which I use alongside exercises at home and ice treatments, nothing works for me. Can have some days when not too bad, but always comes back. Drives me mad.😞
I know the feeling x it drives me nuts and I sometimes never know what to do x poor u I wish there was a cure x 🤗
what kind of floors are you walking on? I find my keg pain is much worse if i stand still for too long. If im standing on our stone floor that really upsets them. I avoid the lower floor in our rented house as much as possible. I had no idea this would happen before i moved here. I also keep my legs elevated when im in alot of pain to help take weight off them. It helps.
all the time pal. get a stick 
yes, as Ive got older between fibro and arthritis my legs have got worse, im trying not to use a stick unless I have to
i resisted myself for a long time and couldn't quite get the hang of it at first. i was all out of kilter with the whole movement of it. i guess when you have a discernible limp one one side because of an injury it all sorts itself out but wobbly legs in general takes a little getting used to.
I know the feeling x I don't like it either x ☺️ ❤️ 😕💕
Yes it is very common for me. I have actually fallen over a few times and fallen into things. I have now given in and got a stick
bless you x I have one too it helps me a lot x
thats awful when you just fall over isnt it, when the screens were up during covid,, i was waiting in the queue in sainsburys and i could feel myself going but before i knew it I was on the floor, i broke 2 of there screens, hurt my wrist, people came over to help me up, everyone was wearing masks and i said its ok ill get myself up, i think they thought i didn't want them to get close because of covid, but really the thought of someone touching my bruised feeling body was the reason, im sure they thought i had leant on the screen and it had given way because next time i went in there, they had put notices on all the screens saying do not lean on the screens, i didn't lean on the screen or pass out, i just dont know what happened, one minute im standing still the next im on the floor, funny enough years ago i would of gone bright red and been so embarrassed but for what ever reason i wasn't, just abit disoriented i think, lucky just bruised wrist and bruised elbow that time, but knocks your confidence for a while doesnt it.
I should think it did knock your confidence x it would mine. I think this wretched condition causes a lot of problems and I think we all should get our lives back x 😢 😤 ❤️
I find that i am walking defensively if there is such a thing. I was lucky that i fell over at home and once walking home from work after a nightshift when there was nobody about. But it does change your mindset because like you i could not work how it happened.
Hazel_AngelstarAdministratorFMA UK Staff
yes - normally because I've been walking too much without taking enough rests or I've had to stand in a queue
yes I do, but mine could be due to the fact that I have COPD as well and I can get quite breathless at times. I have to use a rollator with a seat now.
yes its like gravity forces have increased, everything is harder to do, and feel like done more than have..
I have a rollator to give me a rest on route
and a drive all terrain do dah stick the one with a curvy handle (swan neck?) it was lighter that a standard one, does not hurt hands as much, although found fitting a tri support more useful, found walking stick was handy to save chauffeurs back loading the wheels in car, when was going to stay sat. if car broke still have some limited independence.
yes a stick is helpful x I do feel heavy a lot of the time I agree with you x thank you for your email x🌸
hi fibrogirl41
I have this to the extent that my legs actually give way and I end up on the floor, this can happen anywhere so can be dangerous.
Sorry don’t mean to scare you.
Sending gentle hugs 🤗
Yes I'm always having trouble with my legs lately another gift from fibromyalagia, even though i dont want it!
Take care x
yes everything single day and it’s awful I’m currently on holiday with my family and walking up a few stairs is awful! So weak and once I get to the top I have to stop as the rush of weakness that comes over my legs is overwhelming I can’t take another step without rest. It’s frightening I’m 36 and my partner thinks I should get a supportive aid, I’m stubborn and scared of giving in.
Sorry my post doesn’t help. Your not alone ❤️ Xxx
thank you for your kind message x don't worry about having a stick I have one too x I am Older but it is awful when you are young and have such a debilitating condition don't like to rant but I don't like anything about this condition either x ☺️ ❤️
I know I shouldn’t worry about a stick over my well-being it’s silly but I do. This is all new to me so all a learning curve I guess.
No I guess we don’t like rant but it’s certainly good to talk as this condition does make me feel lonely xxxx
its such a shame mantmy are just embarrassed to walk with a stick, i dint know why, when i see someone walking with a stick i don't bat an eyelid, ive found i take my crutch with me rather than a stick, feels more comfortable to lean on & rest, i pretend im looking at something sometimes just to stop and rest because like you said, the wave of weakness that comes over you almost floors you. We do so much to hide our disabilities from others it seems. Anyway ive wrote my quota for the day, my hand is aching like mad, have a good day. 😉
I'm in same place as you, I'm 48 and the thought of getting a stick is just not sitting well in my head. I fell 2 years ago and broke my foot so my confidence has hit rock bottom. Take care
I never thought needed an living aid just kept managing until, pain and the need to do a loo visit, having to wake hubby to help me get there, with a soft shoe shuffle and resting, sometimes not getting there, problems with raise off loo, then there was the time used a cleaning appliance to get there. This is when got a preowned rollator with a seat.
When had to do the grocery shopping with hubby and struggled to walk round , hubby borrowed a wheel chair from Red cross, a few tears happened that life had come to that,
The chair made such a difference, we learnt what needed in a wheelchair, (those bobbles in pavements crossings focused some decisions) self propelled was a must due to being parked in way not able to move.
for your own independence please at least research what could help, landing really does hurt for many days to weeks with fibro, then having to inspect floor while wait for assistance.
you may find can live more easily (its never pain free sorry) have more independence.
gentle hugs
The blasted stairs! I'm terrified I'm going fall down them, so sure that it's only a matter of time. Unfortunately my husband is a bit on the selfish side and just wont agree to moving to a bungalow...says I should get a stair lift. I have a walking stick but using it hurts my hand/wrist. What a mess fibro makes of us eh
yes what a mess x I don't like anything about this condition either x ☺️ I just want to get my life back x ❤️
Definitely a symptom of Fibromyalgia, infact I know someone diagnosed largely based on legs giving way randomly. I suffer this but a lot worse one side, just suddenly gives way. Makes being out difficult not lease as no warning. I do wonder how many GP’s have any clue on this symptom tbh. A stick will give you some stability for this as and when. X
I don't think many GPs know very much about fibro at all. I have a really good understanding doc but I had to see a locum once...an ignorant man he was too..he actually said that as fibro was essentially a diagnosis of exclusion, it wasn't clear if it exists and that its likely to be psychological and more of a 'woman thing'(read...all in your mind). I think, if I'd had the strength, I would have punched him on his condescending nose! When my own doc returned I told her about this experience and she said that yes, some of her colleagues felt the same way. If she retires I'm in real trouble.
Makes you wonder though.
that is awful x I wish it was in my head! but it isn't. I can't believe people who think that. I hope you are ok x at least you have a good doctor though x
Hi,
This disgraceful and unprofessional attitude too often exists with GP attitude and not unusual it seems. I’ve known a few over the years, though even worse on the ME/CFS front!!
Both are recognised on NICE and all other equivalent organisations and GP’s do not have the right to choose to simply ignore. They aren’t medical scientists, not even near that league.
Whenever seeing a Dr have a small print out of the Fibromyalgia NICE info and if faced with the ignorance put it in the Dr’s face and ask him to acquaint himself with professionally..their personal view is irrelevant.
The Dr you endured must be a bit dim tbh. Statistics show more women suffer with, not the same as a ‘women thing’. Too many Dr’s are still with a professional low grade attitude when it comes to womens health, now proven. This is sheer ignorance. Very sad in this era.
Just don’t let the low grade ones stress you.
X
yes, my legs are the worse to. They feel weak, If I over do the walking and standing for to long I pay for it, especially when I go to bed my restless legs are worse.xx
omg, restless legs, i never knew, grrrrrrr its horrible isnt it, not that one thing works for all and always check with doc or pharmacist but antihistamines worked for me, the one and only good thing my doctor has done for me to be honest, it feels like she blames everything on fibro but yet doesn't believe me, she even got my diagnosis wrong on a piece of paper she wrote for me to travel with opioids, so thats saying something, but she dod suggest antihistamines for restless legs and it worked for me, touch wood, so far so good. But check and research yourself first.
I'm on amitriptyline, which sorts of help to a point, but sometimes that doesn't work all the time. I will look into antihistamines though, surprising what other tablets can help when their prescribed for another ailment. Thank you xx
Does antihistamines makes sleepy? do you take it only at night? interesting to know if this working for you?
hi, only for the restless legs, not alot seems to make me sleepy these days, its like i binge sleep, but try not to forse myself anymore, amitriptyline used to make me sleep and tired more then normal, even cut it in half, just slept morning noon & night, ive not needed to take the antihistamine for a while, the restless legs symptoms is one thing that comes & goes but when it happens, found its just not worth even trying to sleep, then i take as needed not everyday.
This is how mine started I went from walking ok to tripping up on flat surfaces to legs feeling weak and giving way in a couple of months. They are very weak now and have many episodes of them giving way completely. I have sticks about the house and wheelchair when out. Big hugs xx
big hugs to you x 🤗🤗
If you remember Shakin Stevens then you can imagine what I am like sometimes without the musical ability (though that is a matter for debate in my mind)
I've been blaming it on not walking enough. But reading all these replies, perhaps there's more to it. I'm suffering from another compression fracture that happened on Tuesday, so now I'm stuck with immeasurable pain if I move.
I also suffer from that & it is extremely frustrating as it’s gotten worse & I’ve collapsed in my house. I’ve become more apprehensive about going as I fell in the rd & a car missed me by about an inch. I’ve tried everything & the only thing that sort of helps is the elec blanket on throughout the night. When I wake up they feel a bit more steadier but I still have to be careful. I think that fibro sufferers are finally getting more support & being understood by other people. In the past I’ve had people tell me that it’s made up & an excuse to not work.
I know it very frustrating it makes me cry and I feel fed up with all of this pain and everything I am going to talk to the doctor about it and some other things I wish I could have my life back sorry for the rant but I think we all feel like this and maybe some one will find a cure 🤗 💗
No need to apologise as I completely understand. It can be so overwhelming & stressful. Having people around you that can help & support you is priceless⭐️ I have an amazing son that is so supportive & will also cheer me up if I need it❤️
I know you just want to be normal and it is difficult sometimes I am glad you have someone who can cheer you up x ❤️ I am going to have a nice soak in the bath later x bliss x I am looking forward to my hydrotherapy session next week x 😎
Interesting to know how if electric blanket help with legs pain? is this heated blanket to wrap your legs at night?
Hi there
Yes, certainly do. I used to be able to walk miles... can't do it now, apart from which any exertion after a while causes fatigue and that includes doing housework or gardening... . I have had days when I've felt relatively 'good' but haven't for a while and quite honestly am fed up to the back teeth with it.
Getting more and more depressed with every passing day.
I know the feeling x I am fed up with it too x I want my life back x ❤️
all the time im afraid. Im trying to not let it bother me, buts its hard
I know it is very hard x I never know what to do sometimes and I might ask the doctor about it. 😊
Legs are the biggest issue with fibro, and most of us suffer from it, here are a few things to try; 1- Ibrorfen gel 10% 2- Magnisuem Spry or Epsom salt 3- Ice pads
Definitely! My calf muscles are constantly stiff and painful and it feels like they can’t carry me up the stairs. It’s one of the most frustrating symptoms after constant headaches. I’m 48 but feel 148 most of the time. I wish I had advice for you but I’m still searching myself. I have tried a massage gun on my calves but it doesn't seem to give much relief. I hope you are doing ok. Best wishes to you ❤️
I know I am 42 and feel 142 it's just debilitating x thank you for the reply x ❤️
Take care out there 🥰
Yes... I often wonder if I've done too much walking or too little, not to mention what else could be the problem other than fibromyalgia (pinched nerve, etc). Fibro is such an umbrella that covers everything, yet we often wonder what else can be going on, right? I hope you find resolution, fellow warrior! 😊
Hi fibrogirl
I know how you feel. I get really jelly - like legs sometimes when walking - as if they are going to just give way. Also, stairs, hills and queue's can be a nightmare ...heavy achy legs...
I've learnt to listen to my body and pace myself which helps, but it can still be vey annoying and scary at times.
Hope you find some leg relief soon!
thank you ❤️ I have soaks in the bath and I look forward to my hydrotherapy sessions but come out of the warm water and feel heavy again I think it does fibromyalgia good for the exercise in water but I fell asleep in the chair watching the TV that evening x 🤣💗🤗
hi I know it's horrible when you feel like your legs are going to buckle or feel like jelly x I hope you are ok and I walk with a stick to help me but I soak in the bath sometimes and look forward to my hydrotherapy sessions in the water I feel okay but I get out and feel heavy again x🤣🤗😊😢
i get the same thing
Yes I get that. I can go from being fine one moment, and the next (usually when standing in a long queue in the Bank or somewhere equally inconvenient) to having no strength to stand at all. I will no longer go out without a stick.
yes absolutely!its so awful my goes from bottom of spine,right hip and both legs so weak,also pins and needles with that to spice it up even more!🙁take it easy,im yet to find relief and been in agony since feb!lots of love xx
• in reply toSocialbutterfly00
get your b12 , folate and iron levels checked.
Signs neuropathy. (pins and needles)
Socialbutterfly00• in reply to
my iron is always low 😑
• in reply toSocialbutterfly00
I would get all tested. Checkout b12 deficiency and symptoms
fibrogirl41• in reply to
thank you ❤️ I have been tested for those a few times and they came back normal. I am talking to the doctor on Tuesday and I will ask about the fatigue etc x
I would suggest reading up about FND. My sister has it and although we both have fibromyalgia, she has far more leg Weekness, nerve pain, unsteadiness, co-ordination issues and she falls a lot which is awful. She now uses a stick and sometimes a wheelchair. Worth a read. Best wishes x
oh i am sorry to hear of her pain,i totally get it my legs and hips are so bad,i was crying in pain yesterday.
poor u x hope you are ok sending hugs x 🤗 I don't like anything about this condition either x it makes me cry x ❤️
good morning and thankyou!yes it makes me cry too. Sending hugs right back. Xx
yes I have had enough of this x hope you are ok x 😤🤗💗
hi there , thats very strange ive started the same thing this past week when I get up cant atand and feel like im going to callapes and not8ced spreading onright side of my hip has yhis has happened . Whete is your pain ? Mines all over now xx
I have pain in my legs mostly but my other limbs feel heavy at times and the fatigue is really hard to deal with and I don't know what to do. do you take any medication for yourself or supplement of some kind. I am sorry to hear you have it all over I did when it started nearly two years ago and I have not really had any help with it from the doctor or anything. I am speaking to the doctor on Tuesday and I hope they can help me out and also help me with what to do or take for panic attacks etc because I have had funny turns where I am sweating, feel odd, heavy and feel like my legs are going to turn to jelly and feel unwell. I hope you are feeling OK now. I wish the doctors knew more about this condition. take care 💐 x❤️
hi fibro girl, yes I h have it to my left leg is worse…. Hills and stairs are the enemy! Soo much soo I felt like a prisoner in my house as if I was upstairs I wouldn’t want to try and go down and if I was down the thought of going up was too much…. Soo we moved to a bungalow and it’s great it’s really helped….. another thing I have found super useful is a stool backpack which means I always have a seat if I need a rest when out and about I highly recommend them to anyone suffering with fibro legs…. I’m sorry for your struggles and that you are finding it hard to accept time helps and maintaining a positive outlook…. Focus on what you can do and what you do have… hot baths and my hot tub are my friends… an afternoon rest and never saying no if someone offers to help …
I feel exactly the same about being a prisoner in the house. I get fed up with it too x I would just like to have my life back can't remember what normal life is. I do have baths sometimes and I always look forward to hydrotherapy sessions although when I have been I feel tired after. x
Hello, Yes l can completely relate to this feeling. I just try and rest and with that said, l then try and go for short walks, just so that my legs can feel a little stronger. Wishing you all the best. xx
thats me every day , and im so glad im not alone. This condition can be so isolating x
I know the feeling x I went to boots today and had to come out again because I felt weird, sick and funny I do not like anxiety x 😭😢😩 but I hope one day I will feel better x I hope you are ok x 😋 😊
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