hi i am shirley: i am waiting for a... - Fibromyalgia Acti...

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hi i am shirley

SkyStarEN profile image
3 Replies

i am waiting for a doctor to confirm what is wrong with me been 2 half years now and i am finding it very hard

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SkyStarEN
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3 Replies

Hello 👋

It’s horrible when you’re waiting like this - I found that finally having a diagnosis helped me, as it gave me something to research and come to terms with. It also gave me some validation that I wasn’t going bonkers - so I can relate to your frustrations.

It’s was a consultant at the pain management clinic who diagnosed me. I know lots of others are diagnosed by rheumatology teams and I’ve now been referred to the chronic fatigue team at my local nhs (who specialise in fibro and CFS). If you haven’t already been referred, it may be worth asking your GP for a referral to one of these teams within your local nhs services.

☺️💙

bookish profile image
bookish

It is difficult when you are feeling so unwell without really knowing why. Hopefully your doctor/s can give you some answers. It can help to make sure that all your vitamin and mineral levels are as good as you can get them, so perhaps ask your GP for copies of blood tests that have been done, so you know where you are starting from (assuming you aren't already taking any). Magnesium helped me enormously, both with sleep and pain, and it is calming so helps anxiety. I spray the oil on my skin each evening. Best wishes

JayCeon profile image
JayCeon

If you want more confirmation yourself and for you docs, you could fill in the following checklist and show them.

fmauk.org/files/acr2016Fibr...

The 2022 UK guidelines for fibro are also based on these criteria and their intention is to speed up the diagnosing.

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