Chronic Pain: How To Live With It

[saluhouse]

Just to flag up a programme on channel 5 at 10.00 pm tonight.

It’s called Chronic Pain: How To Live With It. Write up says “Cameras follow three people who face daily chronic pain as they undergo treatments they have never tried before”.

Might be interesting. And - you never know - we might find out something we don’t already know!

Xxx

[LoneEra]

Oh, interesting! Thanks for pointing this out - I’ll watch on catch up as I think I’ll probably be in bed by then 😂 xxx

[saluhouse in reply to LoneEra]

Hi LoneEra. . Possibly a bit of a scheduling boob - maybe most people who would like to watch it will be asleep. Chronic pain does tend to do that!

Xxx

[Paulie101 in reply to saluhouse]

Yes, it is past my usual bedtime😁

[LoneEra in reply to Paulie101]

😂

Joke about no social life with chronic pain

[saluhouse in reply to LoneEra]

Hi. Very funny - but sadly also very true. I often struggle to stay awake to the end of the 10 o’clock news. Love catch up!Xxx

[Paulie101 in reply to saluhouse]

10 o'clock news? I'm doing well if I make it past the news at 6 without "just resting my eyes"

[MrsRainbowD]

Ooh! Fab x thank you! I'll watch it xx

[Rosepetal60]

Thank you, I've put a reminder on my phone, so theres a good chance of me watching it.

[Arymretep]

Thanks for that, I’ve put it on to record 👍

[Themanwithnoname]

Will be kenneled up so will record ty 4 the heads up 👍

[FibroCFS]

Thanks for the heads up!

[LoneEra]

Just watched this on the My5 app (I’m awake with bad pain in my legs). Wow - I could really identify with Andie who has fibro as well as various other conditions. One comment she made about “existing” really resonated.

It was a tough watch in parts - especially when Gareth had tears in his eyes and he was struggling to look after his daughter. But that’s the reality of chronic pain.

On the plus side, it was nice to see some experts who weren’t patronising and who were prepared to put the work in to find a solution that improved quality of life. I wonder how we can get towards this end state in the NHS?!

Andie’s family were also a joy to see - so supportive. I had a Google and found her fibro blog where she talks more about the medical cannabis journey if anyone is interested: andie01322.wordpress.com

Thanks again for bringing this to our attention, saluhouse xxx

[Braveheart1]

Watching it on catch up you can get it if you go on channel 5 app or online

[saluhouse]

Hi all. Yes I watched the programme and found it very interesting. Think you would have to be funded by a TV company to source all that professional help. But so pleased they all improved.

Wouldn’t it be great if we could all be treated so individually?

Xxx

[Makie-Uppie]

Thanks, will be having a watch at that. There may be dome new ideas.

[Arymretep]

Yes I watched it last night , if only we all had doctors like this who really care about trying to find something to help us with chronic pain. we might get somewhere , the other thing is we can’t access medical Cannabis in this country so however much it helped Andie.? Though I’m glad. For her , it’s not going to help us

[LoneEra in reply to Arymretep]

Have a look at Project Twenty21: drugscience.org.uk/project-...

[Arymretep in reply to LoneEra]

Very interesting, nothing in Wales though, my nearest clinic would be Bristol, do you know anyone who’s tried it

[LoneEra in reply to Arymretep]

I don’t. I only remembered about the Project Twenty21 when I posted that comment...but it’s been mentioned on here before. Maybe someone else will reply?

The one mentioned in the documentary was the Sapphire Clinic in London. As you say, none in Wales that I can see - sorry!

[E3178]

I looked at project 21. Too expensive for me unfortunately.

[LoneEra in reply to E3178]

Yes, it is pricey. There are a few others in the UK but most work out around £5 a day for the consults and meds. It’s a shame the NHS isn’t being more proactive in this area at present x

[Hazel_Angelstar Administrator FMA UK Staff]

Thought the programme was well done and interesting - however it is unfortunate that 2 of the treatments are likely to be unavailable to the majority of chronic pain sufferers.

Financially, If I gave up the things I enjoy in life ... I could possibly afford to try medical cannabis.... But I would have a much poorer quality of life overall.

[saluhouse in reply to Hazel_Angelstar]

Hello Hazel Angelstar. I agree - we can’t really access anything featured on the programme. But it was interesting to see what could be done with dedicated specialists and no cash restrictions.

Also they did stress that treatment should be targeted to the individual chronic pain sufferer. If only! In the real world we are lucky if we see a doctor who actually believes we are ill.

I have been told that ‘Fibromyarse’ is often used as a medical description of the condition.

Xxx

[LoneEra in reply to saluhouse]

Yes, I think it was about showcasing emerging solutions (apart from the physio) and how care could look. Would have been boring TV if they were just popping pills 😂 With any luck some of this may eventually filter down into the real world🤞xxx

[Hazel_Angelstar Administrator FMA UK Staff]

Yes, programmes such as this give us hope that there will be effective treatments available to everyone in the future xxx

[saluhouse in reply to Hazel_Angelstar]

Hello. Do hope you are right. I am wondering if long covid might accelerate the research programme.

I have a friend whose brother has had long covid for over a year. Poor man is so ill. To me, as an observer, it looks like fibromyalgia in all but name. He is going to a Long Covid Clinic - and they are doing their best to help him. But he must be one of thousands so badly affected. Let’s all hope for a breakthrough in treatment soon.

Xxx

[Hazel_Angelstar Administrator FMA UK Staff]

There are a lot of similarities with long covid - but also significant differences such s the damage to the lungs caused by covid. But it may turn out that people with long covid are eventually diagnosed with fibromyalgia